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Alzheimer's Society Cambridgeshire & Peterborough

Alzheimer’s Society is the UK’s leading dementia support and research charity. We provide services, fund research and advise health and social care professionals. Working nationally and locally, we campaign for improved care and greater awareness and understanding of dementia.

Updated:
23 August 2017
Location:
East of England
Sectors:
Voluntary Sector, Charity
Local Alliances:
Peterborough Dementia Action Alliance, East Cambridgeshire Dementia Action Alliance, Fenland Dementia Action Alliance, Cambridge City Dementia Action Alliance, Huntingdonshire Dementia Action Alliance, South Cambridgeshire Dementia Action Alliance

1. Action Plan

1. The National Dementia Declaration lists seven outcomes that the DAA are seeking to achieve for people with dementia and their carers. How would you describe your organisation’s role in delivering better outcomes for people with dementia and their carers?

Alzheimer's Society is the UK's leading support, care and research charity for people with dementia, their families and carers. We provide information and support for those with any form of dementia and their carers. We advise and train professionals working in the field, fund research, run quality support and care services, and campaign for improved health and social care and greater public understanding of dementia.

We work in partnership with others to ensure that support is always available when it is needed, that people receive a timely diagnosis, that the condition is understood and that people with dementia have the same rights as other members of society. We will achieve this through funding scientific breakthroughs, strengthening communities by increasing understanding of the needs of people with dementia and the contribution of carers and striving to put an end to discrimination and stigma.

2. What are the challenges to delivering these outcomes from the perspective of your organisation?

With dementia higher on the public and political agenda than ever before the task now is to create a broad range of individuals and organisations committed to action.

Public awareness of dementia is rising but understanding remains poor, for example that it is possible to live well with dementia and to make big differences to quality of life for people with dementia and their carers.

People with dementia are often diagnosed too late and do not get the information and support they need, which can result in social isolation and exclusion. It is a major challenge to change practice in healthcare at a local level.

Funding for dementia research is limited compared to other major disease groups and in a difficult economic climate we need to make a compelling case for action.

Most importantly we need to work with people with dementia, their carers and families to understand what matters most to them in order to transform their quality of life.

Member contacts

http://www.alzheimers.org.uk

Member website

www.alzheimers.org.uk

2. Actions

  • Champion Public Understanding of Dementia

    We will champion public understanding of dementia through national and local awareness campaigns, and by supporting people with dementia to speak out and tell their own stories. We will organise, promote and engage in dementia awareness events across Peterborough.

    During national Dementia Awareness Week, we hold events, distribute information and present talks across Peterborough.

    Our Dementia Roadshow bus enables the general public to speak to Society staff and provide information to help people understand the disease, whether they are a person with dementia, a family member or carer, or someone who is worried about their memory.

    We will work collaboratively with other partner organisations to provide Dementia Friends sessions to ensure that Peterborough becomes a dementia friendly city.

    We will continue to provide information and awareness talks to community groups, health and social care professionals, housing associations, voluntary organisations and interested parties to raise awareness and reduce stigma.

    Our local volunteer campaigning group will champion key national and local campaigns with planned campaigning activities. 

    We will work with our partners to promote and support the Dementia Resource Centre to be a Centre of Excellence for dementia information, advice and support. 

    Our staff will support anyone affected by dementia, and provides relevant and up to date information enabling them to understand the illness  

    Status:
    Delivery

    2017 - Second Quarter Update

    Dementia Awareness Week 2017

    Several events took place in Cambridgeshire and Peterborough acros Dementia Awareness week 2017, including:

    - The launch of Carer Comfort Packs in Hinchingbrooke Hospital, Peterborough City Hospital and Stamford Hospital. This was a project launched alongside the Peterborough and Huntingdonshire Federation of WIs, Carers Trust and North West Anglia NHS Trust. It was a very successful launch including press photos and articles. The project will be reveiwed three months after launch to evaluate.

    - Dementia Friends sessions in two Cambridgeshire Primary School assemblies alongside colleagues from Healthwatch Cambridgeshire

    - An awareness event hosted by Michaelhouse Centre, Cambridge, alongside Cambridge City DAA members

    - Attending several events with information stalls including Ely market and the City of Ely Mayor Making ceremony, where the new Mayor for 2017/18 declared he will be championing dementia-friendliness during his year

    - A walkthrough of Cambridge railway station with people with dementia and other cognitive and physical impairment, to assess the station's accessibility following a major redevelopment, and to meet and dicsuss with the Station Manager.

    2015 - Second Quarter Update

    The DRC has been open 13 months and has become the centre for Dementia in Peterborough. Actively providing information and support to People living with dementia, carers, friends and professionals. We will continue to actively ensure we are awareness raising through all our events and services

  • Develop Quality Information and Support Services

    We will continue to develop, enhance and evaluate our information and support services for people with dementia, their carers and families.

    Our universal services: the National website, helpline and our online support and discussion forum are accessible to everyone.

    We will continue to provide local information and support services for the people of Peterborough.  Our Dementia Support Service provides one to one support to people with dementia, carers and family members and is unique to personal circumstances. The service provides information and practical support to help greater understanding about dementia, and to support service users with dementia.

    Our Peer Support Groups open to people with dementia and their carers offers the opportunity to engage with and support others in a similar situation.  Cognitive Stimulation Groups for people with dementia works to retain recall and develop strategies

    All services will be reviewed and evaluated to ensure we continue to provide needs lead services and support, promoting choice and control.

    Our Service User Involvement Champion will seek the views of our clients through a variety of engagement influencing all aspects of the Society’s work. This can range from asking people for feedback on the services they receive in order to monitor quality and inform service development at a local level to involvement in influencing the future direction of the Society.

    Status:
    Delivery

    2015 - Second Quarter Update

    High quality services are being delivered from the DRC with an increasing number of referrals and attendees. Services are regularly evaluated and service user involvement is undertaken at all stages of service deliver. This action will continue

  • Continuously improving the skills of Alzheimer's Soceity workforce

    We will continually improve the skills and of our workforce.  Training is the ‘development of an informed, engaged, professional and motivated workforce with each individual capable of and empowered to make a positive and lasting contribution to people living with dementia.’ It is our aim to build our workforce to feel valued, have pride in the work they do and are capable and empowered to make a difference’.

    Identifying staff and volunteers training requirements ensuring all mandatory and role specific training is undertaken.

    Use our approved trainer to deliver training locally and on a regular basis complying with our quality standards for training that are mapped to the Qualifications and Credit Framework.

    Status:
    Delivery

    2015 - Second Quarter Update

    Staff have up-to-date Personal Development Plans and are receiving training in a variety of methods including e-learning, peer support and face to face. We continue to ensure staff's knowledge is up-to-date to ensure they are able to provide high quality information and support to others.

  • Campaign for Fairer Deals

    We will work with people with dementia, their carers and families to campaign for a fairer deal on the issues that matter to them - early diagnosis, access to the right care and treatment, and investment in dementia research - and ensure their needs are recognised by decision makers at national and local level.

    Status:
    Delivery

    2017 - Third Quarter Update

    Work with the SURP (Service User Review Panel) group in Greater Cambridge has been fantastic during 2016 and 2017. SURP members have identified priorities locally that they wish to work on and have made suggestions where possible to make changes. For example:

    - A "Mystery Shop" of John Lewis Cambridge resulted in a national level policy change whereby the Lost Person's policy was edited to include vulnerable adults as well as children

    - A walkthrough of East Cambridgeshire District Council's reception area has resulted in practical changes being made to the environment for example clearer signs for toilet doors and placement of furniture and objects

    - A talk was given by a member of the SURP group at a church service at St Colombas Church, Cambridge. The same member also completed a walkthrough of the church premises to assess its dementia-friendliness, and improvements were suggested

    - Work is now taking place to extend this type of work to the SURP group in Peterborough

    2015 - Second Quarter Update

    Work continues locally and nationally

  • To champion the diversity of Peterborough

    In Peterborough we will deliver a new service for carers, Information Programme for South Asian Families (IPSAF) from April 2014. This will enable us to engage with and support one of the largest ethic groups within Peterborough and provide a service that is specifically designed for that community

    Our Volunteering Officer will recruit volunteers who reflect the communities in Peterborough ensuring we engage and support those people with dementia, carers and family members that in the past have been difficult to reach

    We will work with our partners to raise awareness of dementia ensuring we engage and support those people with dementia, carers and family members that in the past have been difficult to reach.    

    All society literature is available in a variety of languages, and formats including Audio, Braille, CD.

    Status:
    Delivery

    2015 - Second Quarter Update

    work continues to engage with the wide ethnicity groups across Peterborough.

    2013 - Fourth Quarter Update

    New Member

  • Work collaboratively with other members of the DAA

    To work with other members of the local Dementia Action Alliance and the Dementia Steering group sharing good practice, knowledge and skills. 

    To raise awareness of the DAA and the work we do to organisations and businesses  across Peterborough.  We will encourage and support them to become members of the local alliance and produce their own action plans.  Ensuring that dementia and carers needs are high on everyone’s agenda.

    Status:
    Implementation

    2015 - Second Quarter Update

    The Alzheimer's Society are currently Chairing the DAA whilst a new chair is identified. There is a need to review where the DAA is at present and then plan for the coming year.

    2013 - Fourth Quarter Update

    New Member

  • Dementia Friendly Communities

    National Alzheimer’s Society initiatives such as Dementia Friends, Dementia Action Alliances and Dementia Friendly Communities all seek community engagement as a key element of their success, promoting awareness, dispelling myths and reducing stigma working towards radically improving the lives of people living with dementia.  The local Society staff and volunteer  team will  working closely with commissioners and partners in Peterborough to achieve this vision.  

    Status:
    Delivery

    2017 - Third Quarter Update

    There are three Dementia Friendly Communities in Cambridgeshire:

    St Ives (Huntingdonshire)
    St Neots (Huntingdonshire)
    Wisbech (Fenland)

    All are focusing on raising awareness through Dementia Friends sessions and encouraging local businesses to take practical actions to improve the lives of all people affected by dementia. 

    2015 - Fourth Quarter Update

    DRC is providing monthly DF at the DRC as well as in the Community. Peterborough has been used to as a national example of good practice and included in the presentation by the Operations manager and Service Manager at Dementia Congress Conference

    2013 - Fourth Quarter Update

    New Member

  • To support setup of local Dementia Action Alliances in Cambridgeshire and Peterborough

    To aid in the creation of local Dementia Action Alliances in Cambridgeshire and Peterborough, and to encourage Dementia Friendly Communities.

    Status:
    Delivered

    2017 - Third Quarter Update

    There are currently 6 Dementia Action Alliances operating in Cambridgeshire as was the aim of 12 months ago. They are operating under varying levels of success and so over the next six months (until first quarter of 2018) the task will be to ensure they are effective and sustainable.

    2016 - First Quarter Update

    There is one Dementia Action Alliance operating in Peterborough, being co-chaired by a member of the community and a city councillor.

    Over the next 12 months the aim will be to establish 5 further Dementia Action Alliances across the remaining districts in Cambridgeshire - in East Cambridgshire, South Cambridgeshire, Fenland, Huntingdonshire and Cambridge City.