Beth Britton

Freelance Campaigner, Consultant, Writer and Blogger specialising in issues affecting older people, health and social care and specifically dementia. I am the author of D4Dementia. I also write for Huffington Post and a wide variety of publications both online and in print. Alongside this I undertake public speaking engagements, and provide consultancy services to businesses and individuals needing specialist advice on dementia. My work has been described as "Terrific," "Amazing. REAL story of dementia," "Insightful, heartfelt and truthful," "Moving and inspiring."

Updated:
11 August 2016
Location:
National
Sectors:
Communication, Health, Care

1. Action Plan

1. The National Dementia Declaration lists seven outcomes that the DAA are seeking to achieve for people with dementia and their carers. How would you describe your organisation’s role in delivering better outcomes for people with dementia and their carers?

My role is to raise awareness and understanding of dementia through writing and speaking about my experiences of the disease. My father had vascular dementia for 19 years, and I recognise many of our feelings and aspirations within the NDD. I aim to provide support and advice to people faced with similar situations to those we lived through with my father, inform and educate care professionals and the wider population, promote debate and create improvements in dementia care.

2. What are the challenges to delivering these outcomes from the perspective of your organisation?

The main challenges come from finding willingness within media organisations and society in general to talk more about dementia and prioritise coverage of it. There is a huge amount of negativity and stigma, and sometimes a reluctance to look at what positive dementia care can look like and how we can support people to live well with dementia.

2. Actions

  • Write for publications and organisations to enhance dementia coverage

    Continue to write for organisations I already have a relationship with and source new commissions.

    This action is designed to enhance coverage of dementia in every aspect, including pre-diagnosis to end-of-life care, supporting carers and families, and living well with dementia.

    Status:
    Implementation

    2016 - Second Quarter Update

    Monthly blogs for Huffington Post.

    Article/Blog for Sanctuary Social Work News.

    Blog for Arc Seven Communications as part of their Dementia Awareness Week coverage.

    Blog for Nursing Older People - Condemning ageism following the EU Referendum result.

    2016 - First Quarter Update

    Monthly blogs for Huffington Post.

    Article/Blog for Sanctuary Social Work News.

    (Action reduced due to maternity break)

    2015 - Fourth Quarter Update

    Monthly blogs for Huffington Post.

    Blog for Dementia UK.

    Blog for Retire Savvy.

    (Action reduced due to maternity break)

    2015 - Third Quarter Update

    Monthly blogs for Huffington Post.

    Blog for CAP Awards - Excellence in care home catering and housekeeping.

    2015 - Second Quarter Update

    Monthly blogs for Huffington Post.

    'Dementia, Culture and Ethnicity' published by JKP - I contributed to Chapter 12.

    Article for The Guardian - Shadow CQC Inspection.

    Article for Mears Group - Homecare.

    Blog for Rhapsody in Words - Review of 'Still Alice'.

    Blog for Young Dementia UK - LD and Dementia.

    2015 - First Quarter Update

    Monthly blogs for Huffington Post.

    Blog for BRACE.

    Contribution to the Dementia Women project.

    I have signed up to the Dementia Words Matter Call to Action.

    2014 - Fourth Quarter Update

    Monthly blogs for Huffington Post.

    Blog for 'The Age Page'.

    2014 - Third Quarter Update

    Monthly blogs for Huffington Post.

    Article for Learning Disability Today - LD/Dementia

    Article for JCN - Tips for community nurses when they are visiting people with dementia and their carers.

    2014 - Second Quarter Update

    Monthly blogs for Huffington Post.

    'Creating Culturally Appropriate Outside Spaces and Experiences for People with Dementia' published by JKP - I have contributed Chapter 1.

    Article for Nursing Times.

    Blog for Independent Age.

    Blog for Memory Bank.

    Blog for Carewatch.

    2014 - First Quarter Update

    Monthly blogs for Huffington Post.

    Article for NRC promoting outdoor activity.

    Article for BRACE.

    Blog for Gracewell Healthcare.

    2013 - Fourth Quarter Update

    Monthly blogs for Huffington Post.

    2 articles for The Guardian - 1 related to dementia care, the other related to the G8 Dementia Summit.

    Blog for Alzheimer's Research.

    2013 - Third Quarter Update

    Monthly blogs for Huffington Post.

    3 articles for Yahoo Lifestyle - All related to dementia

  • Write and publicise dementia blog

    Continue to write my blog, D4Dementia, and publicise it widely to bring it to the attention of families and professionals alike.

    Status:
    Implementation

    2016 - Second Quarter Update

    Ongoing - I currently write D4Dementia fortnightly.

    2016 - First Quarter Update

    Ongoing - I currently write D4Dementia fortnightly.

    2015 - Fourth Quarter Update

    Ongoing - I currently write D4Dementia fortnightly.

    2015 - Third Quarter Update

    Ongoing - I currently write D4Dementia fortnightly.

    2015 - Second Quarter Update

    Ongoing - I currently write D4Dementia fortnightly.

    2015 - First Quarter Update

    Ongoing - I currently write D4Dementia fortnightly.

    2014 - Fourth Quarter Update

    Ongoing - I currently write D4Dementia fortnightly.

    2014 - Third Quarter Update

    Ongoing - I currently write D4Dementia fortnightly.

    2014 - Second Quarter Update

    Ongoing - I currently write D4Dementia fortnightly, although within this quarter I have posted 2 weekly series to co-incide with Dementia Awareness Week in May and Carers Week in June.

    2014 - First Quarter Update

    Ongoing - I now write D4Dementia fortnightly

    2013 - Fourth Quarter Update

    Ongoing - I currently write D4Dementia weekly

    2013 - Third Quarter Update

    Ongoing - I currently write D4Dementia weekly

  • Use social media channels to raise awareness of dementia

    Continue to use my social media channels to raise awareness of dementia and publicise new content/developments in my work, and the work of others, to as wide an audience as possible.

    Status:
    Implementation

    2016 - Second Quarter Update

    Actively using twitter (@bethyb1886) and my D4Dementia facebook page to publisise my work and the work of others in relation to dementia, health and social care.

    2016 - First Quarter Update

    Actively using twitter (@bethyb1886) and my D4Dementia facebook page to publisise my work and the work of others in relation to dementia, health and social care.

    2015 - Fourth Quarter Update

    Actively using twitter (@bethyb1886) and my D4Dementia facebook page to publisise my work and the work of others in relation to dementia, health and social care.

    2015 - Third Quarter Update

    Actively using twitter (@bethyb1886) and my D4Dementia facebook page to publisise my work and the work of others in relation to dementia, health and social care.

    2015 - Second Quarter Update

    Actively using twitter (@bethyb1886) and my D4Dementia facebook page to publisise my work and the work of others in relation to dementia, health and social care.

    2015 - First Quarter Update

    Actively using twitter (@bethyb1886) and my D4Dementia facebook page to publisise my work and the work of others in relation to dementia, health and social care.

    2014 - Fourth Quarter Update

    Actively using twitter (@bethyb1886) and my D4Dementia facebook page to publisise my work and the work of others in relation to dementia, health and social care.

    2014 - Third Quarter Update

    Actively using twitter (@bethyb1886) and my D4Dementia facebook page to publisise my work and the work of others in relation to dementia, health and social care.

    2014 - Second Quarter Update

    Actively using twitter (@bethyb1886) and my D4Dementia facebook page to publisise my work and the work of others in relation to dementia, health and social care.

    2014 - First Quarter Update

    Actively using twitter (@bethyb1886) and my D4Dementia facebook page to publisise my work and the work of others in relation to dementia, health and social care.

    2013 - Fourth Quarter Update

    Actively using twitter (@bethyb1886) and my D4Dementia facebook page to publisise my work and the work of others in relation to dementia, health and social care.

    2013 - Third Quarter Update

    Actively using twitter (@bethyb1886) and my D4Dementia facebook page to publisise my work and the work of others in relation to dementia, health and social care.

  • Offer support to families affected by dementia

    Continue to offer support to families affected by dementia. This includes responding to enquiries through my social media channels and my website, and signposting to appropriate services.

    Status:
    Implementation

    2016 - Second Quarter Update

    I try to respond to enquiries from families in a timely way, either through my social media channels (twitter and facebook) or my website. This often involves signposting to other organisations, many of whom are DAA members.

    This quarter I have been a panellist for the Carers Trust 'Care Act for Carers - One Year On' Commission, looking at how the Care Act has worked for family carers since implementation. This has important implications for families affected by dementia.

    I continue to work with MacIntyre's Dementia Project as a consultant - this role includes working with, and supporting, families affected by dementia.

    I have also contributed to the Department of Health's consultation on the new Carers Strategy.

    2016 - First Quarter Update

    I try to respond to enquiries from families in a timely way, either through my social media channels (twitter and facebook) or my website. This often involves signposting to other organisations, many of whom are DAA members.

    This quarter I have been a panellist for the Carers Trust 'Care Act for Carers - One Year On' Commission, looking at how the Care Act has worked for family carers since implementation. This has important implications for families affected by dementia.

    I am also delighted that a consultancy client of mine, MacIntyre, have been awarded a 3-year Innovation Grant from the Department of Health to produce resources to support people who have a learning disability and are living with dementia, or are at risk of developing dementia. The experiences of families will be crucial in this work.

    2015 - Fourth Quarter Update

    I try to respond to enquiries from families in a timely way, either through my social media channels (twitter and facebook) or my website. This often involves signposting to other organisations, many of whom are DAA members.

    (Action reduced due to maternity break)

    2015 - Third Quarter Update

    I try to respond to enquiries from families in a timely way, either through my social media channels (twitter and facebook) or my website. This often involves signposting to other organisations, many of whom are DAA members.

    This quarter I have been actively involved in promoting the Dementia Words Matter Call to Action, including attending a meeting in London in July. I also supported World Alzheimer's Month and World Alzheimer's Day through blogging and social media.

    2015 - Second Quarter Update

    I try to respond to enquiries from families in a timely way, either through my social media channels (twitter and facebook) or my website. This often involves signposting to other organisations, many of whom are DAA members.

    This quarter I supported Care Home Open Day, where I was fortunate to chat to families whose loved ones were living in the care home I visited. I also had the pleasure of interviewing a gentleman living with younger-onset dementia and his wife for MacInytre's Dementia Special Interest Group meeting.

    I have been actively involved in promoting the Dementia Words Matter Call to Action.

    2015 - First Quarter Update

    I try to respond to enquiries from families in a timely way, either through my social media channels (twitter and facebook) or my website. This often involves signposting to other organisations, many of whom are DAA members.

    This quarter I have taken part in a panel discussion for a King's Fund event that included audience members who have personal experience of dementia. I have also supported Dementia UK's Admiral Nurses through 'Time for a Cuppa', and been interviewed by a journalism student who is writing about how caring for a loved one with dementia affects younger people.

    I have signed up to the Dementia Words Matter Call to Action.

    2014 - Fourth Quarter Update

    I try to respond to enquiries from families in a timely way, either through my social media channels (twitter and facebook) or my website. This often involves signposting to other organisations, many of whom are DAA members.

    Highlights this quarter have included helping to organise and speaking at a dementia conference for BRACE that drew a wide-audience from across the South West, including many families affected by dementia.

    I was also involved in the BBC's Dementia Week coverage and I spoke at the Alzheimer Europe conference about my dad's end-of-life care.

    2014 - Third Quarter Update

    I try to respond to enquiries from families in a timely way, either through my social media channels (twitter and facebook) or my website. This often involves signposting to other organisations, many of whom are DAA members.

    A highlight this quarter has been my participation in a webchat for Carers Trust specifically for family carers of people who are living with dementia.

    2014 - Second Quarter Update

    I try to respond to enquiries from families in a timely way, either through my social media channels (twitter and facebook) or my website. This often involves signposting to other organisations, many of whom are DAA members.

    In this quarter I was involved in a panel discussion for DAA CC2A at Alzheimer's Show (London).

    I have also been interviewed by 'The Wireless' from Age UK, to help their listeners understand more about dementia, and Carehome.co.uk and Homecare.co.uk have featured an interview with me where I gave tips to help carers cope and advice for families on looking for a care home for a loved one.

    2014 - First Quarter Update

    I try to respond to enquiries from families in a timely way, either through my social media channels (twitter and facebook) or my website. This often involves signposting to other organisations, many of whom are DAA members.

    My personal story of my dad's dementia was featured in Best Magazine's coverage of dementia in this quarter. I have also supported Dementia UK's Admiral Nurses through 'Time for a Cuppa'.

    I have held my first Dementia Friends session.

    My G8 Dementia Summit film continues to receive positive feedback from families affected by dementia.

    2013 - Fourth Quarter Update

    I try to respond to enquiries from families in a timely way, either through my social media channels (twitter and facebook) or my website. This often involves signposting to other organisations, many of whom are DAA members.

    Delighted to have helped to launch DAA CC2A. I have also participated in a Dementia Debate for BRACE that drew a wide-audience from across the South West, including many families affected by dementia.

    In this quarter, many families have found that my film for the G8 Dementia Summit  struck a chord with their own experiences.

    2013 - Third Quarter Update

    I try to respond to enquiries from families in a timely way, either through my social media channels (twitter and facebook) or my website. This often involves signposting to other organisations, many of whom are DAA members.

    I participated in a 'Memory Walk' to raise funds for Alzheimer's Society and their vital work to support families.

  • Build relationships with professionals

    Continue to build relationships with professionals to enhance the care they provide.

    Status:
    Implementation

    2016 - Second Quarter Update

    I continue to build relationships with professionals though my writing, blogging and social media, and particularly through my consultancy work, which regularly brings me into contact with professionals from many different backgrounds.

    Highlights this quarter include my work as a consultant on MacIntyre's 3-year Dementia Project, and working with other consultancy clients who are operating on the front-line of social care services. In addition, my work as a panellist for Carers Trust on their 'Care Act for Carers - One Year On' Commission has brought me into contact with professionals from a wide-range of disciplines.

    2016 - First Quarter Update

    I continue to build relationships with professionals though my writing, blogging and social media, and particularly through my consultancy work, which regularly brings me into contact with professionals from many different backgrounds.

    This quarter I have spent time working with consultancy clients who are operating on the front-line of social care services.

    (Action reduced due to maternity break)

    2015 - Fourth Quarter Update

    I continue to build relationships with professionals though writing, blogging and social media, as well as keeping in touch with existing consultancy clients.

    (Action reduced due to maternity break)

    2015 - Third Quarter Update

    I continue to build relationships with professionals though my campaigning work (speaking at dementia-related events), writing and blogging, and particularly through my consultancy work, which regularly brings me into contact with professionals from many different backgrounds.

    This quarter I spent a lot of time working with consultancy clients who are operating on the front-line of social care services.

    2015 - Second Quarter Update

    I continue to build relationships with professionals though my campaigning work (speaking at dementia-related events), writing and blogging, and particularly through my consultancy work, which regularly brings me into contact with professionals from many different backgrounds.

    This quarter I was involved in a Care England/ITN Studio debate, and I spoke at conferences for the RCN/Care England (Integration) and Bucks New University (Safeguarding). I also spoke at CQC's Adult Social Care Provider Involvement in the New Care Models Programme Roundtable.

    2015 - First Quarter Update

    I continue to build relationships with professionals though my campaigning work (speaking at dementia-related events), writing and blogging, and particularly through my consultancy work, which regularly brings me into contact with professionals from many different backgrounds.

    At the beginning of this quarter I became a member of the Standing Commission on Carers.

    I was also involved in the CQC annoucement on surveillance information.

    2014 - Fourth Quarter Update

    I continue to build relationships with professionals though my campaigning work (speaking at dementia-related events), writing and blogging, and particularly through my consultancy work, which regularly brings me into contact with professionals from many different backgrounds.

    A highlight this quarter has been training GP's to help them respond more positively and pro-actively to people who are living with dementia and their families.

    2014 - Third Quarter Update

    I continue to build relationships with professionals though my campaigning work (speaking at dementia-related events), writing and blogging, and particularly through my consultancy work, which regularly brings me into contact with professionals from many different backgrounds.

    In this quarter I was involved in the CQC/DH announcement on Special Measures for Adult Social Care. I have also been interviewed by The Guardian.

    2014 - Second Quarter Update

    I continue to build relationships with professionals though my campaigning work (speaking at dementia-related events), writing and blogging, and particularly through my consultancy work, which regularly brings me into contact with professionals from many different backgrounds.

    A particular highlight in this quarter has been the positive responses from professionals to my daily blogs for Dementia Awareness Week and Carers Week.

    Also delighted to have had positive responses from professionals to my presentation at Health+Care and also the film I have made for Care England.

    I was fortunate this month to have an exclusive tour of Birmingham City Hospital's Nuclear Department and meet the professionals who work there.

    2014 - First Quarter Update

    I continue to build relationships with professionals though my campaigning work (speaking at dementia-related events), writing and blogging, and particularly through my consultancy work, which regularly brings me into contact with professionals from many different backgrounds.

    I am particularly pleased to be building relationships with LD professionals through a consultancy project.

    Speaking at NHS Expo was a highlight in this quarter.

    My G8 Dementia Summit film continues to receive positive feedback.

    2013 - Fourth Quarter Update

    I continue to build relationships with professionals though my campaigning work (speaking at dementia-related events), writing and blogging, and particularly through my consultancy work, which regularly brings me into contact with professionals from many different backgrounds.

    A particular highlight in this quarter has been how professionals from all areas of health and social care have responded so positively to the film I made for the G8 Dementia Summit.

    2013 - Third Quarter Update

    I continue to build relationships with professionals though my campaigning work (speaking at dementia-related events), writing and blogging, and particularly through my consultancy work, which regularly brings me into contact with professionals from many different backgrounds.

  • Contribute to strategic dementia-related work

    Make links with stakeholder organisations and inform their work with my personal experiences, and my experiences from my wider work that incorporates contact with families who are affected by dementia and professionals who provide health and social care.

    Status:
    Implementation

    2016 - Second Quarter Update

    I am now part of the Department of Health's Independent Advisory Group on Carers. I have also contributed to the Department of Health's consultation on the new Carers Strategy.

    I have joined the DAA Communications Advisory Group, and recommended DAA to a specialist PR/Communications Agency.

    2016 - First Quarter Update

    Following my 2014 First Quarter Update regarding working with the Department of Health Post-Diagnosis Support Working Group, I am a signatory on the Department of Health Dementia Post-Diagnostic Care and Support Declaration published in January 2016.

    In addition, following my 2015 First Quarter Update regarding my role on ICHOM's Dementia Working Group, ICHOM (International Consortium for Health Outcomes Measurement) published their 'Standard Set for Dementia' in February 2016.

    (Action reduced due to maternity break)

    2015 - Fourth Quarter Update

    Following my 2014 First Quarter Update regarding my role on the NCCSC (NICE/SCIE) Guideline Committee for the Social Care of Older People with Multiple Long-Term Conditions, this guidance was published in Nov 2015.

    (Action reduced due to maternity break)

    2015 - Third Quarter Update

    I have undertaken 2 MSNAP Peer-Reviews of memory services in this quarter.

    Other project work as detailed in previous quarter updates continues.

    2015 - Second Quarter Update

    I am now a member of the Engage and Create Advisory Board.

    Other project work as detailed in previous quarter updates continues.

    2015 - First Quarter Update

    I have been appointed as a member of the Standing Commission on Carers.

    I am a member of a Dementia Working Group with ICHOM.

    Other project work as detailed in previous quarter updates continues.

    2014 - Fourth Quarter Update

    My D4Dementia blog was shortlisted for the 'Older People in the Media' Awards 2014.

    Other project work as detailed in previous quarter updates continues.

    2014 - Third Quarter Update

    I have been interviewed by The Guardian.

    Other project work as detailed in previous quarter updates continues.

    2014 - Second Quarter Update

    I have been approved as an MSNAP (Memory Service National Accreditation Programme) Peer Reviewer.

    I have helped to launch the PHE Dementia Intelligence Network, I attended the G8 Global Dementia Legacy Events and I have made a film for Care England.

    Other project work as detailed in previous quarter updates continues.

    2014 - First Quarter Update

    I am now a member of the NCCSC (NICE/SCIE) Guideline Committee for the Social Care of Older People with Multiple Long-Term Conditions.

    I am also working with DH (Post-diagnosis Support Working Group), PHE (Dementia Expert Reference Group) and CQC (Adult Social Care Co-Production Group).

    2013 - Fourth Quarter Update

    I attended the G8 Dementia Summit and made a film for the Summit.

    I am now an Ambassador for BRACE, and was part of the panel for their Dementia Debate.

    In this quarter I won 'Best Independent Voice on Older People's Issues' at the Older People in the Media Awards.

    2013 - Third Quarter Update

    I attended the G8 Dementia Summit stakeholder workshop.