Katey Twyford

I do not represent an organisation, although I am a doctoral student at the University of Sheffield. My research is into the extra care housing and its appropriateness for individuals with dementia.

Updated:
10 August 2017
Location:
East Midlands
Sectors:
Education Sector
Local Alliances:
Derbyshire Dementia Action Alliance

1. Action Plan

1. The National Dementia Declaration lists seven outcomes that the DAA are seeking to achieve for people with dementia and their carers. How would you describe your organisation’s role in delivering better outcomes for people with dementia and their carers?

The research i am undertaking will contribute to how best housing organisations and local authorities can meet the 7 I statements in relation to individuals with dementia and their families who may be considering extra care (or already in extra care) as an accommodation care and support  option.  In particular, my research will involve individuals with dementia and their families and will fully explain what the research aims to do in relation to the seventh I statement.  (It is currently being submitted for approval by the appropriate ethics committees.)

2. What are the challenges to delivering these outcomes from the perspective of your organisation?

The challenge from the perspective of my research is how best to ensure that individuals with dementia and their families are enabled to contribute their expert knowledge and lived experiences to the research.

2. Actions

  • Darley Dale Reading and Discussion Group

    A reading and discussion group for people with memory problems has been set up at Darley Dale, at the Meadow View Community Care Centre.  It is run by volunteers under the umbrella of Derbyshire Carers group.  It meets on the last Thursday of every month.  

    Status:
    Delivery

    2017 - Second Quarter Update

    The group has been running since February 2017. Funding has just been secured that will enable the group to set up a second venue and meeting in the Derbyshire Dales area. It is intende the second group will be be running by December 2017 or January 2018.

  • Review research findings and complete thesis report

    Review findings, follow up any outstanding lines of enquiry, and write up thesis.  September 2017 - September 2018.

    Status:
    Being implemented

    2017 - Second Quarter Update

    Field work has completed,  Thematic analysis of the data is underway.  Draft report and thesis writing has now started.  Aim to complete September 2018. 

    2016 - First Quarter Update

    New Member

  • Share findings of research and network with other researchers

    Plans to share the research include:

    1) Ongoing newsletters and blogs on the website:

    https://extracareresearch.wordpress.com/

    2) publication of report on the first part of a PhD research project exploring how well individuals with dementia can live in extra care housing.  The full report can be found on the Housing LIN here:

    http://www.housinglin.org.uk/_assets/Resources/Housing/Support_materials/Reports/HLIN_Dementia_Report.pdf.

    The report draws together the responses from a national questionnaire which was disseminated by the Housing Learning and Improvement Network earlier in 2016.  The aim of the questionnaire was to document the variety and types of extra care housing schemes in use, and how well they support individuals with dementia.

    3) presentation at annual conference for the Department of Sociological Studies at the University of Sheffield in May 2017.  The conference theme is Breaking Boundaries

    4) networking with other academics within University of Sheffield to share good practice and research around living with dementia, housing and older people.

    5) presentation of early findings of my research at the British Society of Gerontology 46th annual conference in July 2017

    6) A submission has been made to present a paper on the research at the 12th UK dementia congress in November 2017.

    Status:
    Being implemented

    2017 - Second Quarter Update

    New Action

    2017 - Second Quarter Update

    1) presentation at annual conference for the Department of Sociological Studies at the University of Sheffield in June 2017.  The conference theme was Branching Out

    2) Presentation to Dementia Futures conference in Sheffield Cathedra in June 2017

    3) Presentation of early findings at the British Gerontological Society annual conference July 7th

    4) shared feedback with Derbyshire County Council joint commissioning group August 2017

    5) Next newsletter due to be published in September 2017

    6) networking with other academics within University of Sheffield to share good practice and research around living with dementia, housing and older people.

  • 1. Complete research preparation and confirm readiness to undertake two case studies with extra care schemes in Derbyshire

    Literature review to be completed, ethics approval to be achieved, two schemes for case study work to be confirmed.

    Status:
    Completed

    2016 - Fourth Quarter Update

    Now complete

    2016 - First Quarter Update

    Literature review is progressing including review of specialist housing development in the UK, social models of disability, concepts of personhood and identity, and good practice in dementia care building design.

    Two contrasting extra care housing schemes identified for case study research, subject to ethics approval of the research approach.

    Confirmation will take place in September 2016.