All Party Parliamentary Group on Dementia

The APPG on Dementia is a cross-party group made up of MPs and peers with an interest in dementia. Its aim is to raise awareness of dementia among parliamentarians, and to influence legislation and policymaking to improve the lives of people with dementia and their carers.

Updated:
10 February 2016
Location:
National
Sectors:
Communication, Health, Other

1. Action Plan

1. The National Dementia Declaration lists a number of outcomes that we are seeking to achieve for people with dementia and their carers. How would you describe your organisation's role in delivering better outcomes for people with dementia and their carers? 

The All-Party Parliamentary Group (APPG) on Dementia is an informal cross-party parliamentary group made up of 80 MPs and peers with an interest in dementia.  

The APPG on Dementia works to raise awareness of dementia among parliamentarians, and influence legislation and government policy with the aim of improving the lives of people with dementia.

Chaired by Baroness Sally Greengross OBE, the Group meets several times a year and uses each meeting to focus on specific issues affecting people with dementia and their carers. It also undertakes other parliamentary activities such as producing briefings and holding inquiries, with the aim of making a positive difference in the lives of people with dementia.

At national level the APPG's key role is to influence policy in a way that delivers improved quality of life for people with dementia. However, by engaging parliamentarians at this level it can also have a role in helping MPs foster local dementia supportive communities in their own constituencies. 

2. What are the challenges to delivering these outcomes from the perspective of your organisation? 

The current and significant pressure on public resources is dominating the political agenda. The APPG must recognise this and ensure its work on dementia is relevant within this context.

There are many time pressures on parliamentarians, and this means the capacity for members to meet as a group is limited. The APPG must then focus on a small number of big issues that affect the lives of people with dementia.

There are many competing issues on the public and political agenda at this time. The APPG must ensure that dementia is prioritised among these issues.

Member contacts

www.alzheimers.org.uk/appg

2. Actions

  • A voice for people with dementia in parliament

    The APPG will work to ensure there is an effective voice for people with dementia in parliament by contributing to debates and questions in the house on issues affecting people with dementia and their carers.

    Status:
    Being implemented

    2015 - Second Quarter Update

    The APPG will take a central role in ensuring that the new Government lives up to it pre-election commitments around dementia. This will be done through submitting Parliamentary Questions, writing reports and holding inquiries throughout the course of this Parliament.

    2015 - First Quarter Update

    The APPG produced a manifesto, “Five dementia priorities for the next Government” prior to the 2015 general election. This listed the five most pressing issues for the incoming government regardless of which party won the elections.

    2013 - Third Quarter Update

    Ongoing

    2013 - Second Quarter Update

    Ongoing

    2013 - First Quarter Update

    Ongoing

  • National Dementia Declaration

    The meeting of the APPG on Dementia in December 2010 will cover the National Dementia Declaration. Members will have the opportunity to discuss the action plan of the Group and contribute new ideas to delivering outcomes.

    Status:
    Completed

    2013 - Third Quarter Update

    Ongoing

    2013 - Second Quarter Update

    Ongoing

    2013 - First Quarter Update

    Ongoing

  • Good quality and efficient dementia care services

    The APPG will conduct its next inquiry into the delivery of good quality and efficient dementia care services, reporting by summer 2011.

    Status:
    Completed

    2015 - First Quarter Update

    This inquiry was concluded in 2013 through the report, “Building on the National Dementia Strategy: Change, progress and priorities”. There will be no more work on this action point.

    2013 - Third Quarter Update

    An inquiry into improving lives through cost effective dementia services, the report provides the findings and recommendations based on the evidence received to the inquiry and identifies many good practice examples that providers and commissioners of dementia care in the UK can draw on

    2013 - Second Quarter Update

    An inquiry into improving lives through cost effective dementia services, the report provides the findings and recommendations based on the evidence received to the inquiry and identifies many good practice examples that providers and commissioners of dementia care in the UK can draw on

    2013 - First Quarter Update

    An inquiry into improving lives through cost effective dementia services, the report provides the findings and recommendations based on the evidence received to the inquiry and identifies many good practice examples that providers and commissioners of dementia care in the UK can draw on

  • Annual inquiries

    The APPG will conduct an inquiry every year from now until 2014 that focuses on issues key to quality of life for people with dementia.

    Status:
    Being implemented

    2015 - Second Quarter Update

    The new APPG for the 2015-2020 Parliament was constituted and held its AGM in July. At this meeting the topic of the next inquiry was decided and would focus on comorbidities of dementia – the impacts on health and social care and those living with dementia.

    2015 - First Quarter Update

    The 2014 APPG report “Building on the National Dementia Strategy: Change, progress and priorities” was published in April 2014.

    As an alternative to the annual inquiry/report format, the APPG produced a manifesto, “Five dementia priorities for the next Government” prior to the 2015 general election.

    2013 - Third Quarter Update

    In 2008, the report Always A Last Resort was published. The inquiry looked at the prescription of antipsychotic drugs to people with dementia living in care homes.

    In 2009, the report Prepared to Care was published. The inquiry looked at the dementia care skills of the social care workforce.

    In 2010, the report A Misspent Opportunity? was published. The inquiry looked at the initial progress made by Primary Care Trusts in England towards implementing the National Dementia Strategy for England, published in February 2009.

    In 2011, the report The £20 Billion Question was published. The inquiry looked at improving lives through cost-effective dementia services

    In 2012, the report Unlocking Diagnosis was published. The inquiry looked at increasing the number of people with dementia with a diagnosis in the UK.

    In 2013, a report will be published on Dementia Services and support for people living with dementia in the UK within minority ethnic groups.

    2013 - Second Quarter Update

    In 2008, the report Always A Last Resort was published. The inquiry looked at the prescription of antipsychotic drugs to people with dementia living in care homes.

    In 2009, the report Prepared to Care was published. The inquiry looked at the dementia care skills of the social care workforce.

    In 2010, the report A Misspent Opportunity? was published. The inquiry looked at the initial progress made by Primary Care Trusts in England towards implementing the National Dementia Strategy for England, published in February 2009.

    In 2011, the report The £20 Billion Question was published. The inquiry looked at improving lives through cost-effective dementia services

    In 2012, the report Unlocking Diagnosis was published. The inquiry looked at increasing the number of people with dementia with a diagnosis in the UK.

    2013 - First Quarter Update

    In 2008, the report Always A Last Resort was published. The inquiry looked at the prescription of antipsychotic drugs to people with dementia living in care homes.

    In 2009, the report Prepared to Care was published. The inquiry looked at the dementia care skills of the social care workforce.

    In 2010, the report A Misspent Opportunity? was published. The inquiry looked at the initial progress made by Primary Care Trusts in England towards implementing the National Dementia Strategy for England, published in February 2009.

    In 2011, the report The £20 Billion Question was published. The inquiry looked at improving lives through cost-effective dementia services

    In 2012, the report Unlocking Diagnosis was published. The inquiry looked at increasing the number of people with dementia with a diagnosis in the UK.