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2018 All-Party Parliamentary Group Inquiry – dementia and disability

Thursday 14 June 2018

The All-Party Parliamentary Group on Dementia is holding an inquiry into dementia and disability. Through this inquiry, the APPG is hoping to find out what people think about dementia as a disability, what barriers people affected by dementia face in society and what can be done to make sure people living with dementia are treated equally.

Despite the impairments caused by dementia being recognised as a disability under domestic and international law, people face significant challenges in realising their rights. One of the key reasons is that it is often seen as a ‘hidden’ or ‘invisible’ disability, as in some contexts the symptoms are less obvious.

As a result of this, the APPG is seeking further evidence on the following questions – you do not have to answer all of them.

  1. Please describe your views on dementia being identified as a disability.

  2. Do you feel that people with dementia are treated differently to people with other health conditions or disabilities? Please expand on your answer.

  3. How have people living with dementia been supported to live well and what else do people need in order to continue to live well?

  4. What do you think are the main challenges that people affected by dementia face in day-to-day life (for example using transport or in employment)?

  5. What support currently exists to address these challenges and what future action do you think needs to be taken to address these challenges?

Scope of the inquiry

This inquiry covers all forms of dementia and all ages. The APPG is also interested to hear from people in England, Wales and Northern Ireland. 

Structure of the inquiry

The APPG will be gathering evidence until Friday 20 July 2018.

They would particularly like to hear from:

  • People affected by dementia 
  • Third sector organisations including those representing carers and people with disabilities 
  • Healthcare professionals and professional bodies 
  • Healthcare and service providers

How to submit evidence

When you make a submission of evidence to the APPG, please ensure that:

  • Your submission is no more than 1,000 words
  • You state clearly who the submission is from, i.e. whether from yourself in a personal capacity or sent on behalf of an organisation 
  • You include a brief description of yourself/your organisation

Please submit your evidence either by email to APPGonDementia@alzheimers.org.uk or via the online survey.

Alternatively, you can make a submission of evidence by post to Alzheimer’s Society, 43-44 Crutched Friars, London, EC3N 2AE.

If you would prefer to submit your evidence in a different way, for example over the phone, please email APPGonDementia@alzheimers.org.uk.