Dementia and seldom heard groups

This autumn, Dementia Action Alliance (DAA) members will come together to campaign for improved outcomes for people living with dementia and their carers who come from seldom heard groups. These communities include:

  • Lesbian, Gay, Bisexual and Transgender + (LGBT)
  • Black, Asian, Minority Ethnics (BAME) 
  • Young onset dementia
  • Prison population
  • People living in rural communities
  • People with learning disabilities

These are examples, however there are many more seldom heard groups we hope to support through this campaign.

Why Seldom-Heard Groups?


People from seldom heard groups face barriers to accessing good health and social care, which at time fails to meet their needs. Challenges can include a lack of awareness and cultural understanding across health and social care settings. This problem has become more acute as public service budgets have been cut.

Through our diverse membership the DAA is well placed to improve this situation by harnessing the resources and ideas of our members and of other organisations operating across health and social care. 

What will we do?


In June 2017 the DAA will host a series of evidence gathering roundtables with leading stakeholders involved in delivering care and support of seldom heard groups. Roundtables will cover dementia and learning disabilities, dementia within prison settings and within the LGBT+ community. 

These roundtables will be livestreamed for anyone who is unable to attend. Agendas will be available in due course. 

Briefing papers are available here:

Following these roundtables, we will develop a set of recommendations and actions. This will form a pledge that we will ask everyone to sign to demonstrate their commitment to this cause.  

We will launch our campaign in September 2017.

How can you get involved?


Prior to campaign launch 

After campaign launch 

  • Sign the campaign pledge
  • Commit to a set of actions that your organisation will take to support people affected by dementia from seldom heard groups
  • Share the campaign with your networks to raise awareness of the challenges faced by seldom heard groups

If you would like to learn more about the campaign and how you can get involved, get in touch.