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Carers Leeds

Carers Leeds gives tailored and confidential advice, support and information to unpaid carers including those caring for someone with dementia. Carers Leeds is part of Carers Trust which is a national network of carers centres. We work in partnership with carers, funders, local health and social care providers and other local and national organisations. Carers Leeds offers a range of services including emotional support, social activities, training and a bi monthly newsletter

7 January 2015
Yorkshire and Humber
Care, Health, Voluntary Sector
Local Alliances:
Leeds Dementia Action Alliance

1. Action Plan

1. The National Dementia Declaration lists seven outcomes that the DAA are seeking to achieve for people with dementia and their carers. How would you describe your organisation’s role in delivering better outcomes for people with dementia and their carers?

Carers Leeds provides *Individualised information and support from specialist dementia carers support workers including home visits, drop in service and office based appointments * Training on caring for someone with dementia including looking after yourself as a carer * A close working relationship with other stakeholders including Alzheimer's Society Leeds, memory services and those leading on the development of dementia services for the city in order to meet the objectives of the national dementia strategy. * A monthly dementia cafe in a city centre location for carers and people living with dementia offering a safe and accessible place to meet * Support to carers of people with dementia via a specialist worker based in Leeds Teaching Hospital NHS Trust and CCG funded support workers working closely with GP practices and integrated neighbourhood teams across the city * A presence at strategic meetings to ensure the voice of the carer is heard. Carers Leeds sits on the multiagency Leeds Integrated Dementia Board which aims to improve services for carers and people with dementia throughout the city

2. What are the challenges to delivering these outcomes from the perspective of your organisation?

The specialist dementia services provided by Carers Leeds are short term funded which creates ongoing pressures around sustainability. The future of a very successful dementia carer training programme is uncertain beyond spring 2015 unless continued funding is secured The success of our dementia carer support service in Leeds Teaching Hospitals could be expanded to provide a more comprehensive service across all LTHT sites if funding was available for a second post Reduce the stigma and myths associated with a diagnosis of dementia so that carers feel able to access supports and services readily in Leeds

Member website


2. Actions

  • Dementia carer training programme

    To secure long term funding for a variety of training initiatives  which will enable us to plan a comprehensive dementia carer training programme.

    We will work in partnership with local neighbourhood networks and neighbourhood teams to develop bespoke training sessions for carers to readily access

    To develop and expand the current training programme.  This would include adapting and tailoring the course to meet the needs of carers by taking the course into the local communities in addition to run courses from our city centre premises.  To develop shorter training sessions in order to meet the demands of a caring role

  • City Centre Dementia Cafe

    To actively encourage new and existing carers and people with dementia to attend a city centre dementia cafe at Carers Leeds.  To source new activities at the dementia cafe to engage and stimulate people living with dementia.  To support carers in their role and acknowledge their changing needs as dementia progresses.

    Being implemented
  • Sourcing funding for specialist carers support in secondary care settings

    Source funding for the continuation of a dementia carers support worker within Leeds Teaching Hospital Trust.  Supporting carers of people with dementia when either they are the patient or the person with dementia is the patient.  Sourcing additional funding for a second carers support worker to ensure a greater presence across all Leeds hospital sites.

    Being implemented