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Alzheimer's Society

Alzheimer’s Society is the UK’s leading dementia support and research charity. We provide services, fund research and advise health and social care professionals. Working nationally and locally, we campaign for improved care and greater awareness and understanding of dementia.

Updated:
11 June 2018
Location:
East Midlands
Sectors:
Charity, Research Sector, Voluntary Sector
Local Alliances:
Northamptonshire Dementia Action Alliance , Northampton Dementia Action Alliance

1. Action Plan

1. The National Dementia Declaration lists seven outcomes that the DAA are seeking to achieve for people with dementia and their carers. How would you describe your organisation’s role in delivering better outcomes for people with dementia and their carers?

The National Dementia Declaration lists seven outcomes that the DAA are seeking to achieve for people with dementia and their carers. How would you describe your organisation’s role in delivering better outcomes for people with dementia and their carers?

Alzheimer's Society is the UK's leading support, care and research charity for people with dementia, their families and carers.

We provide information and support for those with any form of dementia and their carers. We advise and train professionals working in the field, fund research, run quality support and care services, and campaign for improved health and social care and greater public understanding of dementia.

We work in partnership with others to ensure that support is always there for people with dementia and that people receive a timely diagnosis, that the condition is understood and that people with dementia have the same rights as other members of society.

We will achieve this through funding scientific breakthroughs, strengthening communities by increasing understanding of the needs of people with dementia and the contribution of carers and striving to put an end to discrimination and stigma.

2. What are the challenges to delivering these outcomes from the perspective of your organisation?

Dementia is higher on the public and political agenda than it has ever been. We have seen action acrossEnglandto begin implementing the National Dementia Strategy. The task at hand now is to use that strong position and build on the momentum achieved by creating a broad church of individuals and organisations committed to action.

Public awareness of dementia is rising but understanding about dementia is poor. There is limited public appreciation that it is possible to live well with dementia and to make big differences to quality of life for people with dementia and their carers. Poor understanding is something common among the general public as well as people working in health and social care services.

People with dementia are diagnosed too late and families often report not receiving the information and support they need to begin living well with dementia. People with dementia often face social isolation and poor outcomes.

There is a limited amount of funding going into dementia research compared to other major disease groups like cancer.

In a difficult economic climate we need to clearly make the case for action on dementia to achieve better outcomes in a cost effective way.

Most importantly we need to work with people with dementia, their carers and families to understand what matters most to them in order to transform quality of life for all people living with dementia.

Member website

www.alzhimers.org.uk

2. Actions

  • Raise awareness of the DAA in the community

    All Alzheimer’s Society stands to include Dementia Action Alliance marketing material.  Information Workers to include Dementia Action Alliance and Dementia Friendly Communities in discussions with stakeholders.

    Status:
    Being implemented

    2016 - Fourth Quarter Update

    Meeting with new Northampton Dementia Action Alliance to bring together work that organisations are doing throughout Northampton, collating that work and demonstrating it to support awareness of Dementia.  Mail out to all GP surgeries suggesting DAA membership, offering DF session and DF signage suggestionsEngaging with stakeholders includes:

     CoP meetings (Communities of practice Northamptonshire) who enagage with a range of stakeholders

    Attending Kettering Futures Partnership meetings led by Kettering Borough Council

    Increasing new DAA potential with stakeholders in Corby.Members of Corby & Rushden Amateur Association now received dementia training.  DF session to staff and volunteer at Corby Core Theatre to support their dementia friendly screenings now held regularly. 

     

    2016 - Third Quarter Update

    Display boards updated to include DAA membership and Information workers now always ensure display of DAA leaflets.Working with Northampton Borough Council to become a DF town.

  • Improve staff awareness and input into the Dementia Action Alliance

    Visit by Regional Lead to attend a team meeting with the theme of ‘How can you help the DAA.  DAA DFC update to be a standard agenda item at team meetingsInformation Worker to attend DAA meetings

    Status:
    Being implemented

    2016 - Fourth Quarter Update

    Meeting between Services Manager and Regional Lead 18/1/17, date to attend team meeting to be agreed.

    2016 - Third Quarter Update

    Visit by Regional Lead to attend a team meeting has been requested, date still tbc

    Brief explanation of difference between a DAA and a DFC given at Team Meeting by Information Workers and update provided from last DAA meetingInformation Worker for the South of Northants has attended DAA meetings to date

  • Contribute to Dementia Friends success

    Support all staff and volunteers wishing to become Dementia Friends ChampionsStaff to recruit 200 new Dementia Friends

    Status:
    Being implemented

    2016 - Fourth Quarter Update

    Made 160 Dementia Friends so far this year, includes local theatreDF sessions to volunteers at our Day Support Centre2 staff recently completed DF Champion trainingMail out to all GPs in the county for receptionists, telephonists, PPG's to be come DFs

    2016 - Third Quarter Update

    Mail out to theatres, museums etc of the DF Arts venue booklet and offering DF session

  • To lead by example in actions from DAA

    To ensure timely update of action plan

    To ensure timely completion of actions as agreed at meetings

    To ensure attendance at all DAA meetings

    Status:
    Being implemented

    2016 - Fourth Quarter Update

    Information Worker for South attending DAA meetingsInformation Worker for North completed 4th Quarter Action plan update

    2016 - Third Quarter Update

    Information Worker for South attending DAA meetingsInformation Worker for North completed 3rd Quarter Action plan update

  • Contribute to the future direction of the DAA

    Contribute at meetings on terms of reference.

    Contribute to forming the overall DAA action plan

    Status:
    Being implemented

    2016 - Fourth Quarter Update

    Helped lead and discuss questions with those that attended DAA Focus group meeting

    2016 - Third Quarter Update

    Recruited 2 volunteer family members, who support a person living with dementia, to attend DAA Focus group to help choose DAA Northamptonshire aims for the next year