Dementia Action Alliance January Newsletter

Thursday 24 January 2019

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For the January edition of the National Dementia Action Alliance newsletter we've got a reminder to reserve your place for our annual conference as places are going fast. There's also our response to the NHS Long Term Plan and details of a new innovation we've been involved in to support LGBT+ people affected by dementia. There are also updates from NDAA members Arts 4 Dementia, NHS England, The Lewy Body Society, Alzheimer's Society, Royal College of Nursing, Active Minds, The Utley Foundation and MacIntyre.

 

Last remaining places for the NDAA annual conference 2019

Annual Conference Image1The NDAA Annual Conference takes place on 6 February at the Royal College of Nursing in London and places are going fast. Full details on the agenda are available now including speakers from ADASS, the Local Government Association, The APPG on Dementia, MacIntyre, Housing & Care 21, HC-One, Dementia Adventure and Life Story Network. There's also further information on sections of the programme that will be presented by people living with dementia and carers, workshop sessions and a wine tasting and networking experience at the end of the day. To see the full agenda and book your place click below.

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NDAA co-produce booklet and poster with Alzheimer's Society for Bring Dementia Out

BDO booklet imageAs part of the Bring Dementia Out innovation, National Dementia Action Alliance are proud to have co-produced a booklet and poster with LGBT+ people affected by dementia, Alzheimer’s Society, and LGBT+ organisations (including Switchboard in Brighton and Hove, LGBT Foundation in Manchester, and the National LGBT Partnership). Bring Dementia Out is an innovation that aims to help LGBT+ people affected by dementia get better access to support and information in Brighton and Hove and Greater Manchester.

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5 Minutes with Veronica Franklin Gould from Arts 4 Dementia

 

Veronica Franklin GouldWe caught up with Veronica Franklin Gould from Arts 4 Dementia on the programmes that they run and the impact that arts can have for people living with dementia. Veronica also described a new project they are working on called 'ArtsPALs' which is linked to the recent policy of social prescribing launched by the Department of Health and Social Care by working with volunteers to provide people living with dementia with an arts-loving companion.

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How Active Minds are Working Towards the 2020 Dementia Challenge

Active MindsActive Minds design and provide award-winning activity products, specifically designed to improve the wellbeing and quality of life of those living with dementia as well as providing their carers an opportunity to connect with their loved ones. Here they describe how their work is aligned with the Dementia Challenge 2020. Click below for full details. 

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The NDAA responds to the NHS Long Term Plan

NHS Long Term PlanThe NHS Long Term Plan was published at the start of January and the NDAA provided a response to that. Our response considers what the plan means for people living with dementia and carers including how increased funding will be used, changes to community services, new strategies around prevention and the continued delays around the Social Care Green Paper. Click below to view the full response. 

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NHS England invite commissioners of dementia care to comment on support services as part of the PriDeM Programme funded by Alzheimer's Society


NHS ASCare after a diagnosis of dementia is often fragmented and a postcode lottery. University College London is keen to hear from NHS, local authority and third sector commissioners across England, regarding the dementia care services commissioned in their areas to support people at all stages of the dementia pathway post diagnosis. As part of the PriDem research programme, funded by the Alzheimer’s Society, a survey has been developed to:

  • Gather commissioner input on the services commissioned across England; and
  • Help assist with mapping services to establish a picture of the support available

If you have any questions about the survey please contact Dr Rachael Frost on rachael.frost@ucl.ac.uk or 0207 830 2881. Click below to take the survey. 

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Updated Action Plan: The Lewy Body Society


Lewy Body Society2

The Lewy Body Society have a selection of updated commitments. These include:

Commitment 1 relates to the Dementia Statement around Research which states:

We have the right to know about and decide if we want to be involved in research that looks at cause, cure and care for dementia and be supported to take part.

Commitment 1: To give people living with Lewy body dementia every opportunity to be involved in research

They will do this by promoting awareness of Join Dementia Research: Sending a leaflet with our information packs; promoting JDR on our website; promoting JDR in our presentations. Including people living with Lewy body dementia and their carers in our grant reviews.   

See this as well as other updated commitments from The Lewy Body Society by clicking below.

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Other NDAA news - click for details

MacIntyre share series of videos providing the perspectives of a Registered Manager in providing care for people with learning disabilities living with dementia 

The Utley Foundation have launched a new website which is a hub of information promoting the power of music for people living with dementia

The Alzheimer's Society have supported a new show to be aired on Channel 4 based around a restaurant staffed entirely by people living with dementia

In an interview with the Royal College of Nursing, Clinical Nurse Specialist Caroline Ashton-Gough talks about her experience as a Delirium Champion

Changes to the Mental Capacity Act (Amendment) bill criticised for giving care homes too much power

Want to submit your own stories for the newsletter? We'd love to hear from you, click below to contact us.

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