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Carers Support West Sussex

Carers Support West Sussex was formed in 2013 following the merger of three Carer charities with a long history of supporting carers in the county. We've grown to a countywide service with more than 80 members of staff and over 70 volunteers helping to support over 19,000 carers. Our Carer Response Line is open six days a week to provide support and information. We run more than 60 support groups, specialising in support for carers of people with dementia, drug or alcohol issues, parent carers, young adult carers and many more. We offer Emotional Wellbeing support where carers can access free counselling, a Carer Call back service or attend courses on things like 'living with guilt' and 'relaxation techniques'. Our Hospital Teams are across the county where they can offer support to carers who may find themselves suddenly thrust into a caring role. We help Carers access a Wellbeing Fund and Equipment for Independence.

29 December 2020
South East
Local Alliances:
Adur Dementia Action Alliance , Bognor Dementia Action Alliance, Burgess Hill Dementia Action Alliance, Chichester Dementia Action Alliance, East Grinstead Dementia Action Alliance, Haywards Heath Dementia Action Alliance, Horsham District Dementia Action Alliance, Worthing Dementia Action Alliance, Arun District Dementia Action Alliance , Selsey Dementia Action Alliance, Crawley Dementia Alliance

1. Action Plan

1. The National Dementia Declaration lists seven outcomes that the DAA are seeking to achieve for people with dementia and their carers. How would you describe your organisation’s role in delivering better outcomes for people with dementia and their carers?

Carers Support West Sussex (CSWS) provides a range of universal services to family and friend carers across West Sussex to support them in their role, caring for someone living with a dementia.  These services include emotional support such as counselling, carer support groups, information and advice helpline, statutory carer assessments and Carer Health & Wellbeing Fund.

In addition CSWS has a team of specialist dementia carer wellbeing support workers (CWSWs) who provide 1-1 support, dementia carer support groups, workshop and awareness sessions for carers.  They also work in partnership with other West Sussex organisations to promote awareness in local communities and increase reach to all carers.

CSWS has been committed over the past 2 years to ensuring that all staff receive input in dementia awareness.  This has mostly been achieved through providing Dementia Friend Sessions for all new staff as part of their induction.  Online modules are available to staff if required.

A large proportion of our staff are carers, many of whom care for someone with a dementia.  Alzheimer's Society information 'packs' have been produced and are available in all our telephone response line offices as well as in each of our hospital team bases.

2. What are the challenges to delivering these outcomes from the perspective of your organisation?

Reaching carers in rural areas - offer and provide a range of CSWS services.  Providing a service that is meaningful and accessible to carers who caring for someone in the later stages of dementia.

Member website


2. Actions

  • Dementia Friendly Organisation

    All new staff will attend a session that enables them to become a Dementia Friend. CSWS will ensure that a number of staff (currently 5) are Dementia Champions.


    2018 - First Quarter Update

    17/18 Update:

    All new staff and volunteers have attended a session provided by a Dementia Champion and have had the opportunity to become a Dementia Friend.

  • New post to reach dementia carers in rural areas.

    Areas of rural West Sussex will be scoped and services introduced to ensure CSWS provide a county-wide service to our dementia carers.


    2018 - First Quarter Update

    17/18 update:

    New post now in place to do a needs analysis and subsequently provide dementia carer service in the Chichester North Rural area.