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From Seldom Heard to Seen and Heard: campaign launch event

Wednesday 20 September 2017

shg event photoDementia Action Alliance launched its new campaign ‘From Seldom Heard to Seen and Heard’ on 19th September at the Royal College of Nursing (RCN). The day was chaired by Shelagh Robinson, a lady living with dementia and Nuzhat Ali from Public Health England.

People from seldom heard groups face barriers to accessing good health and social care, which at times fail to meet their needs. Challenges can include a lack of awareness and cultural understanding across health and social care settings. This problem has become more acute as public service budgets have been cut. Through our diverse membership the DAA is well placed to improve this situation by harnessing the resources and ideas of our members and of other organisations operating across health and social care. 

Delegates heard from Stephanie Aitken, Deputy Chief Nurse at the RCN who outlined the work of the RCN and how they are working with the DAA on this important campaign. Toby Williamson, formally of the Mental Health Foundation set the scene with a comprehensive overview of seldom heard groups and the issues that these groups may face

There was a heartfelt panel discussion from people affected by dementia: Mike Parish, Tom Hughes, Shahid Mohammed, Sarah Lancaster, Patrick Ettenes and Tracey Shorthouse, chaired by Rachael Litherland from Innovations in Dementia. The afternoon session began with feedback from the three roundtables that the DAA held in June on dementia within the LGBT+ community, dementia and Learning Disabilities, and dementia within prisons, which detailed the recommendations from each roundtable. This was followed by table discussions looking at these three groups as well as: South Asian community, Gypsies and Travellers, Irish community, African Caribbean, Learning Disabilities, LGBT+, prisons, social deprivation and Young Onset.

We asked all of our delegates to pledge to take action to support the campaign, and we urge all of our members to do the same and to spread the news to all of their contacts. You can add your pledge to the campaign here.

The recommendations from the roundtable events are here. This is an important campaign and we ask all of our members to back the campaign and take action.

Make your pledge


Read roundtable recommendations and briefings