Top 20 Checklist for Commissioners - Examples of Services Supporting Family Carers of People Living with Dementia

We are starting to collate examples of good practice where services support family carers of people living with dementia Top 20 checklist of services supporting family carers of people living with dementia.V2 doc. Please see each individual point below and email us at: admin@carersdementiaaction.co.uk if you provide, or know of, a good service supporting family carers needs and rights. We really need your input in developing this really important resource for The Carers' Call to Action

Top 20 checklist:

 

One

Pre-diagnosis support from the point of GP referral to Memory Clinic - Click here for examples of services

Two

Post diagnosis education for the family and person with dementia. - Click here for examples of services

Three

A dementia adviser/support worker/Admiral Nurse/ to provide on-going & timely access to local, face to face, personalised, dementia expertise and practical advice as well as psychological & emotional support. - Click here for examples of services

Four

On-going & timely access to dementia specific local information, resources and support in a variety of accessible formats. - Click here for examples of services 

Five

Support for family carers that provides a clear, collaborative pathway of action and plan of care once GPs have identified a family carer (QOF April 2014.) - Click here for examples of services 

Six

Carer Peer Support Groups specifically for family members/carers/friends of people living with dementia, which meets the cultural needs of the local population and age range of those affected.- Click here for examples of services

Seven

Health and social care staff (including third sector services) who have knowledge & expertise in dementia to complete personalised assessments of a person who has dementia and their family carer’s. - Click here for examples of services

Eight

An expert clinician in dementia to support and supervise Care Co-ordinators/Social care staff/Health Care Practitioners with their role in assessing, treating and managing the impact of co-morbidities of the person with dementia and thus supporting the family carer. - Click here for examples of services

Nine

Support to remain active and integrated in the local community thus reducing impact of loneliness and social isolation of both the person with dementia and their carer e.g. dementia friendly communities, health prescriptions, community transport, age appropriate activities. - Click here for examples of services

Ten

Access to appropriate and timely respite opportunities by the hour, day or week in a range of settings.- Click here for examples of services

Eleven

Age appropriate support for the impact of young onset dementia e.g. supporting younger family members, loss of income and roles. - Click here for examples of services 

Twelve

Culturally appropriate, accessible information and support for people with dementia and their family carers from Black and ethnic minorities communities. - Click here for examples of services 

Thirteen

Culturally appropriate, accessible information and support for people with dementia and their family carers from Lesbian, Gay, Bisexual and Transgender communities. - Click here for examples of services 

Fourteen

Dementia advocacy services – e.g. to capture the wishes, values and beliefs of a family carer and strategies to ensure people living with dementia have a person-centred assessment, support for completing legal and financial issues. - Click here for examples of services

Fifteen

Community Health & care services that are delivered by those who have training & expertise in dementia (not just dementia awareness) e.g. dentist, nutrition, opticians, podiatry, hairdressers who specialise in dementia and offer domiciliary visits. - Click here for examples of services 

Sixteen

Training in dementia care for Health & Social Care professionals. - Click here for examples of services

Seventeen

Glossary/overview/Jargon buster concerning what professions/services mean and what they can do for you. - Click here for examples of services

Eighteen

Dementia awareness promotion within local communities and businesses including Dementia Friends, Dementia Friendly Communities/Environments, Local Dementia Action Alliance initiatives.- Click here for examples of services 

Nineteen

Support for employers to enable carers to continue working. - Click here for examples of services

Twenty

Support, and training as necessary, for family carers and people living with dementia to have a voice to influence and support change locally. This requires a ‘meaningful community engagement’ so that commissioning services is based on the evidence of need of the local population. - Click here for examples of services