Every-One aims to empower people to be in control and at the centre of their own health, wellbeing and social needs and by amplifying their voice, we can influence services and support for the better. At Every-One, we believe: - People should be at the centre of their own health and social care through having choice and control - Services should be built around the person and not the process - Many people need support to exercise their choice and control effectively - People are the experts in their own lives and sharing their lived-experiences can improve services and support. - Where possible, people are best supported within the community they live in and in a way that recognises the whole person.
- 9 November 2017
- East Midlands
- Care, Charity, Community organisations, Health, Social Care, Voluntary, Voluntary Sector
- Local Alliances:
- South Lincolnshire Dementia Action Alliance , Lincoln Dementia Action Alliance, West Lindsey Dementia Action Alliance, Boston Dementia Action Alliance , Skegness Area Dementia Action Alliance, South West Lincolnshire Dementia Action Alliance, East Lindsey Dementia Action Alliance, Lincolnshire Network, North Hykeham
1. Action Plan
1. The National Dementia Declaration lists seven outcomes that the DAA are seeking to achieve for people with dementia and their carers. How would you describe your organisation’s role in delivering better outcomes for people with dementia and their carers?
Every-One are proactive in raising awareness of carers (anyone who provides unpaid care and support to an individual(s) who are ill, frail or disabled), this includes a family member or friend supporting someone with a memory problem.
Caring for an individual(s) with memory loss or dementia can be very demanding, challenging and at times stressful, but Every-One also recognise it can also be a very rewarding experience. Carers themselves have described the enjoyment as well as the difficulties of caring.
Carers face very different (potentially life changing) experiences at each stage of the illness. Adjusting to the diagnosis and coping with changes the illness will bring can cause a great deal of stress. Every-One helps carers by providing a range of projects that support carers throughout their caring journey.
Every-One supports the DAA by representing carers' experiences at the DAA across the county. Every-One (and formerly as Lincolnshire Carers & Young Carers Partnership) was instrumental in the formation of the Boston, Skegness and Louth DAA’s following consultation with local services and people with Dementia and their carer’s. Additionally several members of staff are Dementia Champions and can offer Dementia Awareness sessions.
2. What are the challenges to delivering these outcomes from the perspective of your organisation?
A challenge for the Every-One is reaching carers who do not see themselves as carers in a caring role, but someone supporting a loved one. Set against the backdrop of unprecedented financial austerity measures and the most radical changes to public services ever seen, the increasing expectations placed on ‘unpaid carers’ should not be underestimated.
Service providers are under an increasing pressure to perform, with people now living longer and therefore growing older and getting sicker (increasing diagnosis of dementia) the reality is compounded with communities that are becoming poorer with an increasing expectation of unpaid carers to fill the gaps in providing care and support at home.
Every-One: Carers as Service Users
Aim: To raise awareness of how to identify carers and how to support their needs as service users
Action: To continue to raise awareness of carers through Carer Awareness Training - offered to any organisation across Lincolnshire
Every-One: Carers as Employees
Aim: to support employers to understand their duties towards employees as carers
Action: to deliver a range of initiatives that encourage employers to support employees who are carers by reviewing policy and practice.
Every-One: Support Group
Aim: To provide local support to carers within our community
Action: To run a monthly carers support group in the Wellingore area to offer carers an opportunity to come together, share information and discuss their issues.