Alzheimer's Society - Barnsley
Alzheimer’s Society is the UK’s leading dementia support and research charity. We provide services, fund research and advise health and social care professionals. Working nationally and locally, we campaign for improved care and greater awareness and understanding of dementia.
- 4 August 2017
- Yorkshire and Humber
- Local Alliances:
- Barnsley Dementia Action Alliance
1. Action Plan
1. The National Dementia Declaration lists seven outcomes that the DAA are seeking to achieve for people with dementia and their carers. How would you describe your organisation’s role in delivering better outcomes for people with dementia and their carers?
Alzheimer's Society is the UK's leading support, care and research charity for people with dementia, their families and carers. We provide information and support for those with any form of dementia and their carers. We advise and train professionals working in the field, fund research, run quality support and care services, and campaign for improved health and social care and greater public understanding of dementia.
We work in partnership with others to ensure that support is always there for people with dementia and that people receive a timely diagnosis, that the condition is understood and that people with dementia have the same rights as other members of society. We will achieve this through funding scientific breakthroughs, strengthening communities by increasing understanding of the needs of people with dementia and the contribution of carers and striving to put an end to discrimination and stigma.
2. What are the challenges to delivering these outcomes from the perspective of your organisation?
Dementia is higher on the public and political agenda than it has ever been. We have seen action across England to begin implementing the National Dementia Strategy. The task at hand now is to use that strong position and build on the momentum achieved by creating a broad church of individuals and organisations committed to action.
Public awareness of dementia is rising but understanding about dementia is poor. There is limited public appreciation that it is possible to live well with dementia and to make big differences to quality of life for people with dementia and their carers. Poor understanding is something common among the general public as well as people working in health and social care services.
People with dementia are diagnosed too late and families often report not receiving the information and support they need to begin living well with dementia. People with dementia often face social isolation and poor outcomes.
There is a limited amount of funding going into dementia research compared to other major disease groups like cancer.
In a difficult economic climate we need to clearly make the case for action on dementia to achieve better outcomes in a cost effective way.
Most importantly we need to work with people with dementia, their carers and families to understand what matters most to them in order to transform quality of life for all people living with dementia.
Champion public awareness of dementia
We will work with local partners to develop and promote dementia awareness and encourage organisations, partners, businesses and individuals to become Dementia Friends and Champions.
2015 - Second Quarter Update
With the support of Barnsley DAA we have developed over 700 dementia friends in the Barnsley area.
Develop and promote quality information and support services
We will continue to develop and promote quality information and support services for people with dementia, their carers and families through local information, support services, website and helplines. In particular, we will widely promote and help distribute The Dementia Guide.
Actively Promote Membership and Benefits of DAA
We have a Dementia Action Alliance coordinator who leads on the development of the Barnsley's Dementia Action Alliance. We will continue to promote the benefits and development of Barnsley's DAA through publicity, articles in our newsletters, attendance at meetings and participation in discussion.
2015 - Second Quarter Update
We have supported the DAA and encouraged memebership which now stands at over 80.