What are cookies?

Our site uses cookies. A cookie is a small text marker stored on your computer that enables us to track the use of our website. We use cookies to help us understand what our users' interests and preferences are to ensure the website is as user friendly as possible.

This site only uses cookies in order to provide a service to visitors. No personal data is stored in cookies and cookies are not used in order to provide advertising. Cookies are used for the following purposes:

Learn more about cookies on aboutcookies.org

If you have any concerns about the processing of your personal data by the Dementia Action Alliance, please contact the Secretariat, c/o Alzheimer's Society, 43-44 Crutched Friars, London, EC3N 2AE.

Accept and continue

Alzheimer's Society Brighton and Hove

Alzheimer's Society is the UK's leading support, care and research charity for people with dementia, their families and carers. We provide information and support for those with any form of dementia and their carers. We advise and train professionals working in the field, fund research, run quality support and care services, and campaign for improved health and social care and greater public understanding of dementia. We work in partnership with others to ensure that support is always there for people with dementia and that people receive a timely diagnosis, that the condition is understood and that people with dementia have the same rights as other members of society. We will achieve this through funding scientific breakthroughs, strengthening communities by increasing understanding of the needs of people with dementia and the contribution of carers and striving to put an end to discrimination and stigma.

Updated:
4 June 2018
Location:
South East
Sectors:
Voluntary Sector
Local Alliances:
Brighton and Hove Dementia Action Alliance

1. Action Plan

1. The National Dementia Declaration lists seven outcomes that the DAA are seeking to achieve for people with dementia and their carers. How would you describe your organisation’s role in delivering better outcomes for people with dementia and their carers?

Alzheimer's Society is the UK's leading support, care and research charity for people with dementia, their families and carers. We provide information and support for those with any form of dementia and their carers. We advise and train professionals working in the field, fund research, run quality support and care services, and campaign for improved health and social care and greater public understanding of dementia. 

We work in partnership with others to ensure that support is always there for people with dementia and that people receive a timely diagnosis, that the condition is understood and that people with dementia have the same rights as other members of society. We will achieve this through funding scientific breakthroughs, strengthening communities by increasing understanding of the needs of people with dementia and the contribution of carers and striving to put an end to discrimination and stigma.

2. What are the challenges to delivering these outcomes from the perspective of your organisation?

Public awareness of dementia is rising but understanding about dementia is poor. There is limited public appreciation that it is possible to live well with dementia and to make big differences to quality of life for people with dementia and their carers. Poor understanding is something common among the general public as well as people working in health and social care services.

People with dementia are diagnosed too late and families often report not receiving the information and support they need to begin living well with dementia. People with dementia often face social isolation and poor outcomes.

There is a limited amount of funding going into dementia research compared to other major disease groups like cancer. 

In a difficult economic climate we need to clearly make the case for action on dementia to achieve better outcomes in a cost effective way.

Most importantly we need to work with people with dementia, their carers and families to understand what matters most to them in order to transform quality of life for all people living with dementia.

2. Actions

  • Improve understanding of dementia

    Action 1:     

    Title: Supporting people affected by dementia

     

    Description:    To continue to offer our services in Brighton and Hove.

    Information and support service

    Carer’s Information Programme

    Dementia adviser service to those newly diagnosed with dementia

    Live well dementia programme for those diagnosed with dementia

    Cognitive Stimulation therapy

    Peer Support groups for  those with dementia and for carers

    Singing for the Brain

    Status:
    Being implemented
  • Audit Staff HR policies

    To investigate with our nationwide HR team about whether our own policies cover staff who may be affected by dementia

    Status:
    Initial Scoping
  • Awareness Raising

     

    Description:      To continue to raise awareness of dementia in the City through our own services, events and to be an active member of the DAA in Brighton and hove

    Status:
    Being implemented