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Tide - Together in Dementia Everyday

Tide is a UK-wide involvement network for carers & former carers of people living with dementia. Tide connects mobilises & enables carers to recognise their own value. Carers tell us that their voices are often not heard & their own needs go unrecognised. Through our Carers Development Programme, we build skills, knowledge & confidence so that carers are able to speak up & influence change in society.

Updated:
3 April 2020
Location:
North West
Sectors:
Charity, Voluntary Sector
Local Alliances:
Liverpool Dementia Action Alliance , St Helens Dementia Action Alliance , Cheshire East Dementia Action Alliance, Sefton DAA, Warrington Dementia Action Alliance, West Cheshire Dementia Action Alliance, Halton Dementia Action Alliance , Wirral DAA

1. Action Plan

1. The National Dementia Declaration lists seven outcomes that the DAA are seeking to achieve for people with dementia and their carers. How would you describe your organisation’s role in delivering better outcomes for people with dementia and their carers?

Tide’s strategic outcomes are that: • Carers report increased connectedness, greater self-efficacy, & feeling part of a collective voice • Carers will gain confidence, knowledge & new skills, increasing their ability to influence positive change • The inclusion of carers voices will ensure that policies, research, education, commissioning & services are more responsive to their needs We will achieve these outcomes through: • Working in partnership with other organisations & professionals to identify carers & former carers of people with dementia • Offering carers opportunity to use their individual & collective experiences of caring to influence policy & practice • Ensuring that carers development needs are met through our Carer Development Programme, & providing any support that carers need in order to become involved as equal partners

2. What are the challenges to delivering these outcomes from the perspective of your organisation?

• Carers not having enough time, feeling guilty about doing something for themselves, not seeing it as a priority, having other commitments, &/or being tired of fighting • Unwillingness & unreadiness of the system to change • Lack of funding & resources

2. Actions

  • Maintain & develop our UK-wide Network for Carers & Former Carers of People with Dementia

    Work in partnership with other organisations & professionals to identify carers & former carers of people with dementia & invite them to join the Tide Network. Our Network gives carers the opportunity to share experiences & influence policy & practice through face-to-face meet-ups, local & national events, & social media groups.

    Status:
    Delivery
  • Meet the Development Needs of Carers & Former Carers Involved in our Network through our Carer Development Programme

    Build on the skills, knowledge & confidence of carers, & ensure that any development needs are met through our Carer Development Programme. We run regular free sessions across the UK. Sessions that we currently offer include:

    Welcome to Tide Workshop: An introduction to the work of Tide, an opportunity to meet other members & learn how they can get involved

    You Can’t Pour from an Empty Cup: Carers can gain practical tools & techniques to help them manage their emotional wellbeing whilst they are involved in influencing work

    Maze Runner: An introduction to the ‘maze’ that is the Health & Social Care system, how it works & how carers can have their voice heard within the system

    Presenting to Influence: An opportunity for carers to develop the skills they need to present their experience & message with impact

    Speaking to Influence: Carers can learn to speak with confidence & achieve their goals using different communication styles, particularly when interacting with professionals or speaking up for themselves.

    Status:
    Delivery
  • Provide Support for Carer Co-production & Involvement

    We will provide any support that carers need in order to become involved as equal partners. Along with our Carer Development Programme, this may include one-to-one coaching sessions, briefings & debriefings, drop-in & welcome meetings, & themed events.
    Status:
    Delivery
  • Provide Opportunities for Carers & Former Carers of People with Dementia to Influence

    We will offer carers the opportunity to use their individual & collective experiences of caring to influence policy & practice at a national & local level in order to bring about positive change. Involvement & coproduction opportunities may include: sharing their experiences at conferences & events or via blogs, videos & websites; sitting on strategic working groups; responding to consultations; involvement in research; or delivering training to professionals.

    Status:
    Delivery