Dementia Pathfinders Community Interest Company

Dementia Pathfinders Community Interest Company delivers education, training, care and support for people living with dementia, family carers and health & social care providers..

Updated:
25 July 2016
Location:
National, West Midlands
Sectors:
Care, Health, Arts, Education Sector, Faith Groups, Local DAA Members, Social Care, Voluntary, Voluntary Sector
Local Alliances:
London Borough of Richmond upon Thames Dementia Action Alliance, Merton Dementia Action Alliance, Kingston Dementia Action Alliance, Sandwell Dementia Action Alliance, Wolverhampton Dementia Action Alliance, Shropshire, Telford & Wrekin Dementia Action Alliance

1. Action Plan

1. The National Dementia Declaration lists seven outcomes that the DAA are seeking to achieve for people with dementia and their carers. How would you describe your organisation’s role in delivering better outcomes for people with dementia and their carers?

Dementia Pathfinders offers training for health and social care professionals. Dementia Pathfinders works with a range of provider organisations from the statutory, private, independent and voluntary sectors and specialises in 'whole systems' approaches that combine direct teaching and training with reflective practice, mentoring and management support, with the aim of embedding learning into practice and improving the quality of care delivered in the care setting. Dementia Pathfinders aims to give a voice to people with dementia, and friends and family members who support them, keeping these people at the heart of everything we do.  People with dementia and family carers inform and shape the content and delivery of our training, and are involved in training delivery as 'experts by experience'. 

Dementia Pathfinders is working in local areas with partner organisations, providing support, information and care for people with dementia and their carers. 

2. What are the challenges to delivering these outcomes from the perspective of your organisation?

(i) The imperative to build capacity in order to maximise the opportunities to expand servcies and develop new approaches. 

(ii) The current financial climate in health and social care is restricting growth.

2. Actions

  • Improve the Skills of the Dementia Care Workforce

    • Dementia Pathfinders will provide vocational level training for frontline care staff in a range of subject areas relevant to dementia care and family carers’ support. 
    • Deliver accredited programmes including leadership programmes.
    • Deliver the QCF 'dementia qualifications', collaborating with accrediting bodies and other training providers.
    • Engage family carers and people with dementia as partners in delivering training.
    • Promote 'whole systems' approaches and encourage commissioning of reflective practice, mentoring and leadership programmes, to underpin culture transformation and skill and knowledge transfer to the care setting. 
    • Support the professional development of dementia trainers by hosting learning networks including the Dementia Education Training Network (DETN) in London
    • Develop a 'validation framework' for dementia trainers, in collaboration with partners.  
    Status:
    Delivery

    2013 - Third Quarter Update

    New member.

  • Hosting the Dementia Roadmap in collaboraton with the Royal College of General Practitioners

    Dementia Pathfinders hosts the Dementia Roadmap www.dementiaroadmap.net on behalf of the Royal College of General Practitioners. Dementia Pathfinders co-ordinates a core team of knowledge specialists to maintain and develop the national resource base of the Dementia Roadmap. The team supports the existing Dementia Roadmap customers and is proactively seeking to engage local Dementia Roadmap subscribers.

    Status:
    Implementation
  • Developing innovative ways to support people with dementia

    Dementia Pathfinders aims to develop innovative ways to support people to live well with dementia in the community, in care homes. Dementia Pathfinders aims to deliver and evaluate therapeutic approaches both for people with dementia and their carers. We aim to use evidence-based practice to promote and support the development and dissemination of these approaches.

    Status:
    Implementation

    2016 - Second Quarter Update

    Dementia Pathfinders is setting up a 'Music and Dementia' group for people with young onset dementia. 

  • To work with St George’s Hospital, Department of Neurology to develop services and provide support group meetings for people with young onset dementia and their families and carers

    Dementia Pathfinders works in collaboration with St George's University Hospitals NHS Foundation Trust to provde support for people living with young onset dementia and familiy members throughout the catchment area: the London boroughs of Kingston, Richmond, Merton, Sutton, Wandsworth & Croydon and the border areas of the adjoining homes counties. This work entais facilitating regular support group meetings for people with dementia and family carers, networking events for professionals, development of services to support people to live well with dementia in the community, educational delivery for health & care staff and community organisations. 

    Status:
    Delivery

    2016 - Second Quarter Update

    Support groups for people with young onset dementia and their families are held at St George's Hospital, London SW17 0QT on a monthly basis. upcoming meeting dates: 12th April 2016, 18th May 2016, 29th June 2016, 27th July 2016. The meetings run from 7.30pm until 9.30pm in The Boardrooms (2nd Floor) Hunter Wing. The meetings are open to anyone diagnosed with dementia at a young age (under 65 years) and their carers and supporters www.youngdementiasupport.london

    2016 - Second Quarter Update

    Delivery

  • To establish a number of community based Cognitive Stimulation Therapy (CST) groups in the borough and to offer CST on an individual basis to people with dementia in their own homes

    Improved quality of life for people with dementia. There is robust research evidence that demonstrated CST intervention can achieve positive outcomes for people ith midl to moderate dementia. 

    Status:
    Being implemented

    2014 - Fourth Quarter Update

    New member

  • Developing 'Dementia Conversations' in partnership with local churches

    To offer 'Dementia Conversations' in partnership with local church communities, to encourage dialogue about the issues that face people living with dementia and spread awareness. Currently offered in the Isle fo Wight and in Altrincham. 

    Status:
    Delivery

    2016 - Second Quarter Update

    This project started in East Cowes, Isle of Wight in the Autumn of 2015. 'Dementia Conversations' sessions are held on a monthly basis at st Jemes' Church, East Cowes. 

    A new 'Dementia Converstions' initaitive at Bowden Vale Methodist Church was started in Spring 2016 and follows a similar model. 

  • To develop therapeutic and educational approaches that meet the needs of people living with young onset dementia and their families.

    To work with the cognitive neurology servcie at St George's University Hospitals NHS Foundation Trust to provide a monthly support group for people diagnosed with dementia at a young age and their family members and carers. 

    Status:
    Delivery

    2016 - Second Quarter Update

    Support Group meetings for peole with young onset dementia and their families are held on a monthly baisis at St George's Hospital. Upcoming dates are: 12th April 2016, 18th May 2016, 29th June 2016, 27th July 2016. The meetings are held in the Hunter Wing (2nd Floor Boardrooms) from 7.30pm until 9.30pm. Open to all people with a diagnosis of dementia at a young age (under 65yers) and familiy carers, friens and supporters. This is a partnership with St George's University Hospitals NHS Foundation Trust www.youngdementiasupport.london