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Butterflies Memory Loss Support Group

Voluntary organisation providing social activities for people with experiencing memory loss or diagnosed with dementia, their carers and other family members. We offer a number of weekly and monthly drop in sessions where the emphasis is on enjoying life, maintaining skills and experiencing new ones. In addition the groups holds carer information forums for main carers and the extended family. Throughout the year we work of several cross generational project aimed at reducing stigma and raising awareness. The group is also involves in many community events eg Humber Mouth Festival, Freedom Festival, Sea Shanty Festival which are part of their annual calendar. We also organise a variety of day trips for our members to local stately homes, museums, the coast and theatres.

11 August 2015
Yorkshire and Humber
Voluntary Sector
Local Alliances:
Hull Dementia Action Alliance , Yorkshire & Humber Dementia Action Alliance, East Riding Dementia Action Alliance

1. Action Plan

1. The National Dementia Declaration lists seven outcomes that the DAA are seeking to achieve for people with dementia and their carers. How would you describe your organisation’s role in delivering better outcomes for people with dementia and their carers?

Our organisation offers workshops, advice forums and events in a positive, inclusive environment where all of our members play an active role in the decision making. All of our volunteers are trained in dementia awareness, regardless of their role, and adopt a person centred practices in all of our work.

We act as informal advocates for our members, signposting them to services available and offering guidance with advance planning options. The Butterflies Memory Loss Support Group are have a very public presence at many of the local festival and annual community events. We enable involvement in these by providing exhibitions and ensuring our members are supported to attend events.

Working closely with the Hull University and The Hull Memory Clinic our organisation is in a position to signpost members, where appropriate and by their own choice, to be involved in local and national research project.

We work with a number of schools and youth organisations on projects aimed at raising awareness and reducing stigma so that future generations facing dementia either personally or in their work place, be that a care service or a public place, are better informed and dementia aware.

2. What are the challenges to delivering these outcomes from the perspective of your organisation?

Raising awareness that we are here and what we do in the right places for example GPs and clinics

Members accessing our services early enough in their journey through dementia

Being recognised by all statutory organisations as a quality service. • The increasing numbers of referrals

Funding the services we provide and meeting the increasing demand for services in the future.

Public perception of "Old People" and their realisation that it will come to us all in the end

2. Actions

  • Providing social activities and information through drop in sessions

    In a setting where members feel supported and safe.Working with a person centered philosophy addressing the social needs of carers and the cared for.Offering guidance regarding services available and advance planning.Working in a positive environment concentrating on our members strengths and skills.Working in an inclusive environment ensuring our members have a voice within the organisation and beyond.


  • Raising awareness and reducing stigma about dementia

    Working on cross generational projects in schools and youth centres.Involving and enabling members and their families to participate in local and national community events.Training workshops for practitioners who deliver workshops to our organisation.


    2015 - First Quarter Update

    In March we will be attending a coffee morning at Frances Askew Primary School where we will be judging an Easter Bonnet parade be the young people, they will in turn be judging the bonnaets mad eby our members. 

    2014 - Fourth Quarter Update

    In October 2014 we delivered a perfrmance of Grandma Remember Me to a number of schools in Hull.  The event was attended by 180 scholl Children

  • Drop in sessions for people with memory problems and their carers.

    The Butterflies Memory Loss Support Group - East is a drop in held on the third Friday of the at The Club House Community Centre Elm Avenue Garden Village Hull HU8 8PZ

    The Butterflies Memory Loss Support Group - Central is held on the third Thursday of the Month at 2nd Floor 94 Alfred Gelder Street Hull HU1 2AN

     Activities include informative speakers, quizzes, music, drama, gardening, history and much more.  There is something for everyone as all members have a say in what activities you would like.  Our workshops aim to provide a fun activity that carers and the cared for can enjoy together and provide a new talking point to help get through the routine of the day.

    We are a group for people with memory problems or a diagnosis of dementia, and their carers and families, all ages are welcome. A light lunch or just a cuppa is available from 12.30 so you have chance for a chat before our speaker or workshop starts at around 1.00pm.

    In addition to our monthly meetings we offer a selection of trips & days out and extra workshop projects exploring music, singing, drama and other arts based activities also extra  advice and support sessions will be held at various times throughout the year for carers and the cared for.

    If you are a person with dementia/memory problems, or caring for someone affected by the condition, why not come and join us?  Or, if you are interested in joining the group as a volunteer, we are always looking for people to help from admin duties to serving tea or simply coming along to befriend members and join in with the fun!

                              Call June on 07821 519212 

                           Email  butterfliesmlsg@yahoo.co.uk

                            FACEBOOK Butterflies-Memory-Loss-Group

                                      TWITTER  @butterfliesmlsg


    2015 - First Quarter Update

    We have now moved to a new city centre Head Quarters. 

    We have started a new group for people with memory problems and awaiting diagnosis or with dementia to attend with their carers.  It will be held on the first Tuesday of every month 11.30 - 2.30.

    New Social Group

    For people experiencing memory loss or with

    a diagnosis of dementia, and their carers.

    There will be some activities to choose from or you can simply meet other people for a chat and a cuppa. Refreshments are available throughout the session. Light snacks are available at a small cost. 

    When:                 First Tuesday of every month

    Time:                   11.30 – 2pm

    Where:                Butterflies HQ, 2nd Floor 94 Alfred Gelder Street Hull HU1 2AN

    Cost:                    £2.50 per session

    How to get there from West and North Hull.

    The following buses stop on Monument Bridge which is a short walk to the Butterflies walking past the rear entrance to M&S along Alfred Gelder Street towards the Guild Hall.

    35, 60, 61, 62, 64, 2 ,66, 151, 152, 153, 154, 155, X4 X55, X56, X57 N2.

    A number of buses from North Hull stop outside Primark.

    If your number bus is not amongst these, you could get off at the interchange and change to one of those on the East bound routes, there are quite a lot so you shouldn’t have a long wait.Other routes to West and North Hull.The following buses stop on Monument Bridge which is a short walk to the Butterflies walking past the rear entrance to M&S along Alfred Gelder Street towards the Guild Hall.35, 60, 61, 62, 64, 2 ,66, 151, 152, 153, 154, 155, X4 X55, X56, X57 N2.A number of buses from North Hull stop outside Primark.

  • Support Forum for Carers

    Support forums are designed to be a two way training discussion group for carers for those with dementia.We cover a few set topics aimed at raising awareness, improving communication and developing coping strategies in addition to subjects identified by those talking part as areas they would like to know more about.  We plan to do some skill sharing work in the future looking at cooking and DIY.

    Whilst carers are in their workshop we provide an activity group for those they care for offering a chance to try a variety of crafts, music, games and some imaginative life story work.


    2015 - First Quarter Update

    Having recieved the second installment of funding from Comic Relief the carers forums are ongoing.  They are delivered as and when needed and the subjects we discuss are subject to the needs and concerns of the group.