Norfolk and Suffolk Dementia Alliance

The Norfolk & Suffolk Dementia Alliance is a 2 year-old partnership organisation involving ALL elements of the dementia pathway (health, social care and education providers from across the statutory, independent and voluntary sectors) across the two counties.

Updated:
10 February 2016
Location:
East of England, National
Sectors:
Care, Clinical Commissioning Group, Communication, Finance, Health, Hospitals and Hospital Trusts, Housing Sector, Legal, Local Authorities, Medical, Membership Organisations, Recreation, Retail, Schools, Telecare, Voluntary Sector, Education Sector, Emergency Services Sector, Transport Sector, Commissioners Sector

1. Action Plan

1. The National Dementia Declaration lists seven outcomes that the DAA are seeking to achieve for people with dementia and their carers. How would you describe your organisation’s role in delivering better outcomes for people with dementia and their carers?

The Norfolk & Suffolk Dementia Alliance is a 5 year-old partnership organisation involving ALL elements of the dementia pathway (health, social care and education providers from across the statutory, independent and voluntary sectors) across the two counties.  Our partners recognise that in order to deliver the highest standards of care and support for people with dementia, and their carers, we need to take a 'whole system approach' with everybody working towards common goals.  This means our role is to drive Innovation, Coordination and Integration across the settings whilst at the same time seeking the elimination of wasteful duplication.  Moreover, we use our unique partnership to disseminate innovative solutions and share best practice across the pathway regardless of setting boundaries.  Our system-wide partnership is funded by a central core of health, social care and education providers from the statutory sector which established the Norfolk & Suffolk Health Innovation and Education Cluster as the Dementia Alliance's parent organisation.  All partners in the Dementia Alliance have signed up to work collaboratively to ensure the delivery of the 9 DoH Dementia Outcomes through an innovative 'whole system approach' to service delivery and workforce development which we believe should be replicated across the whole country.

2. What are the challenges to delivering these outcomes from the perspective of your organisation?

Norfolk and Suffolk are projected to be in the top 3 counties in England for having the oldest population demographic and is predicting above average growth in the number of people with dementia. Our current pathway of care is inefficient and unsustainable so we must look to a totally new approach with greater focus and investment in prevention services and community care and support services.  With our MH Trust partner in the lead, we are embarking on a period of radical pathway redesign to care for the 25,000 people living with dementia in our region.  Implementing this radical redesign will require a seismic shift in where resources are allocated - in favour of community based services - and associated re-prioritisation of where our focus of 'workforce' development should be.  Despite the buy-in of the 'whole-system approach' by partner organisations' Chief Executives, there will be the inevitable organisational inertia to be overcome.

2. Actions

  • Norfolk & Suffolk Dementia Register

    Establish a comprehensive Norfolk & Suffolk Dementia Register.

    Status:
    Delivery

    2015 - First Quarter Update

    Funding for this project was withdrwan by the Eastern Academic Health Science Nertwork due to financial constraints placed on ot by the Department of Health.  However, the alliance is still working with industry partners to ensure dementia is a key feature on patient data systems. 

    2012 - Third Quarter Update

    In progress 

    2012 - Second Quarter Update

    In progress

    2012 - First Quarter Update

    In progress

  • Increase focus on services

    Increase focus on services that support PwD in early stages of the pathway

    Status:
    Delivery

    2012 - Third Quarter Update

    In progress 

    2012 - Second Quarter Update

    In progress

    2012 - First Quarter Update

    In progress

  • Improve diagnosis rates

    Improve diagnosis rates - especially in early stages of dementia

    Status:
    Implementation

    2012 - Third Quarter Update

    In progress 

    2012 - Second Quarter Update

    In progress

    2012 - First Quarter Update

    In progress

  • Enhance local information

    Enhance local information provision for PwD through development of Dementia Advisor services

    Status:
    Implementation

    2015 - First Quarter Update

    Working with the local Health & Wellbeing Boards, the alliance is leading a root and branch review of provision of information advice and advocacy services for people with dementia and their carers.  This is closely linked with a whole pathway study being conducted by the local Admiral Nurse network.

    2012 - Third Quarter Update

    In progress

    2012 - Second Quarter Update

    In progress

    2012 - First Quarter Update

    In progress

  • Falls and Fracture prevention

    Establish an integrated Falls and Fracture prevention service across both counties. (Falls are single biggest reason for acute admission of PwD). 

    Status:
    Implementation

    2012 - Third Quarter Update

    In progress

    2012 - Second Quarter Update

    In progress

    2012 - First Quarter Update

    In progress

  • Advance Care Planning

    Develop and implement a county-wide policy on Advance Care Planning. 

    Status:
    Implementation

    2012 - Third Quarter Update

    In progress

    2012 - Second Quarter Update

    In progress

    2012 - First Quarter Update

    In progress

  • Residential care providers

    Get all residential care providers in Norfolk & Suffolk to sign up to the commitment to deliver high-quality relationship based care and support for PwD, and to engage and involve the wider community in their work. 

    Status:
    Implementation

    2012 - Third Quarter Update

    In progress

    2012 - Second Quarter Update

    In progress

    2012 - First Quarter Update

    In progress

  • First dementia-friendly counties

    Work with County Councils and Chambers of Commerce to establish Norfolk & Suffolk as the first dementia-friendly counties.

    Status:
    Implementation

    2012 - Third Quarter Update

    In progress

    2012 - Second Quarter Update

    In progress

    2012 - First Quarter Update

    In progress

  • Lead Local Dementia Action Alliance

    Continue Development of our partnership as a lead Local Dementia Action Alliance

    Status:
    Delivery

    2012 - Third Quarter Update

    In progress 

    2012 - Second Quarter Update

    In progress

    2012 - First Quarter Update

    In progress

    
  • Workforce Education

    Workforce Education:

    Recognise carers as part of the 'workforce' and develop resources to educate people on Self Care including the "How are You?" health portal 

    Status:
    Implementation

    2012 - Third Quarter Update

    In progress

    2012 - Second Quarter Update

    In progress

    2012 - First Quarter Update

    In progress

  • Deliver first 2 cohorts

    Deliver first 2 cohorts of our post graduate certificate in Dementia Leadership Development Programme at the University of East Anglia 

    o Provide enhanced leadership training for Band 6 and 7 clinicians, and equivalents in the care sector, working in delivering care for PwD delivered through University Campus Suffolk 

    o Develop the Norfolk & Suffolk Dementia Academy as a centre of excellence for training and education in caring for PwD.

    Status:
    Implementation

    2012 - Third Quarter Update

    In progress

    2012 - Second Quarter Update

    In progress

    2012 - First Quarter Update

    In progress

  • ACTION PLAN 2015

    Our 2015 Action Plan contains the following key elements:

    Expansion of the Care Coaching Programme.

    This follows the very successful delivery and evaluation of the Dementia Care Coach Programme in 2013-15 which has resulted in over 40,000 coaching sessions to improve the competence of the professional care workforce in relation to Dementia.  Funded by Health Education England, the new cohort of 240 Care Coaches will be developed across Norfolk & Suffolk - predominately from Residential and Home Care providers.

    Expansion of Dementia Community Learning Hubs

    In 2014/15 the alliance established a network of 29 Dementia Community Learning Hubs across the region meaning that nobody was ever more than 12 miles from their nearest hub.  Working in partnership with 3rd sector providers, the alliance has built a highly effective support network that provides carers with peer to peer learning opportunities, information, advice and advocacy services, expert training, respite and - of course - tea.  New for 2015, is an outreach service which provides carers with hands on advice and training in their own home.  For 2015/16 these are being jointly funded by Health Education England, Norfolk County Council and Suffolk County Council. 

    Dementia Friendly Communities

    We are continuing to develop Norfolk & Suffolk as dementia friendly communities and have established two new charitable funds within the Community Foundation structure to generate financial sustainability. 

    Raising Awareness

    Raising awareness has always been a key aspect of what our alliance does and we have worked very successfully with local media outlets to spread the word.  To ensure that the information reaches every corner of our rural communities we have just taken delivery of a double-decker bus which is being transformed into a mobile dementia information and education centre.  Funded by Health Education England, the 'brain bus' will be supported by local 3rd sector providers.

    Assistive Technology

    There is still a great deal of work to be done in promoting the use of assistive technology in helping people with dementia to live well.  Working with the Eastern Academic Health Science Network, we plan to work with our sister alliances in Essex and Herts and Beds to develop a national 'test-bed' site for the Department for Health.

    Status:
    Being implemented