Age UK

Age UK aims to improve later life for everyone through our information and advice, campaigns, products, training and research. We know that ageing is the main risk factor for developing dementia, but equally that dementia is neither an inevitable nor a normal consequence of ageing. www.ageuk.org.uk/

Updated:
10 February 2016
Location:
National
Sectors:
Health, Care
Local Alliances:
Leicester, Leicestershire and Rutland Dementia Action Alliance , Plymouth Dementia Action Alliance, West Kent Dementia Action Alliance

1. Action Plan

1. The National Dementia Declaration lists seven outcomes that the DAA are seeking to achieve for people with dementia and their carers. How would you describe your organisation’s role in delivering better outcomes for people with dementia and their carers?

Age UK has a vision of a world in which older people flourish.  We aim to improve later life for everyone through our information and advice, campaigns, products, training and research.  We know that ageing is the main risk factor for developing dementia, but equally that dementia is neither an inevitable nor a normal consequence of ageing.

Age UK will work to influence the development of policy and services, nationally and locally, on how best to respond to the anticipated increase in the number of people living with dementia.  We will support our partners in developing their services and sharing good practice, and will seek to find practical ways to make our own services more accessible to people with dementia and carers.  We will offer training to those working in health and social care to improve their knowledge and skills in working with people with dementia, and we will continue to support high quality research into dementia and cognitive decline.

2. What are the challenges to delivering these outcomes from the perspective of your organisation?

Challenges for Age UK include: 

Supporting capacity development of local partners. Mainstreaming dementia into all our work - given the breadth of the work undertaken by Age UK. Routinely using our relationships/networks to influence others' practice.

2. Actions

  • Support local Age UKs

    Support local Age UKs and Age Concerns to influence the development of local approaches to services for people with dementia and carers, and to share good practice.

    Status:
    Completed

    2012 – Second Quarter Update

    A partnership on dignity in care between Age UK, the NHS Confederation and the Local Government Group established an independent Commission on improving dignity in care for older people in hospitals and care homes. At the end of February 2012 the Commission on Dignity in Care published its draft report and recommendations with 10 key recommendations each for hospitals and care homes.

    The report highlights the number of people with dementia in both settings, sets out some of the changes needed to practice, and makes specific recommendations for action.

    Following a month of consultation on the draft report, the Commission is now considering the feedback received and is developing its final report which will be accompanied by an action plan.

    2012 – First Quarter Update

    Our Information and Advice team is responding to our commitment by evaluating the current range of Age UK Guides for older people when due for their regular review. The aim is to identify occasions when information or an “action” would be of particular relevance to an older person living with dementia or their carer. As an example, in a forthcoming revision of our Guide – Caring for your eyes – there will be reference to the importance of regular eye tests for people with cognitive or communication difficulties such as dementia.

    With the help of carers of people living with dementia who use Age UK services, we are planning to produce a Guide for carers of people living with dementia. Visits to a range of local services, followed by a postal survey of carers have helped us confirm the range of topics to be included in the Guide. A number of carers confirmed their interest in reviewing draft copy and helping with the Guide design.

    We have initiated a new programme of work to look at key service areas for Age UK nationally and locally. We will ensure that the needs of people with dementia and carers are considered as an integral part of these services. Specifically we have committed some resources to support service design and innovation and we will ensure that at least one of the projects supported through these resources will focus service design for people with dementia and/or carers

    Further information is available at: www.nhsconfed.org/dignity

  • Examples of Services Offered by Local Age UK

    Publish examples of services offered by local Age UKs which contribute to improving life for people living with dementia and carers.

    Status:
    Completed

    2012 – First Quarter Update

    We completed this action and have published a report: Living Life with Dementia, which can be found at:

    http://www.ageuk.org.uk/documents/en-gb/for-professionals/care/living_life_with_dementia.pdf?dtrk=true

  • Fund Existing Projects

    Continue to fund existing research projects on dementia and cognitive decline and consider proposals for new research.

    Work in partnership with a range of external organisations to influence public sector research priorities, with an aim of securing greater priority and funding for ageing-related research, including dementia.

    Status:
    Delivery

    2015 - First Quarter Update

    Age UK continues to fund a major research project on cognitive ageing: the Disconnected Mind project at the University of Edinburgh: http://www.disconnectedmind.ed.ac.uk/

    Age UK Research teams has produced an evidence review on dementia and cognitive decline last autumn:  http://www.ageuk.org.uk/Documents/EN-GB/For-professionals/Research/Cognitive_decline_and_dementia_evidence_review_Age_UK.pdf?dtrk=true

    2012 – Second Quarter Update

    Age UK continues to fund a major research project on cognitive ageing: the Disconnected Mind project at the University of Edinburgh: http://www.disconnectedmind.ed.ac.uk/

    Under our Research into Ageing Fund Programme we also continue to fund a variety of research projects on dementia and cognitive impairment in later life at a range of UK academic institutions. As at April 2012 we are supporting four projects at King’s College London, Newcastle University, University College London, and the University of Edinburgh.

    2012 – First Quarter Update

    In 2011 we continued to fund existing research projects on dementia and age-related cognitive impairment, through our Research into Ageing programme. We continued to fund 5 projects on dementia at a total value of £430,000. We continued to fund 3 projects on age-related cognitive impairment at a total value of £387,000.

    In addition, we continued to fund Phase 2 of The Disconnected Mind, a major project on cognitive ageing at the University of Edinburgh, committing £500,000 for the first year (of five) of Phase 2 of the project (2011 to 2016).

    We have received some new restricted funding to support work on falls prevention, based on existing evidence of the physical exercise needed for effectiveness. We will be working with three of our local partners over the next three years to test out how best to deliver and support this exercise in a range of settings. At least one of our partners will be testing out how this can be organised and supported in a community-based setting for people living with dementia.

  • Provide training for health & social care workers

    Offer training to people working in health and social care to improve their understanding of dementia and of effective ways of supporting people with dementia.

    Status:
    Implementation

    2015 - First Quarter Update

    Remember Me Social Care:

    Remember Me is a new training course which has been designed to help carers, health workers and anyone in the workplace better support people who suffer from with dementia.

    The innovative new course places participants in the shoes of a dementia patient, providing an insight into the barriers they face and giving users first-hand experience of what it feels to be an older person living with dementia. The pathway of training offer a better understanding of the situations that might arise when caring for a dementia patient, each module highlights how professionals can best possible support older people in their care.

    Participants can expect to be taught via a range of practical learning methods including role play, interactive workshops and art sessions. Each exercise is designed to raise awareness of the challenges people with dementia face and encourage empathy by offering first-hand experience of what it may feel like.

    Remember Me offers staff a great career pathway and can also be personalised to suit the needs of different care professionals for example health care assistance in hospitals and ambulance staff.

    The Remember Me programme can be delivered in multiple ways, each module is one full days training for 16 staff, who will be trained at a venue of your choice nationwide. We offer various delivery options over a 6-12 month period:

    Foundation =5 modules (5 days)In My ShoesHow I see YouMy WorldMaking SenseBack to the PastEnhanced = 6 modules ( 6 days )In My ShoesHow I see YouMy WorldMaking SenseBack to the PastNutrition and hydration in dementia care OREnd of life care in dementiaPremium = 8 modules( 8 days)In My ShoesHow I see YouMy WorldMaking SenseBack to the PastNutrition and hydration in dementia careEnd of life care in dementiaSense of Ageing ProgrammeOne Module = One day

    All participants will gain a deeper insight into the challenges faced by older people living with dementia, helping them provide better social and health care support.

    Remember Me - Commercial businesses:

    Incorporating face-to-face sessions depending on the business requirements, the programme has been designed to help those working with the public to have an awareness of the needs of customers with dementia and family members that support them.

    Help commercial organisations can ensure best practice for those customers that may be challenged with dementia, including dementia awareness modules, communication techniques and advice on how to provide a dementia friendly enabling environment.

    For more information call 0808 168 1225 

    2014 - Fourth Quarter Update

    Remember Me:

    Remember Me is an essential training programme developed by Age UK that wille be rolled out across 3 pillars in 2014/2015. The first of these is due for release in October 2014 and will target individuals working in residential and nursing homes, domiciliary and day care.

    Remember Me provides flexible workforce development packages. The training modules deliver high quality person-centred learning, teaching carers how to understand and respond to the needs and expectations of people with dementia in later life.

    The programme is designed to embed the importance of placing individuals at the heart of all care. We train carers to see life through the eyes of an older person living with dementia or cognitive impairment and to understand the complexity and challenges from the older persons perspective. By seeing beyond the condition and understanding the situations that might arise, carers are able to take ownership of the tasks and challenges they will face and give the best possible support to older people in their care.

    2012 – Second Quarter Update

    Age UK Training is this year focusing on offering training in dementia as a core product available to health and social care providers. More information is available in Age UK Training’s course brochure.

    2012 – First Quarter Update

    In progress

  • Work with My Home Life to produce a DVD

    In partnership with the My Home Life programme, produce a DVD for care homes on living with dementia, publish and disseminate information on best practice in dementia care for managers and staff working in care homes, and publish a special edition of the My Home Life bulletin on dementia for health and social care professionals and carers.

    Status:
    Completed

    2012 – Second Quarter Update

    Sponsored by Age UK, City University, the Joseph Rowntree Foundation, and Dementia UK, My Home Life (MHL) is a collaborative partnership aimed at improving the quality of life of those who are living, dying, visiting and working in care homes for older people.

    My Home Life has completed a series of films commissioned by the Department of Health and produced in conjunction with Let’s Respect and Dementia UK. The films look at the challenges of dementia and other mental health issues in residential care. They are available to view at: http://myhomelife.org.uk/resources/dementia/

  • Cater our services to meet the needs of people living with dementia and carers

    Starting with information and advice, consider practical ways in which our services can be adapted to ensure that they meet the needs of people living with dementia and carers.

    Status:
    Implementation

    2015 - First Quarter Update

    Age UK is working with 5 local partners on a one year pilot programme to enhance our support to people with cognitive decline, dementia and their carers, pre and post diagnosis.

    Our aim is to support Local Partners to test ways of working that will evidence good practice and provide opportunities for shared learning. In addition, we want to be able to evidence to commissioners the impact of Age UK services on reducing the need for more costly interventions such as unplanned GP visits, A&E visits & hospital admissions.

    We are supporting a range of services for people living with dementia and their carers from the point of diagnosis through to late stage dementia.

    Following a research and consultation period in which we engaged with people with dementia, their carers, key professionals and local Age UKs, we have now identified local partners to work with us over a one year period to develop service models, expand services where there is the demand and evaluate the success of services in meeting the required outcomes.

    2014 - Fourth Quarter Update

    As part of our action plan we committed to consider practical ways in which our services could be adapted to ensure they meet the needs of people living with dementia and their carers.

    2012 – First Quarter Update

    As part of our action plan we committed to consider practical ways in which our services could be adapted to ensure they meet the needs of people living with dementia and their carers.

  • Meet the Needs of People Living with Dementia

    Starting with information and advice, consider practical ways in which our services can be adapted to ensure that they meet the needs of people living with dementia and carers.

    Status:
    Implementation

    2015 - First Quarter Update

    This project supports and enables local Age UKs to assess how dementia-friendly their generic and wellbeing services are currently, what can be done to make these services more accessible, and assess what additional services could be developed. Age UK has commissioned two experienced consultants, Steve Milton from Innovations in Dementia and Neil Mapes from Dementia Adventure to lead this work.

    Since 2012, sixty one Age UK’s have been supported by the Age UK Dementia Friendly Programme, supported by funding from Department of Health Strategic Partnerships Fund and the Big Lottery Fund.  This phase of the programme is due to be completed by the end of June 2015 and Age UK will be producing final reports and guidance materials to complement the existing documents and reports. http://www.ageuk.org.uk/professional-resources-home/services-and-practice/health-and-wellbeing/making-age-uk-dementia-friendly/

    As part of the programme, local Age UK’s have produced action plans linked to their organisational plan to plan how their generic services, staff support and training, involvement in local networks, changes to their environment, leaflets and other information, and engaging with people with dementia can be developed over time.

    Key outcomes to date include:

    Workshops on: Engaging with People with Dementia, Introduction to Training Programmes, Auditing Office and Home Environments run by Innovations in Dementia‘Risky Business’ workshop, for supporting staff to set up outdoor activities for people with Dementia run by Dementia AdventureInterim Evaluation report, with the final report due in July 2015In addition to the 61 Age UK’s engaged in the project, another 15 have been involved in workshops and additional support days

    The sustainability plan for the Dementia Friendly project includes:

    Age UK is undergoing a ‘Dementia Friendly’ review, and a programme of Dementia Friends Awareness sessions has involved over 200 staff to date. A support network for local partners has been established to share the learning of the programme, and to provide opportunities for training and briefing on a wide range of issues related to working with people with dementia and their carers. A recent webinar on 'Age UK’s Dementia Friendly Journey' delivered to the network can be found here:

     http://view6.workcast.net/?pak=6278933750144101

    2014 - Second Quarter Update

    Support to local Age UK’s – Dementia Friendly Programme

    This project supports and enables local Age UKs to assess how dementia-friendly their generic and wellbeing services are currently, what can be done to make these services more accessible, and assess what additional services could be developed. Age UK has commissioned two experienced consultants, Steve Milton from Innovations in Dementia and Neil Mapes from Dementia Adventure to lead this work.

    The project originally supported 15 Age UKs from 2012 – 2013, funded by the Department of Health Strategic Partnerships Fund. A brief summary can be found here, along with documents and guides developed from the programme which assist organisations to become dementia friendly. http://www.ageuk.org.uk/professional-resources-home/services-and-practice/health-and-wellbeing/making-age-uk-dementia-friendly/

    The BIG Lottery Fund awarded Age UK funding in April 2013, as part of the continuing Fit as a Fiddle extended programme to extend this programme and to continue to provide support and training to local Age UKs who wish to develop their generic services to be more dementia friendly, and in addition to look at how wellbeing services and indoor and outdoor physical activities can be developed for the needs of people with dementia and their carers.

    From 2013 – 2014, an additional 46  local Age UKs are able to access support and training to focus on:

    The extent to which the voice of people with dementia is heard within the organisationThe accessibility of the environment in which services are deliveredThe accessibility of written and published informationThe level of dementia-awareness across staff and volunteer groupsHow local and regional partners are strategically engagedThe development of physical activities, which ideally, take place in an outdoor environment, improving self-esteem, well-being and consequently reducing the rate of cognitive decline.

    As part of the programme, local Age UK’s have produced an action plan to demonstrate how their services will be developed over time, and linking these into their organisational plans.

    A steering group including Age UK project and policy personnel, the consultants, representatives from the previous programme and people with dementia support and guide the programme.

    A dementia friendly workshop on engaging people with dementia was held in June 2014 and dementia friendly workshops on dementia training and awareness, internal and external environmental audits, risk assessments, and indoor and outdoor physical activities will take place from December 2014 – June 2015.

    The first phase of the BIG funded programme (November 2013 – June 2014)  is currently being evaluated, and an interim report is due in November 2014.

    2012 – Third Quarter Update

    Working with Innovations in Dementia, we have supported 15 local Age UKs to engage with people with dementia and carers to consider the practical action needed to make generic services inclusive of and accessible to older people with dementia.  Each Age UK has committed to an action plan.  The learning from the project has been written up and can be found at http://www.ageuk.org.uk/dementiafriendl

    2012 – First Quarter Update

    As part of our action plan we committed to consider practical ways in which our services could be adapted to ensure they meet the needs of people living with dementia and their carers. 

  • Promote dementia friendly services

    We will work with a further 30 local partners to make their services more dementia friendly through our 'Fit as a Fiddle' programme, funded through the Big Lottery Fund.

    Status:
    Completed

    2014 - Second Quarter Update

    The report, Living Life with Dementia has been updated and refreshed, to include reference to the developing Dementia Strategy and the role of Age UK in the recent G7 summits. In addition, case studies from local Age UK’s reflecting the key outcomes of the Dementia Strategy have been included in the report.  The updated report can be found here:

    http://www.ageuk.org.uk/Documents/EN-GB/For-professionals/Health-and-wellbeing/Living_life_with_dementia.pdf?dtrk=true

  • Produce new dementia guides

    Recognise the needs of people with dementia and their carers when developing information and advice resources

    Status:
    Delivery

    2014 - Fourth Quarter Update

    We have produced two Information Guides - Living with early stage dementia: living well in the present and planning for the future and Caring for someone with dementia: a practical guide to help you. In addition we are now mindful of the needs of people with dementia when writing and updating our full range of Information Guides, both in terms of content and accessibility. Information Guides are available to download from our website http://www.ageuk.org.uk/publications/age-uk-information-guides-and-factsheets/ or by calling Age UK Advice 0800 169 65 65.