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young dementia herefordshire

We are a self-help voluntary group who meet regularly to help younger people diagnosed with early onset dementia. Our group comprises of people diagnosed with early onset dementia and their partners / friends who are also their carers.

15 May 2018
West Midlands
Charity, Community organisations, Voluntary
Local Alliances:
Herefordshire Dementia Action Alliance

1. Action Plan

1. The National Dementia Declaration lists seven outcomes that the DAA are seeking to achieve for people with dementia and their carers. How would you describe your organisation’s role in delivering better outcomes for people with dementia and their carers?

We endeavour to teach people that with early onset dementia, they and their carers are not alone and that help is available. Many organisations concentrate on delivering assistance for the older generation diagnosed, whereas we intend to help younger sufferers.

2. What are the challenges to delivering these outcomes from the perspective of your organisation?

Many people are still ignorant of the fact that dementia is not age defined, even certain organisations with the specific task of helping dementia sufferers and their carers are not doing enough to cater for the younger people.

2. Actions

  • Education

    We aim to educate people who are ignorant of the fact that dementia isn't something specific to the older generation, but can affect children, teenagers and younger adults. Many people still think that dementia is something you get when you are in your 70,sand 80,s and you end up sitting in an old people's home in a circle. We must show them that it isn't age defined and attempt to get more help for younger people.
    Being implemented