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Alzheimer's Society West Sussex

Alzheimer's Society is the UK's leading support, care and research charity for people affected by dementia, this includes their families and carers. We provide information and support for those with any form of dementia, through our publications, National Helpline, website and more than 2000 local services We campaign for better quality of life for people with dementia and a greater understanding of dementia. We also fund an innovative programme of medical and social research into the cause, cure and prevention of people and the care people receive.

30 December 2020
South East
Care, Charity, Voluntary Sector
Local Alliances:
Crawley Dementia Alliance, Horsham District Dementia Action Alliance, Haywards Heath Dementia Action Alliance, Burgess Hill Dementia Action Alliance, East Grinstead Dementia Action Alliance, Adur Dementia Action Alliance , Arun District Dementia Action Alliance , Bognor Dementia Action Alliance, Chichester Dementia Action Alliance, Selsey Dementia Action Alliance, Worthing Dementia Action Alliance

1. Action Plan

1. The National Dementia Declaration lists seven outcomes that the DAA are seeking to achieve for people with dementia and their carers. How would you describe your organisation’s role in delivering better outcomes for people with dementia and their carers?

Alzheimer's Society is the UK's leading support, care and research charity for people with dementia, their families and carers. We provide information and support for those with any form of dementia and their carers. We advise and train professionals working in the field, fund research, run quality support and care services, and campaign for improved health and social care and greater public understanding of dementia.

We work in partnership with others to ensure that support is always there for people with dementia and that people receive a timely diagnosis, that the condition is understood and that people with dementia have the same rights as other members of society. We will achieve this through funding scientific breakthroughs, strengthening communities by increasing understanding of the needs of people with dementia and the contribution of carers and striving to put an end to discrimination and stigma.

2. What are the challenges to delivering these outcomes from the perspective of your organisation?

Dementia is higher on the public and political agenda than it has ever been. We have seen action across England to begin implementing the National Dementia Strategy. The task at hand now is to use that strong position and build on the momentum achieved by creating a broad church of individuals and organisations committed to action.

Public awareness of dementia is rising but understanding about dementia is poor. There is limited public appreciation that it is possible to live well with dementia and to make big differences to quality of life for people with dementia and their carers. Poor understanding is something common among the general public as well as people working in health and social care services.

People with dementia are diagnosed too late and families often report not receiving the information and support they need to begin living well with dementia. People with dementia often face social isolation and poor outcomes.

There is a limited amount of funding going into dementia research compared to other major disease groups like cancer.

In a difficult economic climate we need to clearly make the case for action on dementia to achieve better outcomes in a cost effective way.

Most importantly we need to work with people with dementia, their carers and families to understand what matters most to them in order to transform quality of life for all people living with dementia

Member website


2. Actions

  • Service User Involvement

    We will ensure that people affected by dementia including carers are consulted with, to ensure our services cotinuously meet their diverse and changing needs.

  • Raising awareness of dementia

    We are committed to raising awareness and a better understanding of dementia.  Providing up to date information through publications, events, talks/presentations and encouraging people in the community to become dementia freinds and dementia freinds champions.

  • Training and Development for staff and volunteers

    We will ensure our staff and volunteers have access to appropiate education, training and support for their role.  This will enable them to support people accessing services in an appropiate and professional manner.

    Being implemented