MacIntyre Charity

MacIntyre is a national charity set up in 1966 by the parents of a severely disabled child. MacIntyre now provides a wide range of services for over 1000 children, young people and adults. At MacIntyre, we believe in giving each and every person a life that makes sense to them, with a level and style of support of their choosing. We recognise that people experience our behaviours not our values and have developed "Great Interactions" which is a skilled way of working in practice. Great Interactions result in good outcomes for people we support. MacIntyre has recently received an Innovation Grant from the DoH for a 3 year project about people with a learning disability who have dementia or are at risk of developing dementia.

Updated:
31 March 2017
Location:
National
Sectors:
Care, Charity, Children Young People and Students, Clinical Commissioning Group, Communication, Community organisations, Domiciliary Care, Education Sector, Health, Schools, Social Care

1. Action Plan

1. The National Dementia Declaration lists seven outcomes that the DAA are seeking to achieve for people with dementia and their carers. How would you describe your organisation’s role in delivering better outcomes for people with dementia and their carers?

MacIntyre has been awarded a grant from the Department of Health for a 3 year project about people with a learning disability and dementia. The MacIntyre Dementia Project has three aims:

to raise awareness of dementia among people with a learning disability, their friends and family and professionalsto ensure people with a learning disability receive a timely diagnosis of dementiato provide better care and support for people with a learning disability living with or at risk of dementia

These aims correlate with the seven outcomes that the Dementia Action Alliance has identified for people with dementia.  The project provides a focus and continued development for all the work MacIntyre has been doing to support people with a learning disability as they get older.

To achieve these aims we will create:

online and hard copies of resources that will support a timely diagnosis of dementialearning opportunities for staff, particularly support staff, to help them provide better care and support for people with a learning disability living with or at risk of dementiaa portfolio of good practice to disseminate to other interested organisations.

2. What are the challenges to delivering these outcomes from the perspective of your organisation?

People with a learning disability have a greater risk of developing dementia than those who do not have a learning disability. These are a group of people who are often marginalised and do not receive an equitable health care service.

Awareness of the increased risks for people with a learning disability to develop dementia is limited among both the general population but also within health and social care.

There is limited information available for people with a learning disability to understand the risks to themselves and also about the condition itself. 

2. Actions

  • Raise awareness of dementia among people with a learning disability, their families, friends

    *To create a library of resources about dementia, covering many topics and in a range of formats

    *to receive feedback on these resources and make any ammendments based on the feedback to ensure the resources are as effective as possible

    *to provide learning for staff as a suite of e-learning modules to provide knowledge and practical advice

    *to take advantage of all communications and events to raise awareness of dementia and people with a learning disability

    Status:
    Being implemented

    2016 - Third Quarter Update

    New member August 2016

  • Help people with a learning disability to receive a timely diagnosis of dementia

    Raise awareness of the increased risks of dementia for people with a learning disability including early signs of dementia and the behaviour that may be observed; provide information about "diagnostic overshadowing" when signs are attributed to the learning disability; treatable health conditions are treated; create an innovative tool to support diagnosis; provide easy read information for people with a learning disability to ensure they are involved in decision making

    Status:
    Being implemented

    2016 - Third Quarter Update

    New member August 2016

  • Providing better support and care for people with a learning disability living with or at risk of dementia

    * to create a range of resources in different formats which address a wide scope of topics

    * to use the "5 ways to wellbeing" to promote wellbeing for everyone, including an outcome measure and information on wellbeing

    *to promote living well with dementia through personal stories and shared experiences

    *the on going MacIntyre Dementia Special Interest Group for all staff for peer support, to share ideas, be solution focused and network opportunities

    *to ensure people are at the centre of their support at all times using person centred approaches

    *to consult with a wide audience to learn what is working and not working and identify actions

    Status:
    Being implemented

    2016 - Third Quarter Update

    New member August 2016