Pathways Through Dementia

Pathways Through Dementia is a registered charity which •Visits community groups to talk about dementia, specifically the legal aspects of the dementia journey •offers lunchtime seminars to businesses about dementia and planning ahead •hosts a Blog on our website with updates about media stories and changes to laws/rules that affect people with dementia and their carers •provides a free App through which people can ask questions, check current news about dementia and view upcoming events run by the charity •publishes a monthly newsletter which includes information on our work, interviews with people who work in the world of dementia/have dementia themselves, little known legal facts/cases, and news stories •Networks widely in the county of Surrey with businesswomen who may wish to take advantage of/support the work we do

Updated:
7 February 2017
Location:
National
Sectors:
Care
Local Alliances:
London Borough of Richmond upon Thames Dementia Action Alliance

1. Action Plan

1. The National Dementia Declaration lists seven outcomes that the DAA are seeking to achieve for people with dementia and their carers. How would you describe your organisation’s role in delivering better outcomes for people with dementia and their carers?

Pathways Through Dementia (PTD) aims to improve outcomes for people with dementia and their carers by providing free talks on topics such as paying for care, managing finances and welfare benefits where attendees can ask questions about their dementia journey. This enables them to make better informed decisions about their lives and how to move forward with issues they are facing. Options and choices can be explored and discussed in this public environment or over the telephone/on email.  The information we impart empowers people and helps them save money by, for example, avoiding paying a solicitor for the same information.

PTD also offers businesses a range of lunchtime seminars where employees can receive an overview of the different types of dementia and how they can plan ahead for a future that may include coping with severe memory loss. There is the chance for people to ask questions and voice concerns that they have about themselves or relatives. 

In addition to this we have a Blog on our website which highlights media stories, changes to the laws that affect people with dementia, and a free App through which people can view upcoming events, current news stories, and ask questions about dementia.

 

2. What are the challenges to delivering these outcomes from the perspective of your organisation?

The main challenge to our work is engaging people with legal and financial information prior to a crisis occurring. We also work hard to reach out to working carers by providing in house seminars to businesses and we operate on a small budget so advertising this service is sometimes difficult.

2. Actions

  • To continue to investigate ways of engaging businesses in the work that we do.

    Building on the research undertaken by;

    Sheffield Hallam University in 2006 - Who Cares, Wins

    The Institute for Public Policy Research - the Sandwich Generation: older women balancing work and care (2013)

    and

    Supporting Employees who are caring for someone with dementia 

    we will continue to approach businesses and HR departments involved with employee welfare highlighting the advantages to employers of supporting people who are caring for relatives with dementia. We are currently liaising with Employers fo Carers on ways of working together. In addition to this we are preparing a bid paper which involves rollling out our lunchtime seminars to businesses across London and evaluating the impact that this has on the confidence of attendees who face tackling legal aspects of the dementia journey in the future.

    Status:
    Planning

    2014 - Fourth Quarter Update

    Last year Sara (CEO)  started working with a career coach, Vicki Bullock of Blue Tomato Coaching, and a marketing manager, Clare Jefferis of She Marketing, who have both helped to move Pathways Through Dementia forward in terms of aims, vision and practical planning. As a result we have a course ready for CPD Accreditation and a research project paper which employs the Likert scale to evaluate the impact our talks and seminars have on audiences.

  • We will be registering with the Solicitors Regulation Authority to provide CPD accredited training courses to solicitors

    When I worked for the Alzheimer’s Society I ran training days for solicitors from LawNet and Law South which were very well attended. We covered the different types of dementia, caring strategies, legal updates and continuing care advice. Based on this model, I am working with a financial advisor on a similar course which will include updates on the Deprivation of Liberty Safeguards and paying for care.

    Status:
    Planning

    2014 - First Quarter Update

    New member

  • Continued partnership with Alzheimer’s Society, Age UK, Carers UK, Admiral Nurses and Athena network.

    Since 2011 I have given 17 talks to various audiences mainly through referrals from the above organisations. I have been to various carers support groups run by the Alzheimer’s Society, talked to Age UK advocates, given a presentation for the Admiral Nurses and their monthly meeting, and have spoken to the staff at the Tower of London and St James’ School Twickenham through my Athena network contacts. I anticipate that these relationships will continue to strengthen and grow.

    The Admiral Nurses and Alzheimer’s Society also refer many people to me who I speak with on the telephone and on email, the numbers of these referrals have increased greatly so far this year.

    We are holding an event in Richmond for Carers Week at Richmond and Putney Unitarian church in conjunction with the financial advisor who sponsors our newsletter which will involve talks on areas such as diagnosis, paying for care, managing finances, community care laws and welfare benefits.

    Status:
    Delivery

    2014 - First Quarter Update

    New member

  • We will continue to promote our free App and our free newsletter

    Through my membership of one of the fastest growing women’s business networks – Athena – I can encourage people to download our App and sign up for our newsletter which provides information about the legal aspects of the dementia journey. We have applied for funding for an advert in our local free magazine – the Ham and Petersham magazine and will be publishing leaflets specifically aimed at promoting our App.

    Status:
    Implementation

    2014 - First Quarter Update

    New member

  • Fundraising

    I intend to devote more time to fundraising as we have no funding other than donations from, friends, family and my bank account!  I am booked onto a morning course on March 27th run by Company Solutions which covers corporate fundraising.

    Status:
    Planning

    2014 - First Quarter Update

    New member

  • Partnership working

    We aim to increase the number of referrals we receive from organisations such as the Alzheimer's Society, Admiral Nurses and Dementia UK to reach a wider audience. We are actively promoting our free talks and June Carers Fair. Circulation of leaflets, posters, local adverts and word of mouth will assist us in achieving these goals.

    Status:
    Delivery