A diagnosis

"A diagnosis of dementia is given not just to one person - it is given to a spouse, a partner, a child, the extended family and friends" Alistair Burns


What can you do to support The Carers’ Call to Action?

  • Use our 20 point checklist to check what services are available in your area – there may be a difference between what you know about and what is actually available! It is also useful to highlight the strengths and the gaps in your area.
  • Share your checklist with us and examples of the good services you know about in each category. Email us at: admin@carersdementiaaction.co.uk . We will be collating this information for our website pages.
  • Please use and let people know about our Booklet, which includes the 5 aims of our shared vision for family carers of people living with dementia. The booklet has been written by carers for carers available to download. A limited number of hard copies are available please contact us by email if you would like some.
  • We aim to promote local and meaningful engagement within your community to ensure the voices of families living with dementia are heard to inform the support that is commissioned and provided.
  • There are an increasing number of Local Dementia Action Alliances (LDAA) across England who can support you and would be very keen to hear from you. See if you have one near you then you can find the full list at: www.dementiaaction.org.uk 
  • You can also speak to your Healthwatch who support local engagement to find your local Healthwatch go to: www.healthwatch.co.uk
  • If you would like to consult with family carers of people living with dementia but would like some guidance please see our summary available on request.
  • If you are a family carer and would like to know what arrangements should be in place to support you if you attend a consultation meeting e.g. travel, care or what will be expected of you then please feel free to contact us to get a summary or to discuss.
  • Encourage others to SIGN UP on line 
  • Please download the ‘We Support’ logosand add to your website and printed materials
  • Please tweet on twitter – our hash-tag is #DAACC2A and our user name is @DAAcarers
  • If you are able to offer anything practical for example fundraising, social media, time, experiences, stories, money! Please get in touch.
  •  Write to your GP/Clinical Commissioning Group/Health and Wellbeing Board/MP/Local Authority/ District Council/ etc. Template letters are available on these pages.
  •  Embed the five aims of our shared vision in your own service development strategy
  • Work within your local community to increase awareness of the needs and rights of carers of people who have dementia – this may include fundraising for carers support groups, talking to local groups etc.
  • Share your story to highlight the need for The Carers’ Call to Action
  • Share your own story to highlight how much support you received that helped.
  • If you have experience of caring for someone with dementia and you would be happy to talk about it at meetings, events or conferences we can support you to do this!
  • We aim to provide a solution based approach finding creative and pragmatic solutions  email: admin@carersdementiaaction.co.uk 

                           Barbara Pointon

          The inspirational Barbara Pointon who cared for her husband Malcolm