Innovations in Dementia Community Interest Company

We run innovative and creative projects that demonstrate what people with dementia can do, and test out innovative ways of engaging with people with dementia. Our work is underpinned by our belief that while a diagnosis of dementia might be life-changing it need not be life-ending.

Updated:
7 March 2017
Location:
National
Sectors:
Care
Local Alliances:
Exeter Dementia Action Alliance (EDAA), London Borough of Richmond upon Thames Dementia Action Alliance

1. Action Plan

1. The National Dementia Declaration lists seven outcomes that the DAA are seeking to achieve for people with dementia and their carers. How would you describe your organisation’s role in delivering better outcomes for people with dementia and their carers?

Innovations in Dementia is a national organisation that works with people with dementia, partner organisations and professionals with the aim of developing and testing projects that will enhance the lives of people with dementia. Outcomes from such projects (as well as our consultancy and training work) will influence approaches to dementia care and support in order that they are more creative, positive and enabling.

Our vision is a world where attitudes about dementia have changed: where people are not frightened of dementia, where people with dementia are understood and play active roles in their communities and where people with dementia have a voice in how their lives are lived.

We aim to work creatively with people with dementia through a network that we call ThinkTank. Individuals with dementia and groups of people with dementia help us by guiding and influencing our work and planning and by helping with different projects in different ways.

We all passionately believe in the human rights and potential of people with dementia and are committed to practically demonstrating how a more positive approach can work in practice.

2. What are the challenges to delivering these outcomes from the perspective of your organisation?

We know that people with dementia want better lives and opportunities to be involved now, however changing attitudes can be a slow process. Working with people with dementia to create a better future for others, means we are not always in a position to help people now.

As a small organisation we realise that we need to work harder to have any influence. We do not want to represent people with dementia - we want attitudes to change so that people with dementia are listened to on every level.

We rely on working with like-minded partner organisations - and with funders who have vision.

We have a commitment to involving people throughout their journeys with dementia. Ensuring that the voices of people in the latter stages of dementia are heard presents specific challenges for our organisation, people with dementia themselves and people who we want to influence.

2. Actions

  • Innovative and creative projects

    We will continue to run innovative and creative projects that demonstrate what people with dementia can do. These include MyLife project (in partnership with Trent DSDC and Housing21) which is developing internet-based services and applications that are accessible for people with dementia; and the DEEP project (Dementia Empowerment and Engagement) in partnership with the Mental Health Foundation and Alzheimer's Society), a scoping project looking at how people with dementia across the UK want to be engaged in influencing services and policy.

    Status:
    Implementation

    2012 - Third Quarter Update

    In progress.

    2012 - Second Quarter Update

    In progress.

    2012 - First Quarter Update

    In progress.

  • People with Dementia part of their communities

    We will continue to find ways that people with dementia can be supported be part of their communities. We will take forward our work on dementia capable communities, focusing particularly on access to shops, leisure activities and cultural and community facilities. Additionally, in partnership with NDTi, we will work on a project to develop 'Circles of Support' for people with dementia (2011-2014). In partnership with SWAPs we will continue to work on a national project to develop Shared Lives opportunities for people with dementia (2010-2013).

    Status:
    Implementation

    2012 - Third Quarter Update

    In progress.

    2012 - Second Quarter Update

    In progress.

    2012 - First Quarter Update

    In progress. 

  • Develop methods and approaches

    We will use and develop methods and approaches that mean that people with communication problems can continue to be involved in our work. We will maintain and develop our ThinkTank of people with dementia, as well as our partnerships with services for people with dementia.

    Status:
    Planning

    2012 - Third Quarter Update

    In progress.

    2012 - Second Quarter Update

    In progress.

    2012 - First Quarter Update

    In progress.

  • Working with people with more advanced dementia

    We are committed to working with people with more advanced dementia and those who are seldom heard - for example people from black and minority ethnic groups.

    Status:
    Initial Scoping

    2012 - Third Quarter Update

    In progress.

    2012 - Second Quarter Update

    In progress.

    2012 - First Quarter Update

    In progress.

  • Focus on working with people with dementia

    We will specifically focus on working with people with dementia living in care homes and the people who care for them, principally through a project called 'Our House', a user engagement project in care homes and in partnership with Care UK and MHA (2011-2013). 

    Status:
    Initial Scoping

    2012 - Third Quarter Update

    In progress.

    2012 - Second Quarter Update

    In progress.

    2012 - First Quarter Update

    In progress.

  • Continue to disseminate our work

    We will continue to disseminate our work and our views widely both within the dementia field and outside.

    Status:
    Implementation

    2012 - Third Quarter Update

    In progress.

    2012 - Second Quarter Update

    In progress.

    2012 - First Quarter Update

    In progress. 

  • Making sure that people with dementia are heard

    We will continue to investigate novel ways of making sure that people with dementia are heard - for example through the use of video and through involving people with dementia in the development of our training programmes.

    Status:
    Delivery

    2012 - Third Quarter Update

    In progress.

    2012 - Second Quarter Update

    In progress.

    2012 - First Quarter Update

    In progress.