Dove House Hospice
Dove House Hospice (DHH) is a registered charity which provides specialist palliative care and end of life care for adults over the age of 18 with life limiting illnesses of any kind in Hull and the East Riding. We support family and friends before and after death. Patients can come to us for pain and symptom management, respite care and care at the very end of life. We also support carers and provide bereavement care for adults and children and we provide education and training in palliative and end of life care to local health and social care agencies.
- 11 August 2015
- Yorkshire and Humber
- Health, Medical, Voluntary Sector
- Local Alliances:
- Hull Dementia Action Alliance , Yorkshire & Humber Dementia Action Alliance, East Riding Dementia Action Alliance
1. Action Plan
1. The National Dementia Declaration lists seven outcomes that the DAA are seeking to achieve for people with dementia and their carers. How would you describe your organisation’s role in delivering better outcomes for people with dementia and their carers?
The organisation is committed in ensuring people with Dementia have equal access to specialist palliative care services.
We are enabling patients to have choice and control over their care by building and strengthening links with other professionals, ensuring they are aware of the hospice and the services it can offer.
We provide advice, support and education to empower professionals to communicate sensitively and effectively. This enables timely discussions to take place around advance care planning and future wishes. (We have met with the Hull Memory Clinic regarding this and may be providing in-put in the future)
We provide person centred care, which is facilitated by the use of the Living Well Tools, recognising what is important to and for the person and how we can best support them and their carers
We provide end of life training to paid carers – ensuring carers are well equipped to provide high quality care to patients and their families.
We are part of a local Dementia Palliative and End of Life care working group which aims to improve palliative and end of life care for people with dementia and their families through collaborative working, research (University of Hull) and the development of an integrated care pathway.
2. What are the challenges to delivering these outcomes from the perspective of your organisation?
There is limited acceptance of dementia as a life limiting illness and therefore people with dementia and their carers are less likely to be introduced to timely discussions around future wishes and advance care planning.
We need to continue to provide other professionals with the relevant skills and training to feel confident in communicating effectively with patients and carers about palliative and end of life care needs
The hospice needs to ensure that professionals, people with dementia and their carers are aware of the hospice’s role and the services it can offer, ensuring timely and appropriate referrals.
All staff to have training in dementia care.
To continue to access high quality training with the Hull Dementia Academy, to include catering and ancillary staff and volunteers.
To implement The Butterfly Scheme
Dove House has been granted authorisation to implement the Butterfly Scheme by its founder and coordinator Barbara Hodgkinson.
Education Nurse and hospice lead dementia nurse to liase with Barbara Hodgkinson on launch and implementation of the Butterfly Scheme.
All health care assistants, nurses and members of MDT to be trained in the use of The Butterfly scheme prior to its launch
To identify a lead nurse for dementia
Through clinical management and MDT working. The lead nurse will be a senior nurse in the organisation
To develop an operational plan for the Hospice dementia suites
There is evidence that hospices can provide an alternative to hospital admission for patients with low grade medical problems eg Chest infections, Urinary tract infections, dehydration. The hospice has built 2 self contained dementia suites with a view to providing such a service.
Familes and carers will be able to stay with the patient and the aim of the proposed service is to maintain continuity with the patients usual place of residence and avoid hospital admission.
Liase with commissioners from Hull CCG and Hull City Council.
- Initial Scoping, Planning
To increase the number of people with dementia accessing our services
To collect information which will identify how many people with dementia are accessing our services.
To continue to engage with dementia services to ensure collaborative working and increased awareness of hospice services.
To increase awareness of Advance Care Planning with people with dementia and their carers
To complete research with University of Hull regarding development of practice guidance related to Integrated Care Pathways for people with dementia and their families and carers.
To organise an event specifically to raise awareness of dementia as a life limiting illness and the importance of Advance Care Planning