The Lewy Body Society

The Lewy Body Society is a charity registered in England and Wales (number 1114579) and in Scotland (SC047044) whose mission is to fund research into Lewy body dementia and to raise awareness of the disease. LBD is the second most common type of neurodegenerative dementia in older people after Alzheimer’s, accounting for approximately 15-20% of all people living with dementia.

Updated:
22 January 2019
Location:
National
Sectors:
Health, Medical, Voluntary Sector, Charity, Care, Local DAA Members, Research Sector

1. Action Plan

Lewy Body Society is proud to be a member of the National DAA and to contribute to raising  awareness of LBD. 

Member website

http://www.lewybody.org/

2. Actions

  • Commitment 3 relating to Care - Providing information and awareness sessions for professional and family carers about Lewy body dementia.

    We are now working in partnership with Dementia UK to answer calls from carers. We have updated our leaflets and are in the process of updating our carers handbook and this will remove all reference the word 'sufferer'.  We are reviewing all the content of our website including using more appropriate pictures.  The society has produced awareness presentations.

    Status:
    Delivery
  • Commitment 2 relating to Carers - Promote awareness of Lewy body dementia amongst medical professionals to contribute to an early and accurate diagnosis

    Produce a carers handbook and information leaflets.  The society has now changed its strap line to 'Shining a light on Lewy body dementia'.

    Status:
    Delivery
  • Commitment 1 relating to Research - To give people living with Lewy body dementia every opportunity to be involved in research

    Promote awareness of Join Dementia Research: Send a leaflet with our information packs; promote JDR on our website; promote JDR in our presentations. Include people living with Lewy body dementia and their carers in our grant reviews.

    Status:
    Implementation