Alzheimer's Society Norfolk
Alzheimer's Society is the UK's leading support, care and research charity for people with dementia, their families and carers.
- 18 January 2018
- East of England
- Local Alliances:
- South Norfolk Dementia Action Alliance
1. Action Plan
1. The National Dementia Declaration lists seven outcomes that the DAA are seeking to achieve for people with dementia and their carers. How would you describe your organisation’s role in delivering better outcomes for people with dementia and their carers?
We provide information and support for those with any form of dementia and their carers. We advise and train professionals working in the field, fund research, run quality support and care services, and campaign for improved health and social care and greater public understanding of dementia.
We work in partnership with others to ensure that support is always there for people with dementia and that people receive a timely diagnosis, that the condition is understood and that people with dementia have the same rights as other members of society. We will achieve this through funding scientific breakthroughs, strengthening communities by increasing understanding of the needs of people with dementia and the contribution of carers and striving to put an end to discrimination and stigma.
2. What are the challenges to delivering these outcomes from the perspective of your organisation?
Dementia is higher on the public and political agenda than it has ever been. We have seen action across England to begin implementing the National Dementia Strategy. The task at hand now is to use that strong position and build on the momentum achieved by creating a broad church of individuals and organisations committed to action.
Public awareness of dementia is rising but understanding about dementia is poor. There is limited public appreciation that it is possible to live well with dementia and to make big differences to quality of life for people with dementia and their carers. Poor understanding is something common among the general public as well as people working in health and social care services.
People with dementia are diagnosed too late and families often report not receiving the information and support they need to begin living well with dementia. People with dementia often face social isolation and poor outcomes.
There is a limited amount of funding going into dementia research compared to other major disease groups like cancer.
In a difficult economic climate we need to clearly make the case for action on dementia to achieve better outcomes in a cost effective way.
Most importantly we need to work with people with dementia, their carers and families to understand what matters most to them in order to transform quality of life for all people living with dementia.
Raise awareness of the Dementia Action Alliance in the Community
1: All Alzheimer's Society South Norfolk stands will include DAA marketing material.
2: Our Dementia Support Workers will include DAA and DFC in talks with stakeholders.
Measure: Evidence from talks and stands.
Outcome: New members recruited as a direct result of awareness raising. DAA mentioned at external meetings involving discussions around dementia.
Contribute to the future direction of the Dementia Action Alliance
1: Contribute at meetings on terms of reference where appropriate
2: Contribute in forming the overall DAA action plan
Outcome: Clear direction to all members of purpose and actions of DAA.
To lead by example in actions from the Dementia Action Alliance
1: To ensure timely update of action plans
2: To ensure timely completion of actions as agreed at meetings
3: To ensure attendance at as many DAA meetings as practical, within capacity of Alzheimer’s Society staff members.
Measure: Minutes of meetings and website
Outcome: All DAA members improve action plan completion and attendance.
Improve staff awareness and input into the DAA
1: Dementia Friendly Communities Officer – East of England to be invited to Alzheimer’s Society team meetings with the theme of, 'How can you help the DAA/DFC?'
2: DAA and DFC update to be a standard agenda item at Alzheimer’s Society team meetings
Measure: Minutes from meetings.
Outcome: Staff report they feel the DAA is more integrated into their day to day work.
Contribute to Dementia Friends' Success
1: Encourage all staff to become Dementia Friends Champions - including from outside operations.
2: Staff to seek opportunities to recruit dementia friends.
Measure: Stats from DF coordinator.
Outcome: Increase in Dementia Friends Champions amongst AS staff.