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The ExtraCare Charitable Trust

The ExtraCare Charitable Trust enables older people to enjoy a healthier, active and more independent lifestyle in a network of inspirational communities that represent a modern alternative to the traditional care home. The Charity operates 13 retirement villages and 17 smaller housing developments across the Midlands and the North. Each ExtraCare resident can expect a safe, secure future, renting or buying a spacious and affordable home with award-winning care and a wide range of social opportunities to enjoy.

1 February 2019
Health, Care, Housing Sector, Charity, Domiciliary Care, Social Care, Voluntary, Voluntary Sector
Local Alliances:
Coventry and Warwickshire Dementia Action Alliance

1. Action Plan

1. The National Dementia Declaration lists seven outcomes that the DAA are seeking to achieve for people with dementia and their carers. How would you describe your organisation’s role in delivering better outcomes for people with dementia and their carers?

Between 2007 and 2009 The ExtraCare Charitable Trust and the University of Bradford completed a cluster randomised controlled trial of a new approach to living with dementia and other mental health issues in ExtraCare. This research resulted in the development of our Enriched Opportunities Programme (EOP) and the development of a new staff role, the Locksmith. An ExtraCare Locksmith unlocks a person's full potential and unpicks issues surrounding their individual experience of dementia to find interventions that enable the person to live an independent and active lifestyle for as long as possible. The outcomes of the EOP support the National Dementia Declaration by being a participative service where resident’s personal preferences are held in the highest regard. By understanding our resident’s individual experience of dementia we can personalise our services and reduce the barriers to living well with dementia. Through the EOP, ExtraCare works with residents, staff, families, and external organisations to demonstrate ways of improving the lives of people who experience dementia. This is achieved through training and developing our own staff and promoting the approach of the EOP externally at national events and by supporting local alliances.

2. What are the challenges to delivering these outcomes from the perspective of your organisation?

ExtraCare and the EOP face various challenges in maintaining and improving the service we provide for people who experience dementia. Currently the programme is funded by ExtraCare’s charity shops with additional funds raised by our Fundraising team for specific EOP projects. Although this approach currently supports the work of the programme and its successes further funding is required to evolve the programme through community based projects that reach more people who would benefit form the EOP. A continuing challenge is to improve understanding of dementia and play our part in reducing the stigma attached to the condition. This requires improvement to our current training and development programme for all staff and volunteers so that everyone has a beyond basic understanding of the condition and their role in improving the lives of people with dementia.

Member website


2. Actions

  • Dementia Strategy Action - Encourage 15% of all ExtraCare residents to become a Dementia Friend by December 2020

    Approximatly 14% of our residents population is estimated to be living with dementia. The Dementia Friends initative as the ability to better inform people about dementia, reduce myths and improve empathy. We would the number of residents to commiting to becomming a Dementia Friend to be comparable with the number of residents estimated to be living with dementia in our communities. We hope to build on this number in the future and continue to work towards establsihing dementia friendly communities where residents understand dementia and people living with dementia feel supported and included.


    2019 - First Quarter Update

    This action has been running in ExtraCare since January 2017 and we are pleased to say that since its introduction 4% of our residnets have attended a Dementia Freind session so far.

  • Dementia Strategy Action - Acheive a dementia diagnosis rate of 75% by December 2020

    We are aware that many residents that live in our communities may not go on to receive a diagnosis of dementia despite living with symptoms and experiencing an impact on their quality of life. We want to ensure that our residents who are living with a dementia receive a diagnosis if they want one along with the associated benefits of a diagnosis. Additionally we want to educate our residents so that they understand the benefits of diagnosis and the post-diagnostic treatment/support that is available to them.
  • Dementia Strategy Action - Develop Wellbeing App

    To work with our Wellbeing service and care teams to encourage a healthy lifestyle and awareness of dementia and the preventable factors.

    Identifying and managing long term conditions such as heart disease, high cholesterol, and frailty are key in preventing the onset of dementia. A healthy diet, regular physical exercise, managing conditions such as diabetes type two and high blood pressure and avoiding smoking and excessive drinking can reduce risk of developing Alzheimer's disease and vascular dementia. Our approuch is to support residents to make long term changes to behaviours which impair thier health and increase the risk of developing dementia related conditions. We will acheive this through our Wellbeing Programme, as all residents are offered a comprehensive health check by our team of Wellbeing Advisors.

    This action relates to the Prevention & Health Promotion section of ExtraCare's Dementia Strategy 2017 - 2020

    Being implemented

    2018 - Fourth Quarter Update

    The project to develop a new wellbeing app the 'Resilience Tool' has now been compelted and the tool is currently being rolled out to ExtraCare's Wellbeing Advisors.

    This new tool will assist residents to monitor and improve thier level of frailty, including factors which contribute to dementia such as vascular health.

    2018 - First Quarter Update

    During 2017 great progress has been made in implementing a new electronic Wellbeing Assessment for new and exsisting residents. Improved cognitive screening has been incorporated into the assessment to increase its sensitivity in highlighting cognitive problems. This means that we can better support exsisting and new residents who are experiancing a decline in thier cognition.

  • Dementia Strategy - To assess and improve our built environments for residents living with dementia

    Best practice for designing dementia friendly environments has been increasing with some general principles being incorporated into ExtraCare retirement communities.

    We will produce a design standard to be used for new villages and refurbishments of exsisting villages. The design standard is to address good design for older people generally, many of the principles of whihc address dementia friendly design.

    This action relates to the Living Well with Dementia section of ExtraCare's Dementia Strategy 2017 - 2020


    2018 - Fourth Quarter Update

    We are pleased to have completed the development of the ExtaCare Inclusive Design Standards. We aim to use these standards in future new builds and refurbishments to ensure that our environments are inclusive and meet older peoples needs. This includes people living with dementia. The next stage of this project is to develop an easy to use tool that's aids staff to assess and make changes to their environments. This will take place during 2019
  • Dementia Strategy - Launch the Alzheimer's Society Dementia Friends initiative across all ExtraCare communities

    The Dementia Friends initiative was launched in February 2013 by the Alzheimer's Society, it is the biggest ever initiative to change the perception of dementia. Dementia Friends is about learning about dementia and the small ways individuals can help to reduce the stigma of the condition and contribute towards dementia friendly communities.

    Trained resident volunteers will deliver Dementia Friends sessions at each ExtraCare scheme and village and sign up approximitly 15% of the resident population to the Dementia Friends initative.

    This action relates to the Living Well with Dementia section of ExtraCare's Dementia Strategy 2017 - 2020

    Initial Scoping

    2017 - Third Quarter Update

    New Action