The Race Equality Foundation with Public Health England, Faith Action and Friends, Families and Travellers, as member of the Health and Wellbeing Alliance, were commissioned to help undertake a range of activities on dementia.
Black and minority ethnic people experience a number of inequalities related to dementia. This ranges from particular ethnic communities having a higher risk of developing dementia, to more general difficulties for all black and minority ethnic communities in accessing appropriate care and support.
These inequalities vary across communities. African Caribbean communities have greater risk of developing dementia at an early age. Both African Caribbean and South Asian communities have a higher prevalence of dementia than the White British community. The Irish and Jewish communities both have a higher average age, as well as often sharing the experiences of migration and discrimination. Gypsy and Traveller communities can experience extreme barriers to accessing services, and there is growing evidence to show they also develop dementia at an early age.
The events took place to:
- raise awareness of dementia
- explore issues around risk reduction for dementia; and
- explore dementia support for these communities,
The events took place between 29th November 2017 to March 2018 and were aimed at practitioners, individuals and organisations working on dementia.
The National Dementia Action Alliance were consulted as a partner for the report as part of our Dementia Seen and Heard Campaign and members such as Housing Learning and Improvement Network (LIN), Dementia Adventure, Jewish Care and Irish in Britain. You can read the final report here.
Video resources on dementia in BAME communities
NDAA member Health Education England made two films with Dementia Alliance for Culture and Ethnicity and a selection of other partners that highlight specific issues faced by people living with dementia from BAME communities.
Understanding the cultural heritage of individuals living with dementia, enables high quality, safe, person centred care that focuses on the individual rather than the disease, and an understanding of challenges that may be rooted in a person’s cultural background.
The ‘Finding Patience’ films open the door for health and care professionals to start talking about cultural sensitivities that may result in a reluctance to come forward and talk about concerns. It aims to encourage health and care professionals to break down barriers in order to reach people who may otherwise go undiagnosed or struggle in isolation to provide care within family units.
The film aligns to tier 1 (awareness level) dementia training, which aims to; familiarise people with recognising and understanding dementia; support people interacting with those with dementia; and provide people with the knowledge to be able to signpost patients and carers to appropriate support.
Working on Dementia and BAME communities? Let the NDAA know.