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Dementia and seldom heard groups

Please visit our new website nationaldementiaaction.org.uk where you can find updated information on all of our campaigns


In autumn 2017, the Dementia Action Alliance launched ‘From Seldom Heard to Seen & Heard’, a campaign bringing DAA members together for improved outcomes for people living with dementia and their carers who come from seldom heard groups. These communities include:

  • Lesbian, Gay, Bisexual and Transgender + (LGBT)
  • Black, Asian, Minority Ethnic (BAME) communities
  • Young onset dementia
  • Prison population
  • People living in rural communities
  • People with learning disabilities

These are examples, however there are many more seldom heard groups we hope to support through this campaign.

Why Seldom-Heard Groups?

People from seldom heard groups face barriers to accessing good health and social care, which at time fails to meet their needs. Challenges can include a lack of awareness and cultural understanding across health and social care settings. This problem has become more acute as public service budgets have been cut.

Through our diverse membership the DAA is well placed to improve this situation by harnessing the resources and ideas of our members and of other organisations operating across health and social care. 

What will we do?

In June 2017 the DAA hosted a series of evidence gathering roundtables with leading stakeholders involved in delivering care and support of seldom heard groups.  The roundtables covered dementia and learning disabilities, dementia within prison settings and within the LGBT+ community. 

Following these roundtables, a set of recommendations and actions were developed along with a pledge that asks everyone to sign to demonstrate their commitment to this cause.  The campaign was then launched in September 2017 at the DAA Quarterly Meeting held at the Royal College of Nursing, London.

Click here to see the full list of From Seldom Heard to Seen & Heard publications, which includes:

  • Briefing papers
  • Roundtable discussions
  • Recommendations
  • Pledge Form
  • Launch Event papers

How can you get involved?

  • Sign the SHG Pledge Form
  • Commit to a set of actions that your organisation will take to support people affected by dementia from seldom heard groups
  • Share work you're involved with relating to dementia and seldom heard groups
  • Share the campaign with your networks to raise awareness of the challenges faced by seldom heard groups #dementiaseenandheard

If you would like to learn more about the campaign and how you can get involved, get in touch.