Department of Health

On 21 February 2015, the Prime Minister's Challenge on Dementia 2020 was launched. The 2020 Challenge is an aspirational document, which builds on the achievements of the Prime Minister's Challenge on Dementia 2012-15, and aims to identify what needs to be done to ensure that dementia care, support, awareness and research are transformed by 2020.

Updated:
10 February 2016
Location:
National
Sectors:
Health, Care

1. Action Plan

1. The National Dementia Declaration lists seven outcomes that the DAA are seeking to achieve for people with dementia and their carers. How would you describe your organisation’s role in delivering better outcomes for people with dementia and their carers?

On 21 February 2015, the Prime Minister's Challenge on Dementia 2020 was launched.  The 2020 Challenge is an aspirational document, which builds on the achievements of the Prime Minister's Challenge on Dementia 2012-15, and aims to identify what needs to be done to ensure that dementia care, support, awareness and research are transformed by 2020.

The main aspirations set out in the 2020 Challenge include:

Funding for dementia research on track to be doubled by 2025;In every part of the country people with dementia having equal access to diagnosis;To reduce the national average wait for an initial assessment for dementia to six weeks;Every person diagnosed with dementia having meaningful care following their diagnosis, which supports them and those around them;All NHS staff having received training on dementia appropriate to their role and an expectation that social care providers provide appropriate training to all relevant staff;Cures or disease modifying therapies on track to exist by 2025.

The visionary document does not mandate actions, or make spending commitments.  What happens in the five years to 2020 will be determined by the next government in the context of the Spending Review.

2. What are the challenges to delivering these outcomes from the perspective of your organisation?

Dementia has become one of the most important health and care issues of our time.  In England, it is estimated that around 676,000 people have dementia and this number is set to double in the next 30 years.  There are 540,000 carers of people with dementia in England and it is estimated that one in three people will care for a person with dementia in their lifetime.  Dementia has, and will continue to have, a significant impact on people living with the condition, their carers, families and society more generally.

The Department of Health's work centres around three strategic objectives - better health and well-being for all, better care for all and better value for all.  In relation to dementia, this means ensuring that public funds are used efficiently and effectively to provide health and social care services which meet the needs of people with dementia and their carers.

2. Actions

  • Consultation with partner organisations

    Work in consultation with partner organisations to identify key outcomes which people with dementia and their carers expect.  This work will feed into the consultation on Transparency in outcomes - a framework for the NHS  and the Department's "zero-based review" of social care data collection.

    Status:
    Delivery

    2012 - Second Quarter Update

    The Department has worked with the General Medical Council (GMC) to refresh the GMC’s prescribing guidance for doctors. The GMC has consulted on draft guidance which specifically includes the issue of antipsychotic prescribing and expects to publish the finalised version in 2012. 

    2012 - First Quarter Update

    The Department has worked with the General Medical Council (GMC) to refresh the GMC’s prescribing guidance for doctors. The GMC has consulted on draft guidance which specifically includes the issue of antipsychotic prescribing and expects to publish the finalised version in 2012.

  • Professor Alistair Burns

    The appointment of Professor Alistair Burns as the first National Clinical Director for Dementia to promote clinical and professional engagement in the design and management of services.

    Status:
  • NHS National Quality Board

    The NHS National Quality Board is looking at the dementia care pathway and ways to support improved commissioning, workforce capability and better quality data.

    Status:
    Implementation
  • NICE Quality Standards

    The NICE Quality Standards in Dementia Care were launched in June 2010.  The Department is working with NICE and the National Quality Board to ensure harmonisation of the Standards with the National Dementia Strategy.

    Status:
    Delivery
  • National Dementia Champions

    The appointment of three National Dementia Champions for the NHS, the independent sector and social care, who will: provide leadership at local level; encourage and embed delivery at all levels; and support local accountability.

    Status:
    Delivery

    2012 - Second Quarter Update

    A Champion Group has been established for each area, bringing together key leaders and organisations from across health, social care, the voluntary sector and industry to support delivery of the commitments in the Challenge and to mobilise wider engagement across society. The Champion Groups will report their progress to the Prime Minister in September 2012 and March 2013.

  • Reducing the use of antipsychotic medication

    Reducing the use of antipsychotic medication - the National Clinical Director for Dementia is leading the work to implement the recommendations in the report into the over-prescribing of anti-psychotic medication, with the support of an Advisory Group.

    Status:
  • NHS Operating Framework

    The revised NHS Operating Framework for 2010/11 highlights that the NHS and its partners must give a greater priority to dementia.  Local organisations will be expected to publish how they are delivering on quality outcomes so that they can be held to account by local people.

    Status:
    Delivery

    2012 - Third Quarter Update

    To support the national dementia CQUIN goal to improve awareness and diagnosis of dementia in an acute hospital setting, the Department of Health has established a new data collection. Data is currently being submitted by NHS trusts and will be published in due course. On 15 October 2012 there will be a national learning event to assess implementation of the CQUIN this year and to look at how we can develop the CQUIN next year to include a measure of quality. The call to action on dementia care in acute hospitals will also be formally launched at the event on 15 October. The goal of the call to action is that by 31 March 2013 every hospital in England will be committed to becoming a dementia friendly hospital.

    2012 - Second Quarter Update

    Guidance for the new dementia CQUIN goal to improve awareness and diagnosis of dementia in an acute hospital setting was finalised during the quarter for publication at the beginning of May. The CQUIN came into operation on 1 April 2012 and will be supported by a new data collection. In addition to the CQUIN, the Department is working with the NHS Institute on the development of a call to action on dementia care in acute hospitals.

    2012 - First Quarter Update

    The NHS Operating Framework 2012/13 also announced the Dementia CQUIN goal to improve awareness and diagnosis of dementia in an acute hospital setting. The new national goal will be measured by three indicators relating to the screening, risk assessment and referral for specialist diagnosis of people aged over 75 who are admitted to hospital.DH will be publishing guidance to support the CQUIN goal shortly.

  • Comprehensive commissioning pack

    Developing a comprehensive commissioning pack to support local commissioners to deliver improved services for people with dementia.

    Status:
    Planning
  • Workforce Advisory Group

    The establishment of a Workforce Advisory Group, chaired by the National Clinical Director, to deliver objective 13 of the Strategy - an informed and effective workforce for people with dementia.

    Status:
    Implementation
  • Substantial funding for health research

    The Department provides substantial funding for health research, through the National Institute for Health Research (NIHR) and the Policy Research Programme (PRP), which is available to support high quality research in all areas of health science, including dementia.

    Status:
    Delivery

    2012 - Third Quarter Update

    On 9 July 2012, up to £13m funding was made available through the ESRC/NIHR call for research proposals “Dementia: prevention, intervention and care”. Further details of the call can be found on the ESRC Funding Opportunities page at http://www.esrc.ac.uk/funding-andguidance/funding-opportunities/21219/dementia-initiative.aspx

  • Ministerial Advisory Group

    A time-limited Ministerial Advisory Group on Dementia Research (MAGDR) has been established, bringing together the main bodies with an interest in dementia research.  The aim of the Group is to suggest ways to increase the volume, quality and impact of dementia research.

    Status:
  • Demonstrator Site Programme

    Support for a Demonstrator Site Programme to test models of delivery for the role of dementia adviser and for peer support networks.

    Status:
    Planning
  • National Audit of Dementia Services

    A National Audit of Dementia Services commissioned from the NHS Information Centre.  The initial audit findings are expected to be available in autumn 2010 and will help local areas to prioritise areas for action.

    Status:
    Delivery
  • Development of a Good Practice Compendium

    Development of a Good Practice Compendium, which is accessible online via the Dementia Information Portal, aimed at bringing together examples in improving dementia care from across the regions.

    Status:
    Planning
  • Resource guide on end of life care

    A resource guide on end of life care for people with dementia has been produced for health and social care professionals which provides links to information sources, resources and good practice. 

    Status:
    Delivery