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HERE/ Guideposts Trust

National information website and 8 am - 8 pm Monday to Friday helpline offering impartial information and support to anybody affected by dementia and other long terms conditions associated with age. Membership is available for £12 per year including a personal information prescription to meet your needs in your area of the UK.

5 April 2018
Communication, Care, Voluntary Sector, Community organisations, Finance, Health, Social Care

1. Action Plan

1. The National Dementia Declaration lists seven outcomes that the DAA are seeking to achieve for people with dementia and their carers. How would you describe your organisation’s role in delivering better outcomes for people with dementia and their carers?


Guideposts provides a National website www.iamhere.uk.com. We provide up to date local, impartial information about support, news and events, services and organisations within a specific area. The sites are widely used by professionals as well as the community at large.

National Helpline:

We are responding to feedback from several years of evaluation and user feedback, which highlights that a significant amount of people affected by dementia and other long term conditions need support and we work with them as a whole individual not just their dementia diagnosis but bringing in other conditions that people also want to know about. We know not everyone has access to the internet so our helpline offers the same diversity of information and support ,we speak to people as individuals about their information and emotional needs.

National, Local Training and Networking:

We are pro-active in networking, joint working, sharing and accessing opportunities to disseminate information and support in our local communities and nationally. Working in partnership with local organisations to deliver dementia awareness sessions to deliver better outcomes for people living with dementia.

2. What are the challenges to delivering these outcomes from the perspective of your organisation?

Keeping up to date: Maintaining up to date information is always a challenge, we have spent several months expanding and developing our old dementia web service to a bigger more accessible and useful information for not only dementia but other older peoples long term conditions. We believe that a personal and individual approach to every person is fundamental to the service we provide. With increased awareness and diagnosis we will be supporting more people to access timely, individual information and support. 

Internet access: A large proportion of people affected by dementia may not have internet access; this is either by choice, finances or living in a rural area where there is limited internet available. Geographical Coverage: We believe that local dementia specific information and the support needs of local communities are at the core of Guideposts Trust vision. We continue to face the challenge of developing quality up to date information local web sites and skilled information specialists across the whole of England (and the UK). Our information booklets and information sheets are now part of the Information Standards and we are working with them to get our Information Prescriptions intergrated too, although the challenge of that particualar dynamic is constantly changing, we endevour to follow the high standards for all our products.

Funding is always a challenge and we are always seeking new and innovative ways to fund new projects and existing work. Working in partnership with other organisations is something we strive to do, there is no point reinventing the wheel when a whole bus could be achieved a actually make a difference.

Member website

www.iamhere. uk.com

2. Actions

  • Expanding Service Delivery

    Expanding Service Delivery:· Actively recruiting and developing an on-going training and support programme for Dementia Information Services Coordinators, this has been succesful and due to funding from a project we have been able to secure 3 new members of staff who are responsible for participating in local community and strategic activities. They will disseminate local dementia specific information across the websites, and support individual’s needs over the phone and face to face as required.· We have a planned approach to expand our services over the next 18 months with piolt projects starting later in 2015.


    2015 - Third Quarter Update

    We continue to work in partnership and grow the Information Prescription service by expanding areas that are covered, in  the mean time an England Information Prescription has been developed and is proving very popular, as are our general After Diagnosis Dementia Guides.

  • Community Support

    Community Support: 

    · We aim to develop our community dementia information and support infrastructure which will also incorporate our Help at Home and Music Therapy services.· There is an inextricable link to depression and behaviour in Individual’s with long term conditions including dementia (Tylee 2012). We aim to include supporting people to participate in meaningful and purposeful activities within Guideposts information and support services. This will include responding to national initiatives including Life Story work and the impact of understanding an individual’s history, values, beliefs and behaviours in the provision of person centered quality care and support.· Developing Community Support with IT for people to have the opportunity to acquire skills and information within their local environment e.g. Public libraries, GP practices, information events.· We are currently piloting a post-diagnosis hard copy booklet After Diagnosis A Handy Guide containing all the general and local information on our Bath & North East Somerset website. We aim to respond to the pilot evaluation and introduce across all localities.· Guideposts will continue to distribute Hints & Tips for Carers, Family and Friends of a person who has Dementia – this is reviewed annually subject to feedback from evaluation forms.· We aim to participate and develop in partnership with other organisations initiatives promoting community awareness, understanding and support for people with dementia and their carers. These include Rural Community Learning Groups and how communities may respond to supporting people in their locality including safety projects such as Neighbourhood Return.· We will continue to develop joint working with national and local dementia services to provide the best possible quality and timely service for all people affected by dementia.· We aim to establish support groups for people both at the Mild Cognitive impairment diagnosis and post dementia diagnosis based on a pilot model currently in Oxford City.· We are an active participant in establishing a dementia empowerment group within Oxfordshire.

    Being implemented

    2015 - Third Quarter Update

    Our After Diagnosis Handy guide has been very successful in Bath & North East Somerset, Oxfordshrire and the general version, with over 25,000 being downloaded alone from our websites.

    with rebranding coming up later in the year we are looking at our booklets and updating them, along continuing to put them through the Information Standards process.

    2014 - Third Quarter Update

    Services are going well, supporting people in the community, and providing over 17,000 information documents from our websites and helpline.

  • Research & Development

    Research & Development: ·  We aim to consult with people affected by dementia to constantly review and individually adapt the services we provide based on people’s needs, wishes, cultural values and beliefs.

    Being implemented

    2015 - Third Quarter Update

    Our empowerment group members contunie to be active in enabliing the person living with dementia to have a voice that is heard, we listen actively and make changes to our service and products accordingly, we gain feedback and evaluate all our products and services regularly, the Information Prescription is currently in the process of being updated to a new more user freindly colour format, and our website Information Prescription page is now much easy to search to find your local information.

    2014 - Third Quarter Update

    This has been ongoing, we are planning changes to our services and have been running focus groups about our website, content and information.

  • Local DAA

    Guideposts and Dementia Web, are actively supporting the countywide Oxfordshire DAA and local area DAAs, by deseminating information to the network and maintaining the actions of the group.


    2015 - Third Quarter Update

    A partnership has formed from the ODAA and we are actively working together on a local bid, which we hope will be successful.