Here is a list of resources for carers:
'A Road Less Rocky - Supporting People with Dementia' Carers Trust, Social Policy Research Unit, The University of York, Firefly
A report from Carers Trust has found that carers of people with dementia are not getting the support and advice they often desperately need.
'The Triangle of Care Carers Included: A Guide to Best Practice for Dementia Care' - Carers Trust, Royal College of Nursing
The Triangle of Care is a model for dementia care that supports a partnership approach between the person with dementia (the patient), the staff member and carer. It is designed to ensure that carers are appropriately included and involved in the care of people with dementia, particularly in hospital settings. It is, however, of relevance to all services caring for people with dementia. Available from RCND on 0345 772 6100 (publication code 004 502).
'Supporting employees who are caring for someone with dementia' - Carers UK (March 2014)
'A good life with dementia' - Red & Yellow Care, The Alzheimer's Society (March 2014)
Available at www.redandyellowcare.com or 0203 7000 163 or by email at: firstname.lastname@example.org
'The Dementia Guide' - The Alzheimer's Society
The Dementia Guide is for anyone who has recently been told they have dementia. This could be any type of dementia, such as Alzheimer’s disease, vascular dementia or mixed dementia. It will also be useful to close friends and family of someone with dementia, as it contains information for anyone taking on a caring role.http://www.alzheimers.org.uk or alternatively, phone 0300 303 5933 or email email@example.com and request a copy
'Dementia Information Prescription' - Dementia Web
As Easy As ABC - a practical guide for families living with dementia
Care UK has published a free new guide to help families caring for a loved one living with dementia.
The publication, As Easy as ABC, is based on our philosophy of Activity Based Care and brings together 100 practical suggestions from specialist teams working in care homes across the country.
The guide is perfect for anyone caring for someone in their own home and those who want to make the most of their visits to loved ones who have moved into residential care.
SCIE ebulletin , 8 May 2014
Support for carers. This week's Carers UK conference focused on the important changes underway for health and social care which will affect carers and the services that support them.
SCIE provides a range of resources on carers' issues including: carers' rights; coproduction and involvement of carers; guidance for carers; and advice on choosing care.
Care UK Listen, talk,connect, Communicating with people living with dementia - A guide for carers, relatives and friends
When I meet friends and family members who have loved ones living with dementia, I am frequently asked questions along the lines of “What do I do when…?”, “What can I say to…?”, “How do I act if...?.”
There is no easy answer to any of these questions but there is one simple fact to bear in mind: as people, we are all social beings with a basic need to communicate and, above all, a need to know that what we have said has been heard - and understood. Dementia changes many things about a person, but not this fundamental fact.Listening is key when it comes to
communicating with someone living with dementia. Not feeling listened to, or heard, can be a source of great anxiety and frustration to us all – and dementia will only amplify this. As carers and visitors, we have to listen carefully when we are talking to someone with dementia – and look for clues when the meaning isn’t immediately clear. I also know that,whatever I tell the people who ask me, communicating with loved
ones can be hard at times. I tell them to always remember this: they are not alone. There are some behaviours associated with dementia that means communication will be very challenging some days - no
matter how hard they try and no matter how much they know about the disease. I tell people that they will need to be much more considered and concrete in their language, to avoid any confusion or upsetting misunderstandings. I say that visits generally flow much better when they become more aware of non-verbal communication. I help them to make sure that their body language tallies with their spoken word and I explain how someone living with dementia will read their face for clues, and watch how they act and sit to find a meaning behind their voice.I talk them through some of the more complex aspects of dementia - that people living with the disease often express themselves in a more metaphorical way; that emotionally loaded words such as ‘mum’, ‘dad’ and ‘home’ actually communicates a plethora of meanings, experiences and feelings. From here on in though, I will also suggest that they read this booklet. ‘Listen, talk, connect’ has been put together by colleagues and those with personal experience of caring for loved ones, with one goal: to assist relatives, friends and carers to continue having meaningful conversations and shared moments with anyone living with dementia.My colleagues at Care UK, and I, hope you find this guide useful - and that the hints and tips are easily incorporated into your visits, enabling you to continue to connect with the people who are important to you.
Head of Dementia
To download please cut and paste this link: http://www.careuk.com/sites/default/files/CareUK_Dementia_Guide.pdf