Dementia UK

Dementia UK provides specialist dementia support for families through our Admiral Nurse service. When things get challenging or difficult for people with dementia and their families, Admiral Nurses work alongside them, giving the one-to-one support, expert guidance and practical solutions people need. The unique dementia expertise and experience an Admiral Nurse brings is a lifeline–it helps everyone in the family to live more positively with dementia in the present, and to face the challenges of tomorrow with more confidence and less fear.

Updated:
20 July 2017
Location:
East Midlands
Sectors:
Voluntary Sector
Local Alliances:
Derbyshire Dementia Action Alliance , Nottinghamshire Dementia Action Alliance

1. Action Plan

1. The National Dementia Declaration lists seven outcomes that the DAA are seeking to achieve for people with dementia and their carers. How would you describe your organisation’s role in delivering better outcomes for people with dementia and their carers?

Dementia UK aims to improve the quality of life for families living with the effects of dementia through Admiral Nurses (specialist dementia nurses) who work closely with families living with the effects of dementia. They provide psychological support, expert advice and information to help families understand and deal with their thoughts, feelings and behaviour and to adapt to the changing situation. Admiral Nurses seek to improve the quality of life for people living with dementia and their families by using a range of interventions to help people live positively with the condition and to develop skills to improve communication and maintain relationships. Admiral Nurses also uniquely join up different parts of the health and social care system and enable the needs of family carers and people with dementia to be addressed in a coordinated way. They provide consultancy and education to professionals to model best practice and improve dementia care in a variety of care settings.

2. What are the challenges to delivering these outcomes from the perspective of your organisation?

There are currently 195 Admiral Nurses in the UK and this leads to a postcode effect with families not getting the specialist advice and support at a time when they need it. As NHS Trusts are finding their funding decreasing in real terms this has caused long established Admiral Nurse Teams to be reduced in number due to cost saving measures and none replacement when a nurse retires or leaves the service. Dementia UK is committed to meeting the National Dementia Declaration and will continue to develop Admiral Nurse posts in a range of settings to ensure families living with dementia get the specialist advice and support they deserve.

2. Actions

  • Increase Admiral Nurse coverage across the UK

    Continuing to promote and resource the establishment of Admiral Nurse posts, negotiating with health and social care commissioners, identifying appropriate provider 'hosts', levering investment and articulating the business benefits of the model. 

    Diversifying and developing variations to the model, to address specific and specialist needs for example: end of life care- including partnership working with hospices; primary care approaches- to improve identification, uptake and early stage interventions acute hospital consultancy- to improve outcomes for people with dementia following admission and on discharge developing and expanding the independent care provider model of Admiral Nursing supporting families with the transition from community into long-term care placement. 

    Increase the capacity of Dementia UK’s national helpline to help more people. Our helpline is now called “Admiral Nurse Dementia Helpline” the contact number remains the same 0800 888 6678.

    Status:
    Being implemented

    2017 - Second Quarter Update

    New Member

  • Raise awareness and understanding of Admiral Nursing

    Raising awareness and understanding of Admiral Nursing throughout the UK will enable the charity to further develop services and support.

    We will work closely with our supporters and other key stakeholders to highlight the unique dementia expertise and experience an Admiral Nurse brings to families facing dementia and how it fits with other dementia services.

    This will involve a combination of marketing campaigns and fundraising initiatives.

    Status:
    Being implemented

    2017 - Second Quarter Update

    New Member

  • Provide robust evidence for the effectiveness of Admiral Nursing

    We are also working on building the evidence base for Admiral Nursing by active engagement in audit, evaluation and research.

    We will continue to link with academic bodies, providing practice support and development for existing Admiral Nurses and offering educational pathways for aspiring nurses; strengthening the evidence base that underpins Admiral Nursing and building research capacity.  We will also offer leadership by engaging Admiral Nurses in practice in the field in leadership initiatives.

    Supporting the work of 'Special Interest Groups' exploring the issues, and the potential of Admiral Nurse roles, in relation to the needs of under-provided for client groups, or developing specific clinical approaches. Current special interest groups include: Palliative and End-of-Life Care; Culture and Ethnicity; family-centered interventions within care homes.

    Dementia UK would seek to establish further special interest groups to explore additional subject areas such as learning disability and young onset dementia.

    Status:
    Being implemented

    2017 - Second Quarter Update

    New Member