Thomas Pocklington Trust

Pocklington works to enhance the lives of people with sight loss. We aim to increase knowledge of sight loss, empower people with sight loss, provide and inform effective housing and support, and sustain our own services for the long term.

Updated:
10 February 2016
Location:
National
Sectors:
Health, Care, Housing Sector, Voluntary Sector

1. Action Plan

1. The National Dementia Declaration lists seven outcomes that the DAA are seeking to achieve for people with dementia and their carers. How would you describe your organisation’s role in delivering better outcomes for people with dementia and their carers?

Thomas Pocklington Trust commissions research and development about sight loss, including concurrent sight loss and dementia.  

We will seek to deliver better outcomes for people with dementia and their carers by comissioning research and development projects that can inform good practice across housing, care and support.

We are committed to increasing awareness and supporting action to address the needs and aspirations of the growing number of people who have concurrent dementia and sight loss. In 2010 research commissioned by us estimated that at least 100,000 people in the UK have dementia and sight loss and we know that this creates particular challenges for them and their carers and that this dual burden is often the trigger for increased care services, including a move to a care home.  

With the Alzheimer's Society, RNIB, Royal College of Ophthalmologists  and other partners we actively participate in the Dementia and Sight Loss Interest Group of VISION2020UK and work to increase mutual understanding and partnership working among practitioners in dementia and sight loss services.  

2. What are the challenges to delivering these outcomes from the perspective of your organisation?

We face challenges in raising awareness of the impact of sight loss on people with dementia, and vice versa, and of the value of interventions that maximise vision and support independence, activity and occupation which improve quality of life and make care and support services more effective. Though awareness is increasing, we have yet to see if this translates into improved care. Sight loss is currently not a focus of inspection regimes in England which results in less attention being given to it in residential care settings.

Recent awards of research funding from the National Institute of Health Research will enable us to add to the evidence base surrounding sight loss and dementia, raising awareness of the issues and effective practice in detecting and treating sight loss among those living with dementia.  

2. Actions

  • Building awareness among dementia and sight loss organisations

    We will work with dementia and sight loss organisations with the aim of increasing mutual awareness and understanding. We will encourage collaboration that can result in better outcomes for people with concurrent dementia and sight loss and those who care for them: this is ongoing work and includes an active role in the dementia and sight loss interest group of VISION2020UK

    Status:
    Being implemented

    2015 - First Quarter Update

    Pocklington has continued to work with DaSLIG partners to contribute to raising awareness of co-occuring sight loss and dementia, for example:

    we have been sucessful in bidding for a seminar session at the College of Occupational Conference Annual Conference to raise awareness among occupation therapists of the link between sight loss and dementia, and how they can provide support.we are working on a fact sheet to highlight the need to consider sight loss when undertaking cognitive testingwe are working with the Royal College of Ophthalmologists to produce quality standards for Eye Clinics on how to be better meet the needs of people with dementia and sight loss.

    2012 - Third Quarter Update

    Our work over the last quarter has continued to focus on partnerships with other organisations to support recognition and action to address sight loss concurrent with dementia. This includes work with SCIE regarding building awareness of sensory loss among people with dementia through the Dementia Gateway. We are in the process of making a short film to illustrate the material on the Gateway among formal and informal care staff.

    We continue to work as part of the Vision 2020 UK Dementia and Sight Loss Interest Group and we will be giving a joint presentation at the National Dementia Congress in November .

    2012 - Second Quarter Update

    We continue to focus on issues affecting people who have both dementia and sight loss and the prevalence of concurrence because of their links with ageing.

    2012 - First Quarter Update

    Thomas Pocklington Trust has nothing to report for the past quarter

    As a sight loss charity an important method in our work is to support other organisations through information, expertise and research findings related to the concurrence of these conditions. 

    We worked with SCIE and ARUP to host a consultation meeting about the issues that face people who have dementia and sensory impairment at the end of their life and how care and support services may ensure effective responses to their needs and those of their family and carers. The report of the meeting is available at:

    http://www.scie.org.uk/news/events/previousevents/files/dementia_eol_care_event_report.pdf

    The partners will work together to address recommendations from this event. 

    We contributed to work by SCIE to integrate information about sensory impairment in the Dementia Gateway. 

    We continue to play an active role in the Vision 2020 UK Dementia and Sight Loss Interest Group. We worked with members to respond to enquiries about diagnostic techniques for dementia among people with sight loss, provision of support for meaningful occupation and access to appropriate services. 

  • Research & development

    Year on year we will seek to secure funds to support and / or commission research and development projects that address the needs and aspirations of people with concurrent dementia and sight loss and those who care for them; this is ongoing

    Status:
    Delivery

    2015 - First Quarter Update

    During 2014 we published the University of Stirling's 'Good Practice in the design of homes and living spaces for people with dementia and sight loss' (see http://dementia.stir.ac.uk/design/good-practice-guidelines) , based on Pocklington funded research. The guidance was disseminated widely.

    We are now supporting the University of Stirling to undertake a short scoping project to look at encouraging meaningful activity for people with dementia and sight loss. This will result in a short report which will summarise evidence and current practice, and consider how we might support provision in this area.

    2012 - Third Quarter Update

    We have commissioned research to be undertaken by the University of Stirling to investigate how the design and management of buildings may facilitate the independence of people who are affected by both dementia and sight loss. This builds on work for Pocklington by Habinteg (2010).

    2012 - Second Quarter Update

    We supported the College of Optometrists’ proposals for major new research about the prevalence of different eye conditions among people with dementia and appropriate eye examinations for people with dementia. 

    2012 - First Quarter Update

    Thomas Pocklington Trust has nothing to report for the past quarter

  • Work with other organisations

    We will work with other organisations that are seeking to undertake research and development projects around dementia and sight loss so that our research findings and experiences in practice may inform their work and that findings from other research informs our research and practice; this is ongoing

    Status:
    Being implemented

    2015 - First Quarter Update

    Pocklington continues to work closely with a number of research teams to support a number of research projects exploring issues relating to co-occurence of dementia and sight loss. These projects include PROVIDE: Prevalence of Visual Impairment in Dementia (www.college-optometrists.org/en/research/funded-projects/commissioned-research-2.cfm/PrOVIDe) and CoDem: Comorbidity and dementia: improving healthcare for people with dementia (http://www.herts.ac.uk/research/hhsri/research-areas-hhsri/nursing-midwifery-social-work/cripacc/older-peoples-health/comorbidity-and-dementia). We will continue to work closely with the research teams to disseminate the learning and implications for practice emerging from these projects. A recent meeting coordinated by the College of Optometrists, Alzheimer's Society and Pocklington brought together a range of people to consider future research priorities relating to dementia and sight loss.

    2012 - Third Quarter Update

    Following funding awards from the National Institute of Health Research we are collaborating with academic partners on a number of research projects to understand how to better detect, and address, sight loss in people living with dementia.

    2012 - Second Quarter Update

    We informed the Housing and Dementia Research Consortium’s work to develop proposals for research about how extra care housing can support people with concurrent dementia and sight loss. 

    2012 - First Quarter Update

    Thomas Pocklington Trust has nothing to report for the past quarter