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The Essex Carers Network are an independent organisation in Essex made up of people who are caring for a family member with a learning disability and those who support them. We want people with a learning disability to have full and meaningful lives and we know that families need good information to help make this happen. As a network we aim to keep our members up to date with what is happening locally, regionally and nationally. We listen to what our members say and make sure that those views are heard. We aim to work as a key partner with statutory and third sector organisations to improve the lives of people with a learning disability and their families in Essex.

19 February 2016
East of England
Voluntary Sector
Local Alliances:
Pan Essex Dementia Action Alliance

1. Action Plan

1. The National Dementia Declaration lists seven outcomes that the DAA are seeking to achieve for people with dementia and their carers. How would you describe your organisation’s role in delivering better outcomes for people with dementia and their carers?

As a network of families caring for a family member with a learning disability, we see our role as making sure our families get good information about dementia in particular dementia in people with a learning disability. We will also work with our local authority and CCGs to make sure that when looking at the dementia pathway they consider the needs of people with a learning disability who have dementia and their families who support them.

2. What are the challenges to delivering these outcomes from the perspective of your organisation?

One of the challenges is getting good user friendly information for our families about dementia in people with a learning disability.

2. Actions