Alzheimer's Society Bedfordshire & Luton

Alzheimer’s Society is the UK’s leading dementia support and research charity. We provide services, fund research and advise health and social care professionals. Working nationally and locally, we campaign for improved care and greater awareness and understanding of dementia.

Updated:
29 June 2017
Location:
East of England
Sectors:
Voluntary Sector
Local Alliances:
Luton Dementia Action Alliance

1. Action Plan

1. The National Dementia Declaration lists a number of outcomes that we are seeking to achieve for people with dementia and their carers. How would you describe your organisation’s role in delivering better outcomes for people with dementia and their carers? 

Alzheimer's Society is the UK's leading support, care and research charity for people with dementia, their families and carers. We provide information and support for those with any form of dementia and their carers. We advise and train professionals working in the field, fund research, run quality support and care services, and campaign for improved health and social care and greater public understanding of dementia.

We work in partnership with others to ensure that support is always there for people with dementia and that people receive a timely diagnosis, that the condition is understood and that people with dementia have the same rights as other members of society. We will achieve this through funding scientific breakthroughs, strengthening communities by increasing understanding of the needs of people with dementia and the contribution of carers and striving to put an end to discrimination and stigma

2. What are the challenges to delivering these outcomes from the perspective of your organisation? 

With dementia higher on the public and political agenda than ever the task now is to create a broad church of individuals and organisations committed to action.

Public awareness of dementia is rising but understanding remains poor, e.g. that it is possible to live well with dementia and to make big differences to quality of life for people with dementia and their carers.

People with dementia are often diagnosed too late and do not get the information and support they need to begin living well with dementia - resulting in social isolation and exclusion.

Funding for dementia research is limited compared to other major disease groups and in a difficult economic climate we need to make a compelling case for action.

Most importantly we need to work with people with dementia, their carers and families to understand what matters most to them in order to transform their quality of life.

Member website

www.alzheimers.org.uk

2. Actions

  • Champion Public Understanding of Dementia

    We will champion public understanding of dementia through national and local awareness campaigns, and by supporting people with dementia to speak out and tell their own stories. We will organise, promote and engage in dementia awareness events across Luton.

    During national Dementia Awareness Week, we hold events, distribute information and present talks across Luton.

    The Dementia Roadshow enables the general public to speak to Society staff and provide information to help people understand the disease, whether they are a person with dementia, a family member or carer, or someone who is worried about their memory.

    We will work collaboratively with other partner organisations to provide Dementia Friends sessions to ensure that Luton becomes a dementia friendly town.

    We will continue to provide information and awareness talks to community groups, health and social care professionals, housing associations, voluntary organisations and interested parties to raise awareness and reduce stigma.

    Our staff will support anyone affected by dementia, and provide relevant and up to date information enabling them to understand the illness.

    Status:
    Delivery

    2015 - Fourth Quarter Update

    For Dementia Awareness Week 2015 the following activities were:

    ASDA Information standInformation stand in The MallTea & Cakes eventRoadshow bus visit Luton for 2 days in April / May 

    2015 - Fourth Quarter Update

    New Member

  • Develop Quality Information and Support Services

    We will continue to develop, enhance and evaluate our information and support services for people with dementia, their carers and families.

    Our universal services: the National website, helpline and our online support and discussion forum are accessible to everyone.

    We will continue to provide local information and support services for the people of Luton. Our Dementia Support Service provides one to one support to people with dementia, carers and family members and is unique to personal circumstances. The service provides information and practical support to help greater understanding about dementia, and to support service users with dementia.

    Our Peer Support Groups open to people with dementia and their carers offers the opportunity to engage with and support others in a similar situation.

    All services will be reviewed and evaluated to ensure we continue to provide needs lead services and support, promoting choice and control.

    Our Service User Involvement Champion will seek the views of our clients through a variety of engagement influencing all aspects of the Society’s work. This can range from asking people for feedback on the services they receive in order to monitor quality and inform service development at a local level to involvement in influencing the future direction of the Society.

    Status:
    Delivery

    2015 - Fourth Quarter Update

    Young Onset Dementia Group introdcued November '15

    Carer Information and Support Program (CrISP) training delivered Oct '15

    Dementia Cafe introduced in Sept '15 - 2nd and 4th  Friday of every month

    Cognitive Stimulation Group at Applegrove introduced July '15

    Dementia Support points based in Gp surgeries instroduced in Jan '15

    Carers Group introduced Nov '14

    2015 - Fourth Quarter Update

    New Member

  • Improve the Skills of the Dementia Care Workforce

    We will continually improve the skills and of our workforce. Training is the ‘development of an informed, engaged, professional and motivated workforce with each individual capable of and empowered to make a positive and lasting contribution to people living with dementia.’ It is our aim to build our workforce to feel valued, have pride in the work they do and are capable and empowered to make a difference’.

    Identifying staff and volunteers training requirements ensuring all mandatory and role specific training is undertaken.

    Status:
    Delivery

    2015 - Fourth Quarter Update

    Luton Alzheimer's Scoiety team has grown larger

    Full induction training inculded during new staff probationary period

    Staff involved with supporting the Luton co-production project

    All volunteers are able to access Alzheimer's Society training

    2015 - Fourth Quarter Update

    New Member

  • Campaign for Fairer Deals

    We will work with people with dementia, their carers and families to campaign for a fairer deal on the issues that matter to them - early diagnosis, access to the right care and treatment, and investment in dementia research - and ensure their needs are recognised by decision makers at national and local level.

    Status:
    Implementation

    2015 - Fourth Quarter Update

    Alzheimer's Society's Right to Know campaign wants to ensure that more people living with dementia receive a formal diagnosis and that everyone diagnosed is fully supported afterwards.

    Alzheimer's Society has the longest and largest public involvement in dementia research. We work with the scientific community in partnership with people affected by dementia, and currently invest over £5 million a year in dementia research. Alzheimer's Society has funded over 200 research projects in leading scientific institutions across the UK. This research falls into four main categories:

    CauseCureCarePrevention

    2015 - Fourth Quarter Update

    New Member

  • To champion the diversity of Luton

    In Luton we have raised awareness of dementia across all sectors and all communities.

    We will work with our partners to raise awareness of dementia ensuring we engage and support those people with dementia, carers and family members across all communities in Luton.

    Society literature is available in a variety of languages, and formats including Audio, Braille, CD.

    Status:
    Implementation

    2015 - Fourth Quarter Update

    Continue to work across BAME groups and ensure those affected are signposted to support that meets cultural needs

    2015 - Fourth Quarter Update

    New Member

  • Develop Quality Information and Support Services

    We will continue to develop, enhance and evaluate our information and support services for people with dementia, their carers and families.

    Our universal services: the National website, helpline and our online support and discussion forum are accessible to everyone.

    We will continue to provide local information and support services for the people of Luton. Our Dementia Support Service provides one to one support to people with dementia, carers and family members and is unique to personal circumstances. The service provides information and practical support to help greater understanding about dementia, and to support service users with dementia.

    Our Peer Support Groups open to people with dementia and their carers offers the opportunity to engage with and support others in a similar situation.

    All services will be reviewed and evaluated to ensure we continue to provide needs lead services and support, promoting choice and control.

    Our Service User Involvement Champion will seek the views of our clients through a variety of engagement influencing all aspects of the Society’s work. This can range from asking people for feedback on the services they receive in order to monitor quality and inform service development at a local level to involvement in influencing the future direction of the Society.

    Status:
    Delivery

    2015 - Fourth Quarter Update

    Support to National pilot "Making Evaluation Count"

    Support Service User Review Panel for both national and local issues

    2015 - Fourth Quarter Update

    New Member

  • Work collaboratively with other members of the DAA

    To work with other members of the local Dementia Action Alliance and the Luton Dementia Strategy group sharing good practice, knowledge and skills.

    To raise awareness of the DAA and the work we do to organisations and businesses across Luton. We will encourage and support them to become members of the local alliance and produce their own action plans. Ensuring that dementia and carers needs are high on everyone’s agenda.

    Status:
    Implementation

    2015 - Fourth Quarter Update

    Luton Dementia Action Alliance Coordinator has been recruited

    sian.gilleard@alzheimers.org.uk

    2015 - Fourth Quarter Update

    New Member