National Institute for Health & Care Excellence

NICE is an independent organisation responsible for providing national guidance on promoting good health, and preventing and treating ill health.

Updated:
16 August 2017
Location:
National
Sectors:
Care, Health, Medical, Membership Organisations

1. Action Plan

1. The National Dementia Declaration lists a number of outcomes that we are seeking to achieve for people with dementia and their carers. How would you describe your organisation's role in delivering better outcomes for people with dementia and their carers? 

NICE provides national guidance on the promotion of good health and the prevention and treatment of ill health. Our main contribution to better outcomes for people with dementia and their carers is through the 2006 clinical guideline, 'Dementia: supporting people with dementia and their carers in health and social care', jointly produced with the Social Care Institute for Excellence (SCIE), the 2006 technology appraisal, 'Donepezil, galantamine, rivastigmine (review) and memantine for the treatment of Alzheimer's disease' (amended in 2007 and 2009), and the dementia quality standard of June 2010. The guidance and the quality standard on dementia reflect the widely accepted principles of person-centred care that underpin good practice in the field of dementia care. Versions of the guidance for patients and carers aim to help them play an active role in decisions about treatments and services for dementia. We support local implementation of this guidance and the dementia quality standard by providing a range of implementation tools for commissioners and health and social care providers and professionals. The guidance and the quality standard also provide criteria for local monitoring and management of performance and for national reviews and studies of the quality and value for money of dementia services.

2. What are the challenges to delivering these outcomes from the perspective of your organisation? 

Priorities for implementation in the NICE/SCIE clinical guideline aim to meet key challenges to delivering outcomes by ensuring that:

  • people with dementia are not excluded from any services because of their diagnosis, age, or coexisting learning disabilities;
  • professionals seek valid consent from people with dementia;
  • carers receive an assessment of need and, if appropriate, psychological therapy;
  • there is coordination and integration of health and social care;
  • memory assessment services are the single point of referral for all people with a possible diagnosis of dementia;
  • structural imaging is used in diagnosing dementia;
  • people with dementia who develop challenging behaviour are offered an assessment, and a tailored care plan if necessary;
  • there is dementia-care training for all staff working with older people;
  • acute and general hospitals address the personal and social care needs and the mental and physical health of people with dementia.

Member contacts

http://www.nice.org.uk/

Member website

http://www.nice.org.uk/

2. Actions

  • Dementia quality standard

    The dementia quality standard: this is likely to be the most significant contribution from NICE in responding to these challenges over the next few years. This is because of the role defined for NICE quality standards in the NHS outcomes framework proposed in the recent white paper, 'Equity and excellence: liberating the NHS'. It is clear that the NHS outcomes framework will include outcomes expected by people with dementia and their carers. NICE expects to support the development of the NHS outcomes framework.

    Status:
    Completed

    2014 - Second Quarter Update

    Completed action

    2012 - First Quarter Update

    Workshops were held last autumn to guide the development of the quality standard for Care of people with dementia. Please see the website for details.

    http://www.nice.org.uk/guidance/qualitystandards/socialcare/home.jsp

  • Support for implementation of the dementia quality standard

    Support for implementation of the dementia quality standard: for example, dissemination of resources: patient information; cost impact and commissioning assessment; guide to commissioning a memory assessment service; and audit support.

    Status:
    Completed
  • Shared learning database

    The shared learning database: a section of NICE's website enabling searches for examples of implementing NICE guidance and overcoming barriers to implementation, including guidance on dementia - see www.nice.org.uk/sharedlearning. 

    Status:
    Completed
  • Evaluation and Review of Nice Implementation Evidence

    Collation of reports on implementation of NICE guidance: the ERNIE database (Evaluation and Review of NICE Implementation Evidence) enables searches for published reports on the uptake of NICE guidance, including dementia-related guidance - see www.nice.org.uk/ernie/ 

    Status:
    Completed
  • NICE quality standards

    Support for national studies and reviews: for example, those by organisations such as the Care Quality Commission and the National Audit Office which use NICE guidance or NICE quality standards to define study or review criteria.

    Status:
    Completed

    2012 - Second Quarter Update

    A full pathway guide for commissioners on dementia care is proposed for the 2012/13 work programme. This will update and encompass previous guides on memory assessment services and end of life care. 

  • NHS Evidence

    NHS Evidence: this a web based service that ensures that professionals in health and social care have free access to the quality-assured, best-practice information required to inform evidence-based decision making. NHS Evidence provides up-to-date information on research findings, evidence, and policy on dementia. For example, it provides an annual evidence update on Alzheimer's disease and dementia - see www.library.nhs.uk/laterlife.

    Status:
    Completed

    2014 - Second Quarter Update

    Action Completed

    2012 - Third Quarter Update

    In progress.

    2012 - Second Quarter Update

    In progress.

    2012 - First Quarter Update

    In progress.

  • Review of the NICE clinical guideline

    Review of the NICE/SCIE clinical guideline on dementia: consideration in November 2011 of the need to update the guideline.

    Status:
    Completed

    2014 - Second Quarter Update

    Action Completed

    2012 - First Quarter Update

    References to implementing the NICE/ SCIE guideline on dementia are made in the December paper Innovation, health and wealth, and dementia and its impacts are recently announced in the Public Health Outcomes Framework.

    NICE will highlight its resources available to help local organisations to do this and learn from others over the next quarter.