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Suffolk Young Dementia Network

We run an informal monthly meet up for people experiencing symptoms of, or with the diagnosis of young onset dementia. Young onset dementia is defined as anyone under the age of 65. Meet up's held once a month on a Sunday. Family and friends always welcome to come along! We take part in activities such as; ceramic painting, FootGolf, coffee meet ups, walks, animal therapy...it changes every time!

29 January 2020
East of England
Local Alliances:
Norfolk & Suffolk Dementia Alliance, Hadleigh Dementia Action Alliance, Stowmarket Dementia Action Alliance , Felixstowe Dementia Action Alliance , Bury St Edmunds Dementia Action Alliance , Needham Market Dementia Action Alliance , Haverhill Dementia Action Alliance, Newmarket Dementia Action Alliance

1. Action Plan

1. The National Dementia Declaration lists seven outcomes that the DAA are seeking to achieve for people with dementia and their carers. How would you describe your organisation’s role in delivering better outcomes for people with dementia and their carers?

The Suffolk Young Dementia Network allows people who are experiencing Young Onset Dementia to connect with each other. These connections are vital in reducing the isolation that some may feel after diagnosis. Having family members also attend is great for carers to help each other support to their loves ones. The network is run by the 'Younger Persons Navigator' who is specifically trained in young onset dementia, so if anyone would like to discuss anything in particular, there is a dementia friend trained staff member at the meet ups. We are actively offering monthly meet ups all around Suffolk (location and activitiy changes every time). The meet up allows people who attend to try a different activity every time and build up their confidence with different skills. Activities that have been completed so far are; ceramic painting, coffee meet ups, walks, footgolf and a christmas buffet!

2. What are the challenges to delivering these outcomes from the perspective of your organisation?

There can be difficulties getting more numbers to attend the groups as we find there is still a stigma around a 'dementia group'. Especially as it is a young onset group so it typically takes people longer to come to acceptance, understandably. 

2. Actions