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Dementia Support South Lincs

We cover the Bourne, Stamford and Market Deeping areas of South Lincolnshire and aim to support and improve the quality of life of people living with dementia and their carers. We campaign for a better understanding of dementia and a reduction in the stigma attached to it. We work with local councillors, our MPs and groups such as the Lincolnshire Carers Partnership who are in a position to help instigate change, and have built a constructive relationship with the local press and media and a national magazine to help us raise awareness of the impact of dementia.

Updated:
30 January 2018
Location:
East Midlands
Sectors:
Voluntary Sector
Local Alliances:
South Lincolnshire Dementia Action Alliance

1. Action Plan

1. The National Dementia Declaration lists a number of outcomes that we are seeking to achieve for people with dementia and their carers. How would you describe your organisation’s role in delivering better outcomes for people with dementia and their carers?

We cover the Bourne, Stamford and Market Deeping areas of South Lincolnshire and aim to support and improve the quality of life of people living with dementia and their carers.

We campaign for a better understanding of dementia and a reduction in the stigma attached to it. We work with local councillors, our MPs and groups such as the Lincolnshire Carers Partnership who are in a position to help instigate change, and have built a constructive relationship with the local press and media and a national magazine to help us raise awareness of the impact of dementia.

We have five separate support groups who meet monthly to share their experiences of living with dementia and memory loss, listen to speakers on relevant topics or take part in an activity. Group and one to one support, advice, and information is offered by our memory health care worker, who currently supports approximately 150 families affected by dementia.

We arrange regular social activities for all our group members, such as pub lunches, day trips, visits to concerts, Tai Chi, line dancing, singing together and an annual ball.

We work in partnership with the Evergreen Care Trust, Stamford.

2. What are the challenges to delivering these outcomes from the perspective of your organisation?

Demand for our services is increasing as word spreads about what we do. New referrals are being received all the time (23 in the first four months of 2012), and with the numbers of people diagnosed with dementia expected to rise we know demand will increase still further. The services we are able to offer are limited by the resources available to us, i.e. one professional worker, albeit supported by willing volunteers, but most volunteers are also carers, so their support has to fit around their principal role.   We are able to give limited help to groups in neighbouring areas but would like to do more in order to meet demand.

Funding is an issue. We have many generous friends who support us, and arrange our own fund-raising activities, which have been successful, and we have received grants from several local sources, but we need a sustainable financial plan in order to ensure a secure future.

Lincolnshire is a large county and communities are spread out. Even in the comparatively small area we cover our memory health care worker covered more than 5,000 miles last year to make personal visits and support the group meetings. Transport services are not good which makes it difficult to get group members to events. Solutions are often expensive if we have to hire mini- buses etc to get to events.

 

2. Actions

  • Continue to give appropriate support to our members following the current formulae which seem to work for us

    Continue to support our members.

    Status:
    Implementation

    2014 - First Quarter Update

    Continuing to implement this action

    2013 - Fourth Quarter update

    In progress

    2013 - Third Quarter update

    In progress

    2013 - Second Quarter update

    In progress

  • Extend our boundaries to a wider area of South Lincolnshire

    Extend our boundaries to a wider area of South Lincolnshire. We would like to build on the limited support we are able to give currently

    Status:
    Implementation

    2014 - First Quarter Update

    We are currently in discussion with a group in a neighbouring town regarding collaborative working 

    2013 - Fourth Quarter update

    In progress

    2013 - Third Quarter update

    We are in touch with community transport providers regarding links between Bourne and Spalding.

    2013 - Second Quarter update

    New member

  • Share our model with other parts of the county

    Share our model with other parts of the county. Already our memory health care worker has met with groups in other parts of Lincolnshire to share our formula and experiences.

    Status:
    Delivery

    2014 - First quarter update

    Continuing to attend networking events both within the county and outside

    2013 - Fourth Quarter update

    In progress

    2013 - Third Quarter update

    Have met with representatives of Mental Health Prevention Fund to share information regarding formats of our support groups which may be relevant for a possible initiative elsewhere in the county.

    2013 - Second Quarter update

    Attended dementia summit which enabled us to network with providers, e.g. health and local authority.

    Attended First Contact event which enabled us to network with local organisations in the Spalding area.

  • Be able to support a second memory health care worker

    We need a second memory health care worker in order to meet demand for our services

    Status:
    Implementation

    2014 - First Quarter Update

    Have completed costings for additional help and will shortly begin a recruitment process

    2013 - Fourth Quarter update

    In progress

    2013 - Third Quarter update

    Dementia support workers are assisting with our fortnightly day club for people with early-onset or early stage dementia. It may be we can build on these relationships

    2013 - Second Quarter update

    New member

  • Have a more sustainable income stream by obtaining further financial support from grant- making bodies

    We enjoy good support from wellwishers and people fund-raising but need to ensure a regular income.

    Status:
    Delivery

    2014 - first Quarter update

    Working with Lincolnshire CVS who are helping us identify grant-making bodies which may be able to fund additional memory health care worker

    2013 - Fourth Quarter update

    In progress

    2013 - Third Quarter update

    Obtained a grant from Tesco Community Fund which enabled us to offer one of our regular annual social events free of charge to members.

    2013 - Second Quarter update

    Chosen as the Bourne branch of Sainsbury's charity partner for the year.

    2013 - First Quarter update

    Obtained grant from Mental Illness Prevention Fund which has enabled us to fund Square Hole Club, our club for early onset and early stage dementia members for one year.

  • Build on the relationships

    Build on the relationships already being established with partner organisations and those in ‘authority’ who share the same aims and objectives and are able to instigate change.

    Status:
    Delivery

    2014 - First Quarter 

    Meeting with MP took place. Have invited him and the MP who covers the rest of our area to meet us again in the summer. Continuing to work with County Council and other partners on implementation of county dementia strategy and other relevant initiatives,

    2013 - Fourth Quarter update

    In progress

    2013 - Third Quarter update

    Due to have a meeting with one of our Members of Parliament in December.

    2013 - Second Quarter update

    Hosting workshop session with members of our group as contribution to the consultation prcess for the revised Lincolnshire dementia strategy

    2013 - First Quarter update

    Maintain relationships with Lincolnshire Carers partnership, helping with the development of an information booklet for carers of people with dementia. Contribute to consultation process for revised Lincolnshire dementia strategy