England Centre for Practice Development
We are a national centre for health related research and development that improves practice and supports community groups and organisations to be person centred and enable people to flourish. We have a real interest in enabling people to live well with chronic health conditions, dementia and at the end of life in different settings. , Examples of our work in relation to dementia include: 1. Collaboration with local artists to creatively share the experiences of caring for people with dementia. 2. Regional seminars and workshops sharing best practice and innovations that help people with dementia and their carers. 3. Formal research in acute hospitals, communities and residential homes around creating positive caring environments for people living with dementia. 4. Learning and development programmes designed from scratch to meet the needs of different groups of people. 5. Developing, evaluating and promoting innovations in dementia care. 6. Developing postgraduate research opportunities for people working in the world of dementia care. 7. Providing support to the Dementia & Spirituality Interest Group (DemSig). We also provide support to health organisations and research communities to take forward initiatives around developing the workforce. You can contact us in the following ways: Twitter @ ECPD3 Facebook www.facebook.com/groups/ecpd1
- 9 July 2016
- South East
- Arts, Care, Charity, Children Young People and Students, Clinical Commissioning Group, Education Sector, Emergency Services Sector, Health, Hospitals and Hospital Trusts, Local Authorities, Local DAA Members, Medical, Research Sector, Social Care, Voluntary Sector
- Local Alliances:
- Kent Dementia Action Alliance
1. Action Plan
1. The National Dementia Declaration lists seven outcomes that the DAA are seeking to achieve for people with dementia and their carers. How would you describe your organisation’s role in delivering better outcomes for people with dementia and their carers?
The England Centre for Practice Development undertakes research, practice development and innovation in partnership with patients, carers, families, health professionals and services in order to deliver services and care that is person centered, safe, effective, evidence based and designed around the needs of the individual enabling the person to live well and independently with dementia.
This includes research that aims to improve the quality of care provided for people in hospitals, community services and at home so that they have the support that helps them to live their lives in a supportive environment that values and respects their personhood, quality of life and treats everyone with dignity and respect.
We achieve this regionally through our work with local NHS Trusts (acute and community services), care and nursing homes, charities and hospices as well as nationally through NIHR funded research projects, and with government departments, agencies and professional bodies aiming to transform the knowledge and skills of our current and future workforces to enable the right support mechanisms and programmes of learning to be put in place to transform the quality of lives impacted by dementia. It is very important to us to be involved in developing dementia friendly communities and services that are inclusive and that promote the sharing of best practice.
Internationally we achieve this through our international dementia networks with scholars, academics, researchers and communities through the International Community of Practice for End of Life Care with colleagues in Australasia, Japan, USA, Europe and the four countries of the UK.
2. What are the challenges to delivering these outcomes from the perspective of your organisation?
Challenges centre on:
1. Lack of a coordinated approach to health and welfare from a policy perspective in this country which leads to siloing and fragmentation of services and support
2. Increasing competitiveness to attract research funding
3. Lack of a clear focus on embedding a national core curriculum
4. Varied competency frameworks for health professionals
5. Lack of a national steer on safe staffing levels to support people to live well with dementia in their own homes
6. Lack of significant progress on the research priorities for supporting the frail elderly living with dementia in our local communities
7. Need to upskill the domicillary workforce in vigilance to detect health issues early on to avoid deterioration and inappropriate admission to hospital
8. Lack of national advanced care directive and advanced care planning for older people to enable them to choose and plan where they want to die
9. Still a lack of awareness about younger onset dementia and keeping people working and as fit and active as possible within the workforce
Improve the quality of person centered care experiences for people admitted to acute hospitals
Undertake research to evaluate the impact of people's experiences of person centered safe and effective care designed around their needs when admitted to hospital
Support hospital settings to create dementia friendly spaces that support the needs of people living with dementia e.g. gardens, reminiscence spaces, signage, dementia friendly facilities
Support local hospitals to raise funds to develop dementia friendly spaces that are innovative and developed in partnership with local communities to meet their needs
- Being implemented
Prepare the future workforce to develop the knowledge and skills required to provide person centered care
Develop a curriculum that promotes learning about the needs of people and communities for the future to upskill the workforce to provide appropriate care and support anytime, anyplace for anyperson
Create learning experiences that focus on understanding the needs of the expert patient and carer and designing services based on their needs and "what matters to them" rather than "what is the matter with you?"
Work with the University and Faculty to raise awareness of the impact of dementia on local communities and create a Dementia Friendly Faculty
- Being implemented
Undertake research and innovation to promote implementation of advanced care planning
Work with local hospices, charities and care providers (nursing and care homes, hospitals, community hospitals and services, third sector and voluntary services) to develop improvements in advanced care planning methods and procedures
Work with range of providers to develop navigator roles for end of life care to anticipate peoples' needs and choices around death and dying
Develop a body of work around crafting creative conversations around death and dying across the life span to promote intergenerational understanding
Work with advocacy services to better understand the impact of choice in death and dying and getting it right for individuals so that they can have a peaceful and dignified death in their place of choice. Learn from complaints where this was not the case to improve care, choice and support
Implement and evaluate online learning resources for advanced care planning across the lifespan
- Being implemented
Offer support and resources to communities and health professionals through International Community of Practice for End of Life Care
Launch international community of practice for end of life care to undertake collaborative research and innovation with dementia friendly communities and services at the core of work.
- Being implemented