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Rotherham’s Friends of Young Onset Dementia

May I introduce Rotherham’s Friends of Young Onset Dementia. We are a self-help group of carers, raising funds to build a library of equipment that can be loaned out to people and families who are coping with a diagnosis of dementia at a young age. The people we care for and support, in order to facilitate cognitive stimulation and social inclusion, are under the formal NHS care of Rotherham's Young Onset Dementia Service. We work closely with the service to ensure needs are identified and funds are appropriated in a timely manner. The people who are assisted by the group are very diverse and totals over seventy, with each person's needs being unique. We support people who are newly diagnosed with the illness as well as people who are in the early, intermediate and late stages of the illness. Many people in the early stages suffer short term memory deficit and cognitive deficits involving multiple functions as the illness progresses. The disease progresses gradually in some people yet acutely rapidly in others, with behaviour disorders (wandering, agitation, persecutory ideation) common in the later stages. The equipment required by the group ranges from puzzles, games and activities to aid cognitive stimulation, to assistive technology to help with orientation in relation to day, dote and time, as well as a plethora of other aids pertinent to the illness. It is of intrinsic importance that we continue to acquire funds via an ongoing programme of events which will make such a difference to the lives of these precious people and their carers. As well as ongoing fund raising for the equipment library, we are now embarking on fundraising for our own mini bus with a wheel chair lift which will help to nurture social inclusion and to minimise social isolation

12 May 2016
Local Alliances:
Rotherham Dementia Action Alliance

1. Action Plan

1. The National Dementia Declaration lists seven outcomes that the DAA are seeking to achieve for people with dementia and their carers. How would you describe your organisation’s role in delivering better outcomes for people with dementia and their carers?

The support work we do helps all the people would attend NHS care of Rotherham's Young Onset Dementia Service in addition to this we fund raise and create other social settings for people with dementia and their carers to attend and help play an active part in.

The funds raise money to further enhance the social experiences of the people who attend the group.

We have a team of volunteers who provide food facilities at the group and help to create a social setting.

2. What are the challenges to delivering these outcomes from the perspective of your organisation?

Our biggest challenge is to continue fund raising and gaining enough money and support to continue what we believe to be very valuable work               

2. Actions

  • Support Rotherham Dementia services

    We will continue to support the NHS care of Rotherham's Young Onset Dementia Service.

    Finding ways of further enhances the services, providing more facilities and equipment.

    We aim to raise funds to purchase a mini bus to help transport people to and from the group to enable everyone to attend despite possible practical transportation difficulties.


    Being implemented
  • Joint working with RDAA

    We will work will RDAA to provide a connection to the younger people with dementia in Rotherham and give true meaning and connection to people with dementia and their cares in partnership with NHS .

  • Promotion of RDAA and Rotherham Friends of Young Onset Dementia

    We will help promote RDAA and raise people’s awareness about the work the Alliance does – encouraging people with dementia and their carers to liaise with RDAA and ask for areas to be worked on an organisations to be worked with – to celebrated good practice and to work toward better dementia Friendly practice.

    The group will use the symbols /logos raising awareness of RDAA and the Rotherham Working towards being dementia friendly were ever possible.

    RDAA will endeavour to support the group assisting circulation of information about the fund raising events held throughout the year and increasing public knowledge about the group and the work we do.