Alzheimer's Society - Rotherham
Alzheimer's Society is the UK's leading support, care and research charity for people with dementia, their families and carers. We provide information and support for those with any form of dementia and their carers. We advise and train professionals working in the field, fund research, run quality support and campaign for improved health and social care and greater public understanding of dementia. We work in partnership with other organisations both in Health, Social care, voluntary and private sector to ensure that support is always there for people with dementia and there carers. We work with partners to support people to receive a timely diagnosis, that the condition is understood, and that people with dementia have the same rights as other members of society. We will achieve this through funding scientific breakthroughs, strengthening communities by increasing understanding of the needs of people with dementia and their carers, and striving to put an end to discrimination and stigma.
- 3 February 2014
- Yorkshire and Humber
- Care, Health, Voluntary Sector
- Local Alliances:
- Rotherham Dementia Action Alliance, Yorkshire & Humber Dementia Action Alliance
1. Action Plan
1. The National Dementia Declaration lists a number of outcomes that we are seeking to achieve for people with dementia and their carers. How would you describe your organisation’s role in delivering better outcomes for people with dementia and their carers?
The Rotherham Alzheimer's Society will support people with dementia their carers that live in the Rotherham area. We will provide high quality information and support by trained staff to ensure that people with dementia and their carers and families can live well with dementia. We advise professionals working in the field and support the mental health steering group and Dementia Action Alliance in the Rotherham area. We promote and engage with national and local campaigns and encourage a greater public understanding of dementia.
We work in partnership with others to ensure that support is always there for people with dementia and that people receive a timely diagnosis, Our partnership working through the Rotherham Dementia forum ensure that the condition is understood and that people with dementia have the same rights as other members of society. We will support the Rotherham Dementia Action Alliance, strengthening the Rotherham communities by increasing understanding of the needs of people with dementia, and encouraging them to developed dementia friendly organisations/business. We will support and lobby for more support for carers and ensure their contribution in supporting people with dementia is recognized. We are striving to put an end to discrimination and stigma attached to dementia within all our communities in Rotherham. We will work with communities groups to provide services in line with culture and religious need.
2. What are the challenges to delivering these outcomes from the perspective of your organisation?
Dementia is higher on the public and political agenda than it has ever been. We have seen action across England to begin implementing the National Dementia Strategy. The task at hand now is to use that strong position and build on the momentum achieved by creating a broad range of individuals and organisations committed to action.
Public awareness of dementia is rising but understanding about dementia is poor. There is limited public appreciation that it is possible to live well with dementia and to make big differences to quality of life for people with dementia and their carers. Poor understanding is something common among the general public as well as people working in health and social care services.
People with dementia are diagnosed too late and families often report not receiving the information and support they need to begin living well with dementia. People with dementia and carers often face social isolation and poor outcomes.
There is a limited amount of funding going into dementia research compared to other major disease groups like cancer.
In a difficult economic climate we need to clearly make the case for action on dementia to achieve better outcomes in a cost effective way.
Most importantly we need to work with people with dementia, their carers and families to understand what matters most to them in order to transform quality of life for all people living with dementia.
Champion Public, Awareness of Dementia.
We will champion public understanding of dementia through national and local awareness campaigns, and by supporting people with dementia to speak out and tell their own stories.
We will continue to facilitate the Rotherham Dementia Forum to enable people with Dementia and their carers to have a voice in Rotherham.
We will engage with commissioners to ensure their view and options are heard and services are developed to meet their needs locally.
Develop Quality Information and Support Services
We will continue to develop quality information and support services in Rotherham for people with dementia, their carers and families through local information and support services, our website, and help lines. We will engage with Health, Social care, voluntary sector and private sector to ensure our services are shared and people with dementia and carers have the information they require to live well with Dementia.
We will work with BME voluntary sector groups to raise awareness about dementia within their communities.
Actively Promote Membership and Benefits of DAA
We will continue to support the benefits and development of RDAA through being an active member of the RDAA steering group. We will continue to work collaboratively towards Rotherham being a dementia friendly community. As steering group members we will actively engage with local business, community and voluntary groups to encourage membership of the RDAA. We will also support local business and voluntary groups in developing action plans to ensure they achieve the status of being a dementia friendly organisation/business.
Put people with dementia and carers at the forefront of our work.
We will facilitate the views of people with dementia and their carers and families and will ensure that key professionals are aware of the issues faced by people with dementia and those that care for them in the Rotherham area.