The Life Story Network CIC

We work to improve the quality of care and support received by people with dementia and their carers by working closely with them, care providers, RSL’s, local communities and businesses. Our approach to using narrative practice recognises those things which make a positive difference to us all as unique individuals.

Updated:
1 July 2016
Location:
National
Sectors:
Communication, Health, Care, Voluntary Sector, Housing Sector, Clinical Commissioning Group, Hospitals and Hospital Trusts, Local Authorities, Retail, Schools, Education Sector, Transport Sector, Commissioners Sector
Local Alliances:
Liverpool Dementia Action Alliance

1. Action Plan

1. The National Dementia Declaration lists seven outcomes that the DAA are seeking to achieve for people with dementia and their carers. How would you describe your organisation’s role in delivering better outcomes for people with dementia and their carers?

The Life Story Network (LSN) is a Community Interest Company, which works with a range of partner organisations and individuals to promote the value of using life stories to improve the quality of life and wellbeing of people with dementia and their carers.  The LSN is the only national organisation that offers networking and on-line resources about life story work combined with bespoke training and development in the topic.  Our aim is to enhance the quality of care and support delivered to individuals and communities by promoting Life Story work and by embedding a human-rights based approach. 

Working with the Department of Health, both home and domicilliary care providers, mental health trusts and Housing Associations, we are running a number of programmes desiogned to create dementia friendly communities.

Our unique approach will improve the quality of care people diagnosed with dementia, as well as the level of understanding of those around them.

Life story work is one of the keys to delivering person centred care by placing the individual and their biography at the heart of care and support.

2. What are the challenges to delivering these outcomes from the perspective of your organisation?

Challenges include: A lack of capacity within organisations to release staff for training in narrative practice. Leadership within care organisations to understand that narrative practice will improve their reputation for good care, will lead to better patient and carer experiences, improve staff job satisfaction, reduce sickness and contribute to reduction in use of anti-psychotics Identified funding to ensure training of wide variety of staff and volunteers carry out life story work as part of everyday practice General lack of resources within organisations and local communities, both financial and people.

2. Actions

  • Continue to work with housing organisations on Merseyside

    On Merseyside, we are continuing to work with housing organisations to improve the skills and understanding of their workforce in responding to people with dementia and their family carers to help build community capacity. This work will continue for the foreseeable future and our approach to this sector can be delivered in other areas Nationally.

    Status:
    Being implemented

    2015 - Second Quarter Update

    This work is ongoing and will continue for the foreseeable future.

  • Continue our work with partner organisations to improve transport and the physical environment

    We will continue to engage with the Transport sector with a particular focus on upskilling their workforce in order to establish an appropriate level of knowledge so that they can provide an improved experince for people living with dementia and their carers using the transport network.

    Status:
    Being implemented

    2015 - Second Quarter Update

    This work is ongoing and will continue for the foreseeable future.

  • Continue our support for the Triangle of Care

    We will continue to support the Triangle of Care through our ‘Family Carers Matter’ programme.

    Status:
    Being implemented

    2015 - Second Quarter Update

    This work is ongoing and will continue for the foreseeable future.

  • Continue to Work with Academic Organisations

    Work with academic organisations to grow the evidence base, which supports the use of life story work as part of psycho-social interventions.

    Status:
    Being implemented

    2015 - Second Quarter Update

    This work is ongoing and will continue for the foreseeable future.

  • Continue to Support and Engage with Local Communities

    Provide consultancy and support community engagement to develop dementia friendly and age inclusive communities in an expanding number local communities, building on our work in the North East, North West and West Midlands.

    Status:
    Being implemented

    2015 - Second Quarter Update

    This work is ongoing and will continue for the foreseeable future.

  • Continue to Develop our On-line Resources

    Further develop our free online resources, including ‘Your Stories Matter™ life story portal for people to share their memories and future wishes http://www.lifestorynetwork.org.uk/your-stories-matter/

    Status:
    Being implemented

    2015 - Second Quarter Update

    This work is ongoing and will continue for the foreseeable future.

  • Develop and Host a new National Family Carers Involvement Network

    Following on from the successful Carers Call to Action initiative, we will be working with our partners to develop a new National Family Carers Involvement Network.

    We will work with our partners to ensure that the new Family Carers involvement Network, hosted by Life Story Network, brings benefit and support to as many Family Carers as is possible.

    Status:
    Being implemented

    2015 - Second Quarter Update

    Development is now complete and LSN will continue to host the new network, which is called TIDE, Together In Dementia Everyday.

  • Establish the Newly Developed TIDE Network

    TIDE, Together In Dementia Everyday, is an involvement network that recognises family carers of people with dementia are experts by experience, experts that can play a significant role in supporting other carers, influencing policy and shaping improved responsive local commissioned services. The network, which follows on from the excellent legacy of the DAA Carers Call to Action, will provide a development programme which has been designed by carers to pass on the necessary skills and confidence to other carers finding themselves in a similar situation, so they too can represent their peers and influence key decision and policy makers.

    We will work with our partners to ensure that the new Family Carers involvement Network, hosted by Life Story Network, brings benefit and support to as many Family Carers as is possible.

    More information can be found at http://www.lifestorynetwork.org.uk/tide/

    Status:
    Being implemented

    2015 - Second Quarter Update

    The new TIDE involvement network is now developed and is hosted by LSN on our website.

    http://www.lifestorynetwork.org.uk/tide/

    This will continue to be further developed and rolled out for the foreseeable future.