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Dementia Sense CIC

Dementia Sense is an innovative learning and coaching Social Enterprise born in 2013. We work alongside family carers who influence the design of our learning programmes for care and support staff in the Health and Social Care Services, and family members in the community. Family members provide us with an invaluable perspective of what is needed from people delivering care to their loved ones. The Living Well, Our Plan, encourages people with dementia and their families to direct and manage their own support, care and wellbeing. This sessions are delivered 1-2-1 with family carers, or together in peer support workshops. We work collaboratively with other creative enterprises to offer enriched experiences for people living with dementia. Our learning programmes are supportive, creative and fun.

Updated:
15 September 2016
Location:
West Midlands
Sectors:
Arts, Care, Health, Hospitals and Hospital Trusts, Local Authorities
Local Alliances:
Shropshire, Telford & Wrekin Dementia Action Alliance

1. Action Plan

1. The National Dementia Declaration lists seven outcomes that the DAA are seeking to achieve for people with dementia and their carers. How would you describe your organisation’s role in delivering better outcomes for people with dementia and their carers?

We follow a co-production model. Family Carers work as paid associates on all our service developments and delivery. This keeps us at the ‘coal face.’ They shape our coaching and creative services to fit the responsibilities and complex care demands of others and know what local resources and support are available. Co-production means that all our services have a direct impact on the seven outcomes of people with dementia and their families. 1. We offer workshops to support the ‘Time for Me’ Telford & Wrekin Councils’ Carers’ Strategy e.g pottery course for carers. 2. We are committed to the Shropshire and also the Telford & Wrekin Dementia Action Alliances. 3. All Dementia Sense Associates are, or will be Dementia Champions. 4. We collaborate on development and training programmes with 360 Forward as well as Dementia Pathfinders CIC across the UK. Together we can expand our reach, share expertise, and disseminate best practice. 5. UnLtd is the leading provider of support to social entrepreneurs in the UK. We partnered with UnLtd for business support and were granted the Millennium Award for a business start up.

2. What are the challenges to delivering these outcomes from the perspective of your organisation?

1. Identifying the local strategic Health and Social Care networks and being invited and recognised as a serious dementia care provider has varied greatly across regions. 2. Old habits and expectation die hard. The expectation that care services are free to service user restricts the uptake of professional innovative services that struggle to complete with statutory and large third sector services. 3. As a niche Social Enterprise we lack support skills in administration, marketing and PR. Along with time and budget restraints this make it difficult to reach families and service-users with personal budgets who are willing and able to buy care.

Member website

www.dementiasense.org

2. Actions

  • The Launch of the ‘Living Well, Our Plan’ The creation of a family driven* personal lifestyle plan (*people living with dementia , carers and other family members)

    We work either 1-2-1 with a family or within carers peer support workshops. We deliver a six session coaching programme for family carers to discover, take control and drive care forward in the form of a personalised lifestyle plan completed with the person experiencing dementia.

    Living Well, Our Plan evolves and moves with the individual. It highlights the care, support, social and activity choices, personal decisions, the risks, and people needed to live well in the environment of their choice.

    Status:
    Delivery

    2016 - Third Quarter Update

    Still going strong.

    2015 - First Quarter Update

    Two of the Living Well, Our Plan programmes have been delivered with great feedback. Read what participants have said about us

    'I rate this course extremely highly. I have learnt a huge about from Julia and Marion. I am now pursuing formal education in dementia to marry with my carer experiences to help other carers who were in my situation.'

    'It was useful bringing my own experiences to the group and hearing other carers experiences. I learnt how to really listen to my partner and understand her actions and phases.’

    ‘The Living Well, Our Plan really did give me back control on the care and support that my mother was having. I felt I can now ask the right questions of professionals and know what personalised care is for mum.’

  • Come Potter About, Creative workshops for family carers and people with dementia

    This is a creative programme with a potter as part of the ‘Time for Me’ Telford & Wrekin Carers’ Strategy. At a later date the programme will be open to people experiencing dementia.

    Status:
    Delivered

    2016 - First Quarter Update

    Delivered with great success. Carers enjoyed this creative option with Telford & Wrekin Council  'Time for Me' commissioning framework. Although Dementia Sense CIC was no longer able to offer pottery, we passed it over to Creative Development Team, Telford & Wrekin Council.

  • Living Well, Our Plan for Family Carers: Training support workers and professionals to deliver

    Designed for memory clinic staff and community support workers to help develop the skills to support people living with dementia and their families soon after diagnosis. The facilitation skills of these staff lay the foundation for, and follow-up support required for the Living Well, Our Plan.

    Status:
    Being implemented

    2016 - First Quarter Update

    To be completed