National Dementia Action Alliance Newsletter February 2019
Welcome to the February edition of the National Dementia Action Alliance newsletter which you'll notice has a new design and our new logo. We hope you like it. There's also the report from our annual conference and the presentations, a new webinar we're hosting and an interview with Sarah Ormston from MacIntyre who introduces an accessible version of our Dementia Statements they have produced. There are also updates from NDAA members Toby Williamson Consultancy, NICE, Alzheimer’s Research UK, Age UK, DEEP, Alzheimer's Society, Health Education England and The British Red Cross.
The National Dementia Action Alliance Annual Conference took place on Wednesday 6 February with more than 100 NDAA member attendees from across the dementia care and research sector. The theme of the day was ‘Dementia Support and Research: The Power and Impact of Meaningful Engagement’. As a result a key focus of the day was learning from people living with dementia and carers who gave details of their own experiences and projects they had contributed to with NDAA members. A full report from the day is available as well as presentations from the day where speakers have given us permission to share these.
Toby Williamson Consultancy has been working with the University of West London (UWL) wants to hear your views on dementia education and training. Universities are an important source of education and training for people working in dementia care or with an interest in dementia more generally, ranging from short, one day courses, through to higher degrees. The brief survey is part of a project looking to broaden dementia education and training at UWL beyond health and social care to include a greater role for other subjects, such as the visual and performing arts. We anticipate that the results of UWL's work will inform future developments in the Higher Education sector. For further information about the survey please contact either Toby Williamson or Dr Paul Swift.
To find out more and to complete the survey, click below.
We caught up with Sarah Ormston who is Health, Dementia and Wellbeing Manager at MacIntyre. Sarah provided us with more detail on the work MacIntyre carry out supporting children, young people and adults who have a learning disability and/or autism. She also introduced their exciting new accessible version of the NDAA's own Dementia Statements. Other details in the interview include MacIntyre's future plans and their involvement in our Dementia Seen and Heard campaign.
The NICE (National Institute for Health and Care Excellence) draft dementia (update) quality standard consultation period is open and closes on Tuesday 26 February 2019 at 5pm. We would like to invite members of the NDAA to comment to ensure that the perspectives of people living with dementia and carers are represented in the consultation.
You can view full details on how to take part in the consultation as well as full details of the dementia (update) quality standard by clicking below:
NDAA webinar on sexual intimacy and older people hosted by Dr Dawne Garrett from the Royal College of Nursing
Dr Dawne Garrett, Professional Lead - Older People and Dementia Care at the Royal College of Nursing will be leading a webinar on sexual intimacy and older people. The session will explore the issues of the ageing process on sexual activity, capacity to consent, sexually transmitted diseases and ethical conundrums. The webinar will use a case study approach and draw on the latest guidance and Dawne’s doctoral research.
Members of the NDAA should already have received an email with further details and how they can register. Priority for places for this event goes to members, if you are a non-member that would be interested in attending you can contact us by clicking below.
Dementia is the health crisis of our time, and there is no time to lose if we are to make progress for the thousands of people across the UK and their loved ones. That’s why the NDAA is supporting Alzheimer’s Research UK’s petition to ask government to put the equivalent of just 1% of the annual cost of dementia towards research. Please sign and share to ask government to increase investment in research and bring about life-changing treatments for dementia.
Click below to sign the petition.
Age UK have a selection of updated commitments. These include:
Commitment 1 relates to the Dementia Statement around Independence/Interdependence/Dependence which states:
We have the right to be recognised as who we are, to make choices about our lives including taking risks, and to contribute to society. Our diagnosis should not define us, nor should we be ashamed of it.
Commitment 1: Age UK provides advice to older people living with dementia or concerned about symptoms of dementia to make informed choices and provide information. We believe it is possible to live well with dementia and we work to enable the structures to support this.
They will do this by continuing to produce guidance for those living with dementia and their carers, with their input and guidance.
See this as well as other updated commitments from Age UK by clicking below.
Other NDAA news - click for details
Want to submit your own stories for the newsletter? We'd love to hear from you, click below to contact us.