National Development Team for Inclusion (NDTi)

The National Development Team for Inclusion (NDTi) is a not-for-profit organisation concerned with promoting inclusion and equality for people who risk exclusion and who need support to lead a full life. We have a particular interest in issues around age, disability, mental health and children and young people.

Updated:
8 May 2017
Location:
South West, National
Sectors:
Communication, Health, Care, Clinical Commissioning Group, Housing Sector, Local Authorities, Voluntary Sector
Local Alliances:
Southbourne Dementia Friendly Community

1. Action Plan

1. The National Dementia Declaration lists seven outcomes that the DAA are seeking to achieve for people with dementia and their carers. How would you describe your organisation’s role in delivering better outcomes for people with dementia and their carers?

The National Development Team for Inclusion (NDTi) is a social change organisation working throughout the UK to achieve a society that is inclusive of all people, where factors like disability and age are not an obstacle to people achieving good life outcomes.People with dementia and their carers are at the heart of a significant proportion of our work. NDTi works, often with partner organisations, at many levels and in many ways to: influence policy and public debate; hear the voices of people with dementia and their carers, ensuring these guide our work; and support services, organisations and communities to promote inclusive lives for people with dementia and their carers. We are fully committed to human rights and equality and work towards achieving these for people of all ages, with all kinds of support needs. We find positive and practical ways to help people, including people with dementia and their carers, to stay in control of their lives, with the ability to exercise real choice in how they live. We are also determined to share learning, both through providing evidence of what works from our projects and programmes and by using what others have learned to guide our work.

2. What are the challenges to delivering these outcomes from the perspective of your organisation?

We find that some prevailing attitudes towards people with dementia continue to be negative, outdated and ill informed. These attitudes are found amongst some professionals, policymakers, support staff and representatives of organisations; in addition to being widely held by the general public. This presents a massive challenge to obtaining better outcomes for people with dementia and their carers as it can impose false restrictions on expectations and aspirations of what can be achieved and enjoyed. Fear and stigma around dementia are significant factors which present challenges. This can delay diagnosis, impede the development and effectiveness of health and social care support and worsen outcomes for people with dementia and their carers. It can result in reluctance to talk about dementia, challenging our ability to fully explore and communicate how people can live more positively and inclusively with dementia and how systems, organisations and communities can best support this happening.

Member contacts

www.ndti.org.uk/

Member website

www.ndti.org.uk

2. Actions

  • Developing the Circles of Support Project with Innovations in Dementia

    Through a project being carried out with Innovations in Dementia and local organisations and people in four areas, we will work to build Circles of Support for 40 people with dementia between 2011 and 2014.  Through this project we will investigate and communicate how this type of approach can help people with dementia and their carers to live more positive and inclusive lives within their communities.  

    Status:
    Delivery

    2015 - First Quarter Update

    Disseminated information from the project, including publicising 2 films made.  Delivered a webinar in March to share findings and resources.   

    2014 - Fourth Quarter Update

    Completed Circles of Support for People with Dementia project, working with people with dementia, families, friends and a range of organisations, supporting people to live well and inclusively within their communities. Over the term (3 years) 48 people with dementia were supported to make changes to improve their wellbeing and increase or strengthen their networks.  Further information, reports and resources developed can be found at www.ndti.org.uk/circles

    2013 - Second Quarter Update

    We have worked or are about to start working with around 24 people with dementia to help them develop Cirlces of Support.  This has involved working with people in all sorts of situations and with a range of different support needs in the four areas where the project is taking place.

    We are working to recruit 16 further people with dementia to take part in the project during the 3rd and final year.  

    Through the course of the project, we have engaged with a wide network of organisations, individuals and groups in each area in order to promote the project and also to explore how individuals who are developing Circles can be supported to achieve the things or make the changes they want to.  As part of this we have looked for opportunities to introduce organisations and groups to each other to discuss how they could work together to support people with dementia in more holistic ways.   

    2012 - Third Quarter Update

    We have, along with our national partners (Innovations in Dementia) and local partners in each of our four pilot sites, continued to develop and implement the Circles of Support for People with Dementia project over the past quarter (more information on the project can be found at http://www.ndti.org.uk/major-projects/circles-of-support-for-people-withdementia/).

     Over the last quarter this has involved:

    • Setting up more Circles of Support with people with dementia, and their families and friends, in the four areas where the project is running. We now have 15 individual Circles of Support which have either been set up or are about to start. Through this work we’re meeting and working with an increasingly varied group of people with different goals and needs, which the Circles are helping them to meet.

    • Continuing to look for and discuss opportunities to work with other organisations and groups within this project – both within the four site areas and on a national basis. Examples include a number of national and local voluntary organisations such as CSV, WRVS and local CVS bureaux.

    We are also working to support other projects where appropriate, eg. on a dementia friendly town project in for Blandford in Dorset.

    • Planning and testing an open day about dementia awareness and person centred planning tools and techniques in Devon, one of our 4 pilot sites. 

    This will take place in September.

    2012 - Second Quarter Update

    We have, along with our national partners (Innovations in Dementia) and local partners in each of our four pilot sites, continued to develop and implement the Circles of Support for People with Dementia project over the past quarter (more information on the project can be found at http://www.ndti.org.uk/major-projects/circles-of-support-for-people-withdementia/). 

    Over the last quarter this has involved: 

    • Setting up more Circles of Support with people with dementia, and their families and friends, in the four areas where the project is running. There are now 9 individual Circles of Support which have either been set up or are about to start. Through this work we’re meeting and working with a diverse group of people, many of whom want to change the support that they get to enable them to do different things. Individuals’ goals range from going sailing, being able to go back to watch motorsport again, joining a new gardening club and finding new friends. We’re finding that this approach is helping o enable a wider group of family members and friends to become more involved in directly supporting people living with dementia to meet their goals.

    • Running a workshop on this project at the Alzheimer Disease International conference where we met with some truly inspirational people and also made some good connections with people in organisations promoting volunteering to help increase support for people with dementia and enable them to live well in their communities. 

    • Continuing to look for and discuss opportunities to work with other organisations and groups within this project – both within the four site areas and on a national basis. Examples include CSV, the National Council for Palliative Care and Timebanking UK.

    • Planning and designing an open day about circles of support (and other individual planning tools and techniques) and understanding dementia for family members and the wider local community in one of the 4 sites. The aim of this session is to help neighbours, friends and wider family members who may not be so involved in more in depth caring roles to become more familiar and confident about dementia and how best to support people; and to find out more about circles of support as a very “family friendly” way of supporting people with dementia to live well through person centred planning.

    2012 - First Quarter Update

    We have, along with our partners Innovations in Dementia, continued to develop and implement the Circles of Support for People with Dementia project over the past quarter. This has involved:

    • Setting up and running the first Circles of Support with people with dementia, and their families and friends, within the project.

    • Holding workshops in each of the 4 pilot sites to engage people in the project and train people in using the person centred approaches and tools which have been developed for the project.

    • Publicising the project more widely within each of the pilot sites, through local media and by making links with local organisations and groups within the areas.

    • Discussing, with other national organisations, their potential involvement in this project or the possibility of jointly developing a Circles of Support approach for the people they work directly with. 

  • Continue to develop and deliver new projects

    We will continue to develop and deliver new projects which will result in improved outcomes for people with dementia and their carers.

    Status:
    Delivery

    2015 - First Quarter Update

    TEST

    2013 - Second Quarter Update

    We are working with Hampshire County Council, Andover Mind and The Alzheimer's Society in Hampshire to develop Cirlces of Support for people with dementia who are supported by the Hampshire Dementia Advisor Service or the Community Independence Teams.  This project will take place over the course of a year, due to be completed in the Spring of 2014.   

    2012 - Third Quarter Update

    In progress 

    2012 - Second Quarter Update

    In progress

    2012 - First Quarter Update

    We have also been delivering or involved in other initiatives designed to increase the voice, choice and control of older people with high support needs, including those living with dementia. Examples include:

    • Disseminating the findings and outcomes from the two year South East Regional Initiative (funded by the Office for Disability Issues) to embed opportunities for independent living for people living in care homes and those at risk of moving into care; and working with the South East Regional Forum on Ageing to roll these out across the region.

    • Delivering a series of 5 masterclasses on volunteering in later life with CSV, including a focus on increasing access to volunteering opportunities for older people who need support.

    • Undertaking fieldwork in 4 study sites to find out about older people’s access to and experiences of support based on mutuality and reciprocity, for example Shared Lives schemes for people living with dementia.

  • Work with organisations

    We will work with organisations and agencies in health, social care and other sectors to improve understanding about and tackle stigma and negative attitudes towards dementia, by highlighting where these exist and developing strategies to deal with them.

    Status:
    Implementation

    2012 Yearly Update

    In progress

  • Deliver age equal services

    We will also work with the above organisations (particularly those delivering mental health services) to support them to deliver age equal services through using Age Equality Toolkits and other resources developed by NDTi to achieve equality across all protected characteristics outlined in the Equality Act 2010.

    Status:
    Implementation

    2012 - Yearly Update 

    In progress

  • Involve people with dementia

    We will continue to involve people with dementia and their carers widely in our work, ensuring that their voices are heard clearly and guide the development of our programmes and approaches.

    Status:
    Implementation

    2012 - Yearly Update

    In progress

  • Communicate our learning

    We will communicate our learning, particularly about what can be done practically to enable people with dementia to live well, with real choice and control within their lives.  Learning will be shared through the range of communications used by NDTi including reports, published articles, leaflets, NDTi website, press releases, social media and at conferences and other events.

    Status:
    Implementation

    2013 - Second Quarter Update

    We have published several documents related to the Cirlces of Support for People with Dementia project, including an Insights publication which summarises the main findings of the project to date, individual stories of people involved in the project who are developing circles of support and a top ten list written by a carer of someone with dementia who is also involved in the project. These call all be found at the following webpage on the NDTi website:-

    http://www.ndti.org.uk/major-projects/circles-of-support-for-people-with-dementia/

    A report on the Not a One Way Street project (exploring mutual support) has also recently been published and can be found at the following webpage on the NDTi website:-  

    http://www.ndti.org.uk/uploads/files/older-people-support-choices-full.pdf

    2012 - Yearly Update

    In progress

  • Sharing best practice

    Share findings and information from the Circles of Support project  with members of the Southbourne DFC team to help plan activity. 

    Status:
    Completed